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blueshabooMoon

Member Since 11 Jul 2011
Offline Last Active Apr 24 2012 01:16 PM
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#723786 Okay, So Is There A Safe Chocolate?

Posted by blueshabooMoon on 18 August 2011 - 02:32 PM

Can you have soy? We buy sweet williams chocolate. Lindt dark chocolate is also gluten free and vegan :)

If you look in "Cecelia`s Gluten-free Grocery Shopping Guide"[they adhere to uber-strict gluten free , there is loads gluten free chocolate safe,M7M`s[not pretzel ones], Rescee`s peanut butter cups original,Hershey`s Heath Bars & Chocolate Kisses, Brachs chocolate Stars,Payday candy bars, Skor,York Peppermint Patty,Plain Hershey Chocolate bars,Andes thin mints,many more. Terri
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#723783 Looking For Yogurt

Posted by blueshabooMoon on 18 August 2011 - 02:22 PM

We make ours, it's really not that hard! We use whole milk and use this method: http://crockpot365.b...r-crockpot.html

We started ours with Nancy's yogurt which is a Pacific NW brand of yogurt that has live cultures. We don't just eat Nancy's because it has milk powder added.

To get it thicker like Greek Yogurt you drain it (line a colander with cheesecloth or coffee filters and let the whey drip into a bowl beneath it).

So excited that you shared this, can`t wait to make this crock-pot yogurt~You are a wish come true to post this, Terri
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#723768 Help Me Like Lara Bars!

Posted by blueshabooMoon on 18 August 2011 - 01:14 PM

Lara bars seem to be beloved by many. I tried one a few months ago and did not care for it (apple, I think). At the grocery store this morning they were on sale for $1.49 each (and several kinds available) so I bought more (we have an upcoming trip to Europe so want to stock up). I tried the cherry flavour and literally had a hard time finishing it! That is extremely unusual for me as I love food utterly. So, what flavours are your favourites? Which shall I try? I would like to like them because they are convenient. As I'm a scratch cook I always believe homemade is better and of course I am aware that we all have different tastes but these somehow evade me. I do not loathe them - but am disappointed. :( I would rather "spend" my fat and calories elsewhere! :D Anyone else disillusioned? :P

Hi, It`s not just you, I cannot make myself fimish a bar either,waste of money, Blah! try find different snack goodie.Terri
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#723123 Gluten Free Menus

Posted by blueshabooMoon on 15 August 2011 - 06:34 PM

Sam & Louie`s Pizza & Godfather`s Pizza both have Gluten free pizzas now. Sam & louie`s has all pizza toppings available Except meatballs & alfredo sauce, they have a grilled chicken gluten free salad also. Godfathers can order hot baked gluten free pizzas available or fronzen to bake at home later. Terri
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#721880 Clarification Please

Posted by blueshabooMoon on 10 August 2011 - 11:39 AM

At least they're finally recognizing gluten sensitivity. You might like to read this interview with Dr. Fasano at the University of Maryland School of Medicine's Center for Celiac Research.

Yes , you are so right that they are or need to recognize `gluten-sensitivity` especially if had bloodwork show strong-high-positive.
The experts say the following "Clinically pertinent coeliac disease exists despite normal small-bowel mucosal villous architecture. Mucosal transglutaminase 2-specific IgA deposits can be utilized in detecting such patients with genetic gluten intolerance."


I always learn from you Sylvia, thanks, Terri
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#721848 What Does A Bad Day Feel Like?

Posted by blueshabooMoon on 10 August 2011 - 10:04 AM

So I've just finished up Week 7 post-diagnosis. By and large I'm feeling pretty good. Actually starting to put a little weight back on (only a couple pounds, but it's a start). We have been very alert about gluten exposure and I'm comfortable in saying that I've been gluten free.

During the seven weeks, I've had roughly 3 bad stretches lasting a day to 4 in duration. One of them I'm able to attribute to some medication reaction, so that is understandable. The other two have been more of a puzzle. I understand that recover takes time. There will be bad days as well as good. I wouldn't say the bad days are a result of gluten. They're not as bad as prediagnosis. The nausea never builds to anything worse. The D never really becomes 'D', if you know what I mean. Soft and unpleasant, but no real cramping or explosive pressure.

So, after that preamble, what were your immediate, post-diagnosis, non-gluten caused bad days like? I have a life to lead outside of this condition, so I'm going to work and trying to do the things I've always done (without overdoing it, of course). During these bad days I've had to miss a bit of work. Any recommendations (medication or otherwise) to help get through these stretches without having to go 'hermit' for a day or so?

