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Member Since 11 Jul 2011
Offline Last Active Jul 14 2011 02:24 PM

Topics I've Started

Got Test Results...now What?

13 July 2011 - 03:26 PM

My DD was diagnosed with celiac disease last week, and since Iíve been having symptoms even longer than she has (Dr thought it was Crohns or IBS), I thought I might have celiac disease too. I just got my blood test results back: negative. Hereís the breakdown: endomysial antibody IgA was negative. The tTG was 2 (0-3 is normal) and the immunoglobulin A was 200 (70-400 is normal). The IgA ABS was 5 (0-19 is normal). Could it be a false negative? Iíve heard there are a lot of those. Dr recommended I go on gluten-free diet for 2 weeks and see if symptoms improve/disappear. I think I should go have endoscopy/biopsy first, before switching to gluten-free diet, so that I can rule it out for sure. Iíve heard that if you switch to gluten-free before the test, it may not show the damage, as you have already started to heal. Is that true? Any advice?

Anyone LDS? How Do You Handle The Sacrament Bread?

13 July 2011 - 08:45 AM

My 16 yr old DD was diagnosed with Celiac Disease last week. In the Church of Jesus Christ of Latter-Day Saints, (LDS) we have sacrament of bread and water each week. The bread is one small torn piece, I would say about the size of a nickel. We asked the bishop permission to subsitute gluten free bread, but were told no, but that we could do home sacrament. I don't want to have to do that for the rest of her life. Anyone else LDS and have this problem? How do I get the bishop to agree to let us bring in some gluten-free bread in a ziploc bag? Is there any info I can show him? His attitude is "It's only one small bite once a week. That's so small I won't hurt her."

How Definitive Is The Blood Test?

11 July 2011 - 09:17 AM

My 16 year old daughter was diagnosed with celiac disease last week after 3 years of unexplained seemingly random stomach pains with no other symptoms. She was given a blood test to check for celiac disease. The doctor didn't really give me any more info other than to go gluten free for the rest of her life. I suspect I have had it for years myself, undiagnosed, and am going in for a blood test today. Is it really necessary to have the biopsy? It seems invasive. If the blood test is definitive, I don't see the point in the biopsy. Could it be a false positive? What exactly does the blood test do? Just say, "yes, you have the gene for it", or actually say, "yes, you definitely have celiac disease"? Any advice?

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