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kennedymoore

Member Since 02 Jul 2011
Offline Last Active Aug 24 2013 07:10 PM
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#731872 Fear Of Doctors & Symptom

Posted by kennedymoore on 18 September 2011 - 11:40 PM

Hellopixies90,

I just want to add that you can find comfort on this site by just having someone to talk to who cares about you and understands.
Like so many celiacs I too don't trust doctors. It took me 12 years of seeing doctor after doctor and getting no relief. Even when I could not walk, had to close my business, could not drive, and was from a wheelchair to a cane, totally bedridden I was told it was all in my head. Well, it was actually in my stomach!

I think that we know our bodies better than any person with MD, Phd, LCSW, behind their name. Trust what your body is telling you. You might not be able to go totally gluten free but you can make the choice to not eat wheat, barely, rye and oats.

However, you should not eliminate gluten from your diet before you get tested for Celiac Disease.

Get tested as soon as you can. It would help you to know your diagnosis. Second, with a diagnosis your family my be more supportive. But if they are not don't let it worry you. Lastly, the disease often causes anemia, Vit. D deficiency, thyroid problems and more. You need to know what deficiencies you have and what if any other autoimmune diseases you have so you can manage those. So you need to ask for a CMP, CPK, CBC, Thyroid Panel, Vit D levels, Iron Panel at a minimum in addition to the Celiac Panel. A gastroenterologist, a good hematologist and/or a endocrinologist can run all of those when Celiac is suspected.

Doctors do have their place in our care. I only go to the doctor for testing to help me manage my thyroid, vit. D levels and thyroid. Other than that they are useless to me. Doctors don't know how to make you well, they know how to write prescriptions. They are not trained about Celiac Disease because their is no Rx to write for it, therefore, they are not getting any training from the pharmaceutical companies about it.

Remember, because they are relatives does not mean they have our best interest at heart. Relatives can do more harm to you, because you trust them and expect that they will care for you. Trust yourself and God. Sweetheart, you can survive this and get better.

The best of luck to you, you are in my thoughts and prayers.

Take care of yourself.
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