I'm keeping a food log (mostly to track calories) and have not noticed any connection between what I've been eating and when the bad days occur. After only 7 weeks, I'm not willing to go searching for additional food problems when it's highly likely this is part of the 'normal' recovery.

Thanks.

Like you quote I am not a Celiac, i have celiac disease but that is not who I am. Well dang it I am going through rough patch again [newly diagosed], and I feel like I am the celiac disease, want to get a handle on this and live life outside the house & restroom again like a `hermit`as you so perfectly coined it.Bad days put in in panic mode, so afraid of relapsing and geting deathly ill for 12 weeks as I was from March-June this year before GI docs figured out lot of what was going on. Suspected intestinal virus that brought or triggered Celiac out of hiding, also small hiatel hernia & splinter gastroesophageal junction [swollen inflammed esophogus].
Learn so much valuable info from all of you who have been through this.I am supposed be the strong helpful one yet grown daughters have been put in charge of hosting all family gatherings etc because mom is always sick. Best advice I saw lately on forums here is eat simple whole plain live foods to start, I bought a whole range gluten free trying to substitute and have meals as normal as used to be & finding even though ingredients are gluten free I cannot tolerate anything tomato based in sauces, eggs, milk, no onions peppers, etc..Investigating L-Glutamine as reasearch shows excellent for healing intestines and stomach lining, and some digestive enzymes.
Envy that you are more highly functioning and able to work. Your great attitude shows in your posts. Thanks for sharing,Terri
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#720984 Balance Issue Ataxia?

Posted by blueshabooMoon on 05 August 2011 - 12:11 PM

Hi!
Can you have dumping syndrome? After meal your stomach would pass all food- undigested to quickly to the small intestine. The small intestine doesn’t know what to do with that thing and tries to melt everything by itself. In this process it will absorb more blood and water from your body and people will feel dizzy. If you have both types, then you can feel dizzy right after food, or 2-3 hours after when partly digested food would end up at the entrance into colon. You don’t have to eat nothing later, but you will have the symptoms.
I have that for one year. Mine is very severe. I had many tests to rule out other things, but so far everything was negative. If I need to do something, or go somewhere, I wouldn’t eat, or drink nothing to avoid the feeling of fainting.
Check this:
http://www.123manken...umping-syndrome

http://www.mdadvice....illness182.html

There are two types of dumping:

1. Early dumping which occurs 30-60 minutes after eating and can last up to 60 minutes. Symptoms include sweating, flushing, lightheadedness, tachycardia, palpitations, desire to lie down, upper abdominal fullness, nausea, diarrhea, cramping, and active audible bowels sounds.

2. Late dumping which occurs 1-3 hours after eating. Symptoms are related to reactive hypoglycemia (low blood sugar) which include sweating, shakiness, loss of concentration, hunger, and fainting or passing out.

Early dumping occurs as a result of rapid emptying of sugars or carbohydrates from the gastric pouch into the small intestine which causes the release of hormones (gut peptides) that effect blood pressure, heart rate, skin flushing and intestinal transit, leading to a light-headed, rapid heart rate and flushing sensation often accompanied by diarrhea. Late dumping symptoms are related to increased insulin after oral glucose (sugar) with subsequent hypoglycemia (low blood sugar).


I will sit by the table and in the instance I will feel like faint, I don't see nothing, I will be very weak, dizzy, not able to move. It's awful feeling.
What you have can be ataxia, but it also sounds like dumping syndrome.

Hi, try google vasal vagus effect or response...very similiar symptoms, the bowel goes all way up the left abdomin and wraps around the spleen, digestive disorders can set off the vasal vagus nerve that is next to it and cause lightheadedness, syncope fainting feeling ,pass out and balance issues, diorientation confusion, blood pressure drops, weak shakey, almost feels like a diabetic response episode to people experiencing. Terri
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#720949 Is It True That Celiacs Lack An Enzyme That Protects Our Body/organs From Can...

Posted by blueshabooMoon on 05 August 2011 - 09:33 AM

Hello, almost every medical site you read frpm the Chicago Med Center who are top of field in Specialized Celiac Dr.`s to Columbia University, all state why it is important if diagnosed to follow life-time strict gluten free diet.
Left untreated or by ignoring confirmed celiac disease could be life threatening for you. We celiacs are prone to be afflicted with dibilitating or life threatening problems: malabsorption, osteoporosis, tooth enamel wearing, your central and peripheral nervous system can be effected, pancreatic disease, internal hemorrhaging, organ disorders (gall bladder, liver, and spleen), and gynecological disorders. Untreated celiac disease has also been linked an increased risk of certain types of cancer, especially intestinal lymphoma. Terri
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#720855 Discovering New Gluten Free Foods

Posted by blueshabooMoon on 04 August 2011 - 04:43 PM

Schar crackers! I love them. They are a bit brittle but taste wonderful. I like Pamela's chocolate chip cookies, too.

