Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:

Fairy Dancer

Member Since 06 Jul 2011
Offline Last Active Jul 15 2012 04:33 AM

Topics I've Started

Gerd, Migraines And Daytime Drowsiness.

13 July 2012 - 01:28 PM


I am not diagnosed celiac as my blood test came back normal. I was trying out a gluten free diet at the time (it was the only way I was well enough to get to the drs) and did experience some improvement until I went back on grains again after I received the results. At that point I relapsed badly (was bedbound) and so decided to go grain free (loosely paleo) once again. I also booted most processed foods.

Fast forward 3 months and my diarrhoea and pale stools have worn off, my energy levels are a little better than they were and I am now able to get out of bed most days even if I am not yet fully functional.

However, I am still having some problems with GERD like symptoms. I was taken into the A and E the other night with chest pain as they wanted to check my heart and that was fine. As were my lungs. Given that I started getting awful reflux and vomited up acid when I got home I am putting the chest pain down to one hell of an irritated oesophagus. The problem is I think it is also disturbing my sleep as I wake up feeling awful and am drowsy/sleepy all day. I also brux my teeth (grind) so that does not help either and the sleep issues are triggering migraine headaches to boot! So I am still feeling rough.

What I am wondering is if the gerd could be linked as even though I tested negative I still suspect celiac (as it is in my family and I have had significant improvement since going gluten free). Also, if it is linked how long before my gut heals properly?

I have tried reintroducing some foods and that has helped a little. I originally took out both dairy and ALL grains but have now put rice and milk (preferably goats but I will drink cows) back in and seem to be ok with it now (initially the dairy gave me diarrhoea slightly but that has not happened this time) and the rice is lovely for settling my gut. Increasing my carb consumption (I was originally low carb paleo) has helped with fatigue levels. So it's a bit better than it was a few days ago now but are there any other foods that will settle reflux?

I really need a good nights sleep and I am sure the reflux is increasing my bruxing which is stopping me from sleeping properly. It's just that I keep falling asleep in the middle of doing things and I have trouble staying awake during the day...its rather irritating when I have things to do.

I also bought a mediflow water pillow to aid sleep and am waiting to see if that helps.

My drs think its anxiety and depression but I do not agree..given the success I have had thus far with avoiding most grains and given that my life problems have increased recently I feel that indicates my problems were in fact diet based (otherwise my symptoms would be getting worse not better lol).

I used to be on antidepressants but came off them months ago. I had daytime drowsiness then and have been complaining about it for years (although I never used to doze off whilst doing things back then lol...I am only 37 not 90!) but they put it down to the sedative effect of the pill. Well I don't take the pills any more and don't want to especially as I have just gotten my moods to settle down into a normal pattern (I experienced the equivalent of emotional ping pong on those tablets!). But again the symptoms I am getting can't be down to the sedative effect of the tablets after all.

PN I did try taking the antidepressants out whilst on a normal diet and did not get the results I have achieved by removing grains from my diet at the time, so I don't think all of my issues were side effects to the pills.

Anyway, Can sleep problems be linked to celiac (if I do indeed have it?).

Any advice welcome as I need sleep. I am trying to study a degree in science and have had to miss two assignments already because I was too unwell with stomach pain and drowsiness to work on them.


Thank you.


24 June 2012 - 08:30 AM

I went grain free and diary free several months ago and my bowel issues settled down fairly quickly, however, I am still intermittently getting what looks like steatorrhea (pale foul smelling stools that are sticky, float and look greasy). The only things I can think of that might be causing it are:

1 A few weeks back I reintroduced dairy again, found it upset me and took it back out after several days.

2 I also ate some chocolate the other day which quite frankly made me feel quite ill (it sounds odd but not only did my mood turn as black as thunder after eating it but I woke up the next day feeling so ill I had to spend the day lying on the couch...a day later and the pale stools are back too). Although there were no grains or dairy in the ingredients list I admit to taking a chance on that as it did say not suitable for gluten free diets due to manufacturing techniques. I thought I could get away with it as it may not have been cross contaminated.

The question is would the pale stools have appeared if I had not eaten the dairy and then the chocolate and if so how long does that take to wear off?

So far, although I am not diagnosed with celiac disease as the blood test I asked the dr for came back normal and they wouldn't do further testing, I have had some improvements over all on the grain and dairy free diet. Before my diarrhoea was uncontrollable and my bowel was not giving me warning any more whereas now, other than the discoloured stools on occasion, I rarely get diarrhoea. I have also been well enough to at least get out of bed most days (as long as I rest frequently and move around slowly) which is nice as I was previously bed bound most of the time.

However I am still having brain fog and vertigo days along with the steatorrhea, which is annoying. I also get vile migraines or migraine type headaches along with cognitive dysfunction (word recall issues flashing lights in my field of vision and so on) as well as odd episodes of depression that last for a few hours or a day and then go away (which makes me think it's not clinical depression as it does not come and go like that usually...). The mood changes can often precede the migraine type headaches or on days when I am feeling like death warmed up again (ie after eating that chocolate).

Should I be going back to the dr for him to check for other things or should I persist and see if more improvements are made over time? If it is misdiagnosed celiac disease, how long before things settle down properly (if I lay off the dairy and chocolate?). I admit I hate seeing drs as they don't take my complaints seriously and put them down to anxiety and depression without doing any further testing beyond a few blood tests now and then. Years of seeing one shrink after the other and being on antidepressants (that I no longer take as they do nothing) and I have gotten nowhere. I have only deteriorated over the years...until I went on the grain and dairy free diet that is...

