Find contentThanksfoe posting about this, I follow strictest gluten free eating and I know I have been gluttened somehow, had 13 days chronic Diarhea, cannot leave house, cannot go up to hospital see my new born grandson, am reduced tears and I never cry. Feels like 7 months ago before celiac diagnosis, scares me that I will relaspe get wrdsw worse again.I am going to live on chicken broth, roast chicken, gluten free yogurt, blandest foods see if I can pull myself out of this nightmare. TerrilynneI am wondering if anyone knows why the reaction to gluten lingers for a while. First the gas and stomach issues, mucus,D, joint pain, anxiety...etc....then I get a massive headache then C then finally cold sores all over my face. This all takes about 2 weeks and then I am good to go until the next time and it all repeats. Just wondering why it all is so drawn out?
Thanks!
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About Me
Got extremely sick March this year, my general practice doctor was of no use [only tried prescribe anxiety med-told her anxiety is not my illness it is secondary to frightening medical conditions, blood pressure would be real high at Dr. office and then they`d retake and would drop real low,I felt like was having thyroid storm or diabetis, a wide array of symptoms,couldn`t eat, vomit, chronic diarhea 12-30 times day,off balance could hardly walk,lost ton weight.I demanded GI appointment, took 2 months to get in to see Dr Dalke who ran lot bloodwork all strong high positive celiac, scheduled a biopsy for next wednesday the 20th,been nightmare to say the least.Had straight 4 weeks could not get off couch.The lightheadedness pounding heart ,dehydration, nausea,dizzyness,all caused mild anxiety, I was basket case.I had always ignorantly thought of celiac as just stomach issue intolrance to gluten, little did I know of the vast immunity effects such as neurological symptoms, headaches and such that people suffered. I hear great things of Omaha GI doctors,that they are better at diagnostics.Have learned from here and internet sites that the off balance episodes I experienced are common and called Gluten Atxis.Never been so scared in my life as what this hideous disease has put me through. Cannot wait until after biopsy so can begin gluten-free diet.Was told by someone my best source to find general practice Doctors, nutrionalists, physical rehab Dr. experienced with Celiac is to call your state`s local Celiac Society group=experts=people who are Celiac suffers been there and done it all, in the know.After biopsy will call Star City Lincoln Celiac group for onfo.Their phonenumber is [402] 441-9621..you should call get info and doctors. Keep me posted,scarey waiting for these appointments so long, I know.I honestly wouldn`t wish this disease on worst enemy but also would give anything on the other hand if GI doctors could experience exactly my worst week of suffering, to feel firsthand what we have been going through, keep in contact, Terri
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In Topic: Why Does The Reaction Linger So Long
02 November 2011 - 12:08 PM
In Topic: Vision Issue, What Is This?
02 November 2011 - 12:04 PM
Follow up- bought some cod liver oil tabs which contain 1250 IU vit A each (25% of daily allowance) and 130 IU vit D. I am taking 3 tabs a day like the bottle suggests and I am noticing a big difference already. My body was in need of vit A!!
Wow..I am desperate also vision screwy issues eyes tests perfect, I am going to try cod liver oil also.Thanks for sharing, Terrilynne
In Topic: Gluten-free can be a profitable addition to any restaurant menu - The Laconia...
31 August 2011 - 12:22 PM
thanks kindly for great useful links. In Midwest Godfathers pizza offers Gluten Free choices, Sam & louis Pizza has Gluten free pizzas prepared seperately away from gluten, and I read that SubWay sandwhich shops are now test marketing in Oregon and 500 other stores a new Gluten free sandwhich not prepared on normal assemly line areas. Terri<table border="0" cellpadding="2" cellspacing="7" style="vertical-align:top;"><tr><td width="80" align="center" valign="top"><font style="font-size:85%;font-family:arial, sans-serif;"><a rel="nofollow" target="_blank" href="http://news.google.c...amily.php"><img src="http://nt1.ggpht.com...BvL9upjM/6.jpg" alt="" border="1" width="80" height="80"/>
<font size="-2">Daniel Island News</font></a></font></td><td valign="top" class="j"><font style="font-size:85%;font-family:arial, sans-serif;">
<div style="padding-top:0.8em;"><img alt="" height="1" width="1"/></div><div class="lh"><a rel="nofollow" target="_blank" href="http://news.google.c...><b>Gluten-free can be a profitable addition to any restaurant menu</b></a>
<font size="-1"><b><font color="#6f6f6f">The Laconia Daily Sun</font></b></font>
<font size="-1">To the editor, At the age of three I was diagnosed with <b>Celiac</b> Disease, an auto-immune disease which is estimated to affect as many as 3-million Americans. <b>Celiac</b> Disease is an intolerance to gluten which is found in wheat, rye, and barley. <b>...</b></font>
<font size="-1"><a rel="nofollow" target="_blank" href="http://news.google.c...9748.shtml">FDA imposing tough regs on gluten-free products</a><font size="-1" color="#6f6f6f"> CBS News</font></font>
<font size="-1"><a rel="nofollow" target="_blank" href="http://news.google.c...ac.disease">WNY Group promotes awareness of <b>Celiac</b> disease</a><font size="-1" color="#6f6f6f"> WBFO</font></font>
<font size="-1"><a rel="nofollow" target="_blank" href="http://news.google.c...hp">Gluten-Free Living Hits Home For DI Family</a><font size="-1" color="#6f6f6f"> Daniel Island News</font></font>
<font size="-1" class="p"><a rel="nofollow" target="_blank" href="http://news.google.c...ese-biscuits/"> Blogcritics.org (blog)</a></font>
<font class="p" size="-1"><a rel="nofollow" class="p" target="_blank" href="http://news.google.c...djzdI2M"><b>all 6 news articles »</b></a></font></div></font></td></tr></table>
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In Topic: Glutened By Maalox!?!?!
25 August 2011 - 10:43 AM
Hi, searched lot sites concerning Maalox, on Living strong Gluten free Medications it shows Maalox as safe.Did you find out anything more about it.Been Gluten free 3-4 weeks and taking Maalox every day, hope safe and not what is making me still feel like crud.So after getting glutened earlier this week, I was finally getting back to 100% last night, but had some spicy food. I took some Maalox before heading to bed, and was up in the middle of the night feeling like ass soup.. Turns out Maalox wasn't a good choice after doing some reading. I'm more ranting than anything here... I'm at almost 4 weeks into going gluten free, and I'm hitting that proverbial wall where it feels like there's nothing I can have anymore. It's pretty messed up when something that was intended to make me feel better, will make me feel worse for a few days...
Over-the-Counter Gastrointestinal Medications
The list of gluten-free over-the-counter gastrointestinal medications includes Effervescent Alka Seltzer Plus, Gas X, Extra Strength with Maalox, Imodium, Lactaid, Maalox, Mylanta, Pepcid, Pepto Bismal, Philips Original Milk of Mangesia, Prilosec and Tums (Ultra, Regular and EX).
In Topic: Glutened By Maalox!?!?!
25 August 2011 - 10:37 AM
omg I have been taking Maalox everyday, been gluten free for 3 weeks aprox, I don`t want to take Pepto people mention, constipated enough,ugh.TerriIt for sure has gluten in it. From other posts and sites I'm reading, it was for sure the Maalox. I'm beginning to feel better, but every time I get glutened, I start having energy issues, it just sucks me dry...
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