Hi, where do you find-get `Schar` Crackers...I need crackers, so far on my own I cut slices Udi`s bread into 1/4`s and toast with olive oil & seasoning on cookie sheet [similiar to how make croutons], and have littel toastettes to put meat spreads, cheese etc on.Thanks ever so much for tip, Terri
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#720633 Tinnitus And Balance Problems/mild Vertigo

Posted by blueshabooMoon on 03 August 2011 - 05:57 PM

Hi

This may or may not be linked to my celiac, but I have had tinnitus in 1 ear for over six months, and an increased feeling of unsteadiness (mild vertigo, like being on a boat). I've had some sinus problems as well, probably city-induced allergies, that I've mostly dealth with and still the dizziness.

I'm looking into the causes of this (inner ear issue, possibly a form of Meniere's?), but am wondering if anyone else with celiac has also had similar problems? (or, if you have any advice, even if it's not

I have been sticking to the gluten-free diet for over 2 years and most of my symptoms have gotten better.
I currently have low iron, though (not anemic, but bad enough to need supplements), which may be causing some of the dizziness, and could be due to trace gluten a little too often.

I've done a little research, and hear that a low-sodium diet can help with balance problems (regulate fluid in the inner ear). Anyone have experience/advice on eating a gluten-free and low-sodium diet?

Any help/advice/etc would be great.

Thanks a lot!

Peg

Hi Peg, you found the right place, I have conversed with some of most genuine kindest people on the planet here. The ear thing is common symptom and so is vertigo also balance issues with celiac are called Ataxia, google it and see if fits what you are experiencing. I too am suffering being off balance, unsteady gait when walking, very frightening. I posted similiar post if you click on my profile then click topics you can read what experience celiac community has responded back to me. Hang in there. Doctors know less than you will about celiac and you have to be own advocate, research and learn all you can. Terri
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#720630 Discovering New Gluten Free Foods

Posted by blueshabooMoon on 03 August 2011 - 05:52 PM

Celiac is is far cry from anything to celebrate but the ~Scavenger~hunt for Gluten Free foods does have the element of thrill to it when I make a new discovery of allowed foodage. Lays stackers and all the possibilities with Gluten-Free Betty Crocker mixes [Brownies,choc chip cookies,peanut butter brownies made from cookie mix, carrot cake & pineapple upside down cakes made from yellow mix], does give me a tiny joy of sorts.
Also tried Udi`s bread toasted with orange marlalade yum, and dug around internet and found site with great recipes: better than any off-the-shelf-glute-free Flour is this "Master Mix Flour" [ 1 cup tapioca flour & 2 C. potato starch or potato flour & 6 Cups white or brown rice flour+Mix and store airtight rubbermade. Also tip for Croutons=with Cean new kitchen scissors cut Gluten free bread into tiny cubes and cover with own mix olive oil, garlic powder, onion powder,, parsley salt pepper on cookie sheet and bake low slow like you would party mix. And my fave is a gluten free Cream Soup Base [1 tsp chicken flavor boullion,2T cornstarch, 1 Cup Milk or rice/coconut/almond Milk, 2 Tb. butter, 1/2 tsp salt, blend and if want as soup add 1 cupwater, & your choice diced cooked chicken , celery, diced mushrroms, drained canned tiny shrimp, and there you have several varieties of Cream Soups for all you campbell sauce recipes over meats and casseroles. I will not Starve going Gluten Free and on the other hand I would live on green beans if that`s what it takes to get better from hideous celiac disease. Terri
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#720531 Balance Issue Ataxia?

Posted by blueshabooMoon on 03 August 2011 - 10:54 AM

Gluten ataxia-

Yes, it improved with diet, but it took a while longer for me, as I also have c- spine issues and have not had a doctor who could sort it out - I learned about this by reading, reading, reading trying to match symptoms to what could improve with diet- in the beginning when I gave up grain, I got better and was told this was not related since they were on the "it must be MS kick" - In Europe they acknowledge that gluten causes neurological damage, but here in America it's not made it to "common knowledge" stage yet. I had a lot of numbness in my hands/feet, besides the balance issues. I swear if I ever met Dr. Hadjivassiliiou I'd be wanting to hug him, I kept running into this big, long name in the pubmed searches at first, because he's written up studies about it that are readable.