All the same, I am fed up with still feeling bad, even though I feel slightly better than I did! I am optimistic that things will continue to improve but I am wondering, if I am going in the right direction and it is a digestive issue causing my ill health, how long it is likely to take before all the oddness goes away completely?

Any advice welcome.


Not Sure What Is Going On

12 June 2012 - 03:15 AM

I was happily tootling along on the paleo diet (no dairy, no grains etc), which I have been on the for the last month and a half, when a few weeks ago I had a bad migraine that left me with vertigo and nausea for a while. Not long after that I also started getting stomach pain (upper half of my abdomen, not lower abdomen). As I could not eat much I put cream back into my diet (for the calories) after taking milk out because it seemed to upset me. Now, for the first few days it was fine, then I missed a day of cream as I ran out but today, after putting it back in, the diarrhoea is running through me. This is the first time I have had diarrhoea since I went grain and dairy free, and as it is pretty bad, I am wondering what is up.

Could it be an attack of gastritis (the stomach pain is not a foreigner to me as I have had it at times in the past and it started before I started drinking cream)?
Could it be the dairy? (causing the diarrhoea not the gut pain as I have had the gut pain for over a week now and just got the diarrhoea today)
Could it be something else?

Whenever I see my dr they diagnose IBS but the pain is in slightly the wrong place (upper gut, not lower gut...nearer my actual stomach and small intestine rather than my large intestine). It could be a viral thing I guess so I am waiting it out but any feedback welcome. Should I take the dairy back out again? I though cream might be ok as it's got very little lactose in.

How Many Food Groups Can A Person Be Intollerant To!

05 June 2012 - 01:33 PM

Ok, I am not diagnosed as celiac although I have a brother who is. I did have a blood test months ago (whilst I was trying out a gluten free/paleo influenced diet for health problems that have lead to my being housebound and bedridden most days including IBS type symptoms with uncontrollable diarrhoea, migraine headaches, CFS type symptoms (fatigue, brain fog, vertigo, migraine headaches and other neurological type stuff) but as the test came back negative for celiac so I went back on the gluten again. Queue a severe relapse after a slight (very slight) improvement after going gluten free.

Some months later due to be sick and tired of feeling sick and tired I am trying gluten free again and have now gone full blow paleo. First I took out wheat and kept dairy. Slight improvement in diarrhoea but did not go completely. Took out dairy as well...diarrhoea disappeared. Bloating also went down but as I am overweight my stomach has deflated so much that I now have some spare tyre hanging where the skin has not gone back with it (darn).

Now the version of paleo I do is low carb so out went potatoes. Until yesterday when I decided to treat myself to one.

Result? Diarrhoea and an upset gut...from one potato? Ok I know my gut hates tomatoes so I don't eat them and the same goes for bell peppers but I thought I was ok with potato!

How many more foods is my gut going to object to and is there going to be anything left to eat soon? Do I now have an issue with nightshades too? How many foods can one person be intolerant to? Wheat, dairy and now nightshades!


Are my drs sure the blood test was accurate?

Also if my above issues are gluten related how long before all symptoms disappear as I have been off grains for a month now and whilst digestion has improved some I still get rip rawing migraine, vertigo, brain fog (its like early onset dementia) etc..how long before that leaves me alone to live a life?

Food You Dont Have To Cook

15 February 2012 - 09:08 AM

Hi, I am looking for dairy free, gluten free, soya free, corn free foods that I don't have to cook or can microwave within minutes.

The problem is that I want to try a diet free of the above foods to see it if helps with the fact that I have to spend most days lying in bed because I feel ill. Dizziness, brain fog to the point where I cannot think or organise anything, headaches, stomach pain, diarrhoea, muscle spasms, neck pain, back pain, blurry vision (with or without prescription glasses), dim vision, inability to focus my eyes, feeling spaced out (or feeling drunk when I don't consume alcohol at all), vertigo etc mean I spend most days feeling like death warmed up and am unable to function.

Other more minor symptoms include: intermittent sore throats, bloating, gas that would even offend the pope, acid reflux, a fungal/mouldy taste in my mouth (that comes and goes) and a constantly runny nose, feeling too cold with the odd hot flush thrown in, itching episodes and occasional rashes. I also get wheezing but then again I do smoke so some of those symptoms might be down to that...

I just want my life back.

However, as much as I want to try the diet I don't feel well enough to get up and cook most days, I don't have anyone who can cook for me and so I am left eating ready made junk foods that I have delivered most of the time. Sugar cravings from hell also don't help with this and I do eat far too many carbohydrates. This is not ideal and is probably slowly killing me given that I don't feel well enough to exercise...I need somehow to break the cycle but I am stuck.

I could just eat fruit but it is not filling enough...

What can I buy and eat that does not require any cooking and which does not contain any of the above ingredients?

PN I have ruled so many food groups out to begin with because if there is a dietary link I do not know exactly what is making me feel bad. I do know I feel worse after eating but then again, after a while I will also fee bad if I don't eat anything at all...but its hard to tell what is and what isn't affecting me!

Celiac.com Sponsors: