I have decided to go back on the diet regardless of my test results. Last time I did it I could never really get into the bread or pasta. Any ideas as to the best bread and pasta? I don't care if I have to order it I just want a soft bread and good pasta noodles (I LOOOOVE SPAGHETTI). Anyone tried the quinoa pasta, is it good?
Finally got my EGD results from about two weeks ago, this was to reassess for celiac disease and iron deficiency. They said the biopsies came back ok but showed small bowel inflammation which because of iron problem is quite suscipous for Celia disease and I need the blood work again. I have had this test done about four times, it keeps coming back normal but the GI doctor keeps suspecting it. I also had a video capsule done with the EGD and the capsule sat in my stomach for 8 hours!!! It never made it to my small intestine which means the test was useless and I wasted four hundred dollars and now i must be checked for gastroparesis. Did anyone else have tests done over an over again before they finally got the answer! So frustrated
Anxious and excited for my second EGD, the last one was kinda inconcuslive and ready for a second look. Time to find out if my blood lost, malabsorption and abdominal pain is an ulcer or celiac disease
So I saw my doctor and pretty much gave him a quick run through of my health history for the past year. It was a pretty disappointing appointment. He pretty much said ok so last time we did the EGD you were gluten free for a few months before and kept on it. I told him I had been back on gluten for about 9 months now he said great lets do an EGD and small bowel study, we will do biopsies and check for an ulcer. All he said was you are losing blood somewhere lets find out, if I can't go to the OB/GYB. I live in orlando and this guy is supposed to world renowned on malabsorption disorders in general yet our visit lasted about 7 minutes!
Ok so I wrote earlier about my severe iron defienciency I was having and my need for a GI workup based on advice from the doctor at the hospital. I have not gone to the GI doctor yet but work as a nurse and saw a doctor that works with my GI doctor. I was talking to him and telling him about my previous EGD results (villous atrophy in duodenum and jejunum) with negative biopsies and blood samples. He asked if they checked my poop for blood in the hospital which they did and it was negative. Even though I have had symptoms of celiac before but I am now on a gluten FULL diet and have no diarrhea just constipation and mild cramping. He swears I must have some sort of GI bleed somewhere and there is no way I hAve a malabsorption issue because I have been tested for celiac, UC and crohns (although I still believe celiac could be my culprit) he even said himself maybe it's gluten intolerance you have but that wouldn't cause iron defienciency so it must be a bleed. Is this guy that uneducated??? I have no symptoms of an ulcer and I am already on prophylactic meds for that and my stool has no blood. If I am eating enough iron and not losing blood the only other option is malabsorption. I am so frustrated really hoping when I meet with my own doctor (who really isn't much better) he will listen to me more. Even my hematologist said I may just be one of those people that dont absorb and need infusions every once in a while for the rest of my life. So even she thinks its malabsorption!
Btw anyone here still not have resolution of anemia with gluten free diet and need iron supplements or infusions?