See how it mentions ocular signs?
Even my freaking eyeglasses exam doctor could see that something was wrong but when they sent me to this lousy, nasty HMO opthamologist doctor I was completely blown off.
I was really surprised to get the color vision mostly back in the one eye, and get rid of the nightblindness, but it's probably been screwed up since childhood, and my eyes still do not track well together. Another neurologist was caught flat - footed by the white matter "hyperintensities" on my brain scan. I don't care if you have never heard of something, when patients have real symptoms and real abnormalities on tests, the answer is STILL NOT "it's all in your head."

Hi,ps. forgot to mention I also have degenerative cervical neck spine issues.Terri
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#720530 Balance Issue Ataxia?

Posted by blueshabooMoon on 03 August 2011 - 10:49 AM

Gluten ataxia-

Yes, it improved with diet, but it took a while longer for me, as I also have c- spine issues and have not had a doctor who could sort it out - I learned about this by reading, reading, reading trying to match symptoms to what could improve with diet- in the beginning when I gave up grain, I got better and was told this was not related since they were on the "it must be MS kick" - In Europe they acknowledge that gluten causes neurological damage, but here in America it's not made it to "common knowledge" stage yet. I had a lot of numbness in my hands/feet, besides the balance issues. I swear if I ever met Dr. Hadjivassiliiou I'd be wanting to hug him, I kept running into this big, long name in the pubmed searches at first, because he's written up studies about it that are readable.



See how it mentions ocular signs?
Even my freaking eyeglasses exam doctor could see that something was wrong but when they sent me to this lousy, nasty HMO opthamologist doctor I was completely blown off.
I was really surprised to get the color vision mostly back in the one eye, and get rid of the nightblindness, but it's probably been screwed up since childhood, and my eyes still do not track well together. Another neurologist was caught flat - footed by the white matter "hyperintensities" on my brain scan. I don't care if you have never heard of something, when patients have real symptoms and real abnormalities on tests, the answer is STILL NOT "it's all in your head."

Wow~Thanks for all Great info,I too swear my eyes are worse, ready make appointment Eye Dr., suffer like you from these `ocular` problems,night-blindness now, very sensitive bright lights [put dimmer switch on lamp by easy char living room],I swore years ago had an MRI and they will never get me in that thing alive again I am sooooo clostraphobic-ha ha, but am serious.People like yourself are a God-send, more informative and sensitive than doctors. This may sound cruel but have often wished that my doctor could experience exactly what I felt when was at my worst weeks[ 4-6 weeks not eating, non stop bathroom trips, vomit,near blacking out,unable walk-,then they could comprhend & know and be barely make it sink for water to take meds, etc.]better prepared to help you.And family members tire easily of hearing whining complaints & has to be hard for them to understand why you can`t go to functions with them. Thank you soooooo much for posting info about this Dr., Terri
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#720263 Dr. Researches Possible Enzyme For Celiac

Posted by blueshabooMoon on 02 August 2011 - 10:36 AM

Today I ran across interesting article on celiac= A Dr. Frits Koning from the Leiden University Medical Center in The Netherlands has done research on an enzyme called "prolyl endoprotease" (PEP), which possibly could be break-through as a treatment for celiac disease. He thinks this enzyme could work in the stomach by breaking large gluten molecules into harmless fragments that`ll pass through the small intestine without teeny particles food leaking through into our bloodstream that triggers the destructive autoimmune response that happens when we celiac sufferers eat gluten. This would be an enzyme you can take by mouth. A video interview podcast is available on life lines.tv episode #20 to listen to.
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#720138 Balance Issue Ataxia?

Posted by blueshabooMoon on 01 August 2011 - 09:26 PM

The ataxia went away completely in a few weeks after going gluten free.
I would have unexplained falls, in the shower, while walking, or I would be so light headed and dizzy I had to actually think about every single step I was taking. First the dizziness went away, then the falls stopped, then I no longer felt I had to think about every step I took. It was and is Wonderful! My Dr. said....nothing...just looked at me puzzled and said hm....

My son had ataxia in his walking...sort of shuffled or stumbled intermittently while walking. We long thought we were just uncoordinated. Until we learned about gluten. Many other symptoms cleared up too. Within weeks his symptoms of walking uncoordintedly stopped completely. He runs now...for the first time in his life. Thank god for people who share information about gluten. My god...the lives it steals. Hope yours resolves very quickly too.

I was a little concerned having read that neurological problems can be the last to go and may never resolve completely. I was fully prepared we might be one of those but was very relieved to find that we are not. Hoping for your full recovery.

Awesome...bless You..hearing Any Good News at all is sooooo refreshing..you give me hope, thanx million, Terri
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