blueshabooMoon

Got extremely sick March this year, my general practice doctor was of no use [only tried prescribe anxiety med-told her anxiety is not my illness it is secondary to frightening medical conditions, blood pressure would be real high at Dr. office and then they`d retake and would drop real low,I felt like was having thyroid storm or diabetis, a wide array of symptoms,couldn`t eat, vomit, chronic diarhea 12-30 times day,off balance could hardly walk,lost ton weight.I demanded GI appointment, took 2 months to get in to see Dr Dalke who ran lot bloodwork all strong high positive celiac, scheduled a biopsy for next wednesday the 20th,been nightmare to say the least.Had straight 4 weeks could not get off couch.The lightheadedness pounding heart ,dehydration, nausea,dizzyness,all caused mild anxiety, I was basket case.I had always ignorantly thought of celiac as just stomach issue intolrance to gluten, little did I know of the vast immunity effects such as neurological symptoms, headaches and such that people suffered. I hear great things of Omaha GI doctors,that they are better at diagnostics.Have learned from here and internet sites that the off balance episodes I experienced are common and called Gluten Atxis.Never been so scared in my life as what this hideous disease has put me through. Cannot wait until after biopsy so can begin gluten-free diet.Was told by someone my best source to find general practice Doctors, nutrionalists, physical rehab Dr. experienced with Celiac is to call your state`s local Celiac Society group=experts=people who are Celiac suffers been there and done it all, in the know.After biopsy will call Star City Lincoln Celiac group for onfo.Their phonenumber is [402] 441-9621..you should call get info and doctors. Keep me posted,scarey waiting for these appointments so long, I know.I honestly wouldn`t wish this disease on worst enemy but also would give anything on the other hand if GI doctors could experience exactly my worst week of suffering, to feel firsthand what we have been going through, keep in contact, Terri