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Ollie's Mom

Member Since 12 Jul 2011
Offline Last Active Jul 03 2013 12:03 PM
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#874931 Breast Feeding Issues (Low Milk Supply)

Posted by Ollie's Mom on 16 June 2013 - 04:08 PM

You got a lot of good advice, so I won't repeat any of it.

One question, though. Do you have a lot of fat in your diet? I'm like you, and stay think pretty much no matter what. I'm also dairy free. When I'm breastfeeding, especially those first few months, I crave fatty things and I figured it was to supply fat to my milk. I would literally eat spoonfuls of coconut oil each day. And I'd use a LOT of olive oilin my cooking.

Getting your supply up (if your body will let you) will require almost around the clock nursing. (iI've kept track, and my all time record was 9.5 hours with a baby latched on to me in a 24 hour period... Intense stuff... But they seem to be worth it ;) )
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#872271 Unsupportive Family Keeps Demanding I Attend Rehearsal Dinner.

Posted by Ollie's Mom on 03 June 2013 - 03:21 AM

I think you should ask yourself this, and answer honestly: if you did not have a celiac diagnosis, would you go to the rehearsal dinner? (another approach to this question is: if the restaurant they chose was gluten-free friendly, would you go to the rehearsal dinner?)

If the answer is yes, then you should go. Bring your own food, or eat before.

The wedding is not about you, it's about you brother and his wife to be. Trust me, we've all been there. 4 years into this, I would love to be invited out even to simple things like lunches with coworkers. But they think it's rude to invite me to a restaurant I can't eat at; I think it's rude that they don't invite me at all. It's not an easy thing to deal with when social functions tend to revolve around food, but you don't need to eat to be social.
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#868364 Is Genetically Modified Wheat Common Now-Days Responsible For This Condition?

Posted by Ollie's Mom on 13 May 2013 - 04:51 AM

I thought there was a study done where they screened blood samples from army recruits from the 1950's (preserved samples) and recruits from modern times. There was a statistically significant difference in the percentage of positive antibody results, something like the percentage of positive results today being twice that from 50 years ago. This implies that the rate of celiac disease has in fact increased.

(sorry, I'm on my phone and cannot easily search for or post a link to the abstract for this study).

As for being more afraid of environmental pollution than GMOs, those are two separate issues, both worthy of concern imo. Once you start messing with the natural balance of things, you are opening the door to unforeseen consequences. I always think about the decision to take feedlot herbivores, such as cow's, and forcing them to eat meat and other animal products. Food is food, right? Oops.... Mad cow disease. How could we have seen that coming? Feeding them grains (corn, not a normal part of their diet) is no problem, right? Oops... Man killing strains of e coli. How could we have seen that coming? Genetically modifying plants a la Monsanto method to make them stringer / higher yielding / "round up ready" / etc is no problem, right?

You get where I'm going with this.

Just my 2ยข
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#862244 Flour-Filled Check-Outs

Posted by Ollie's Mom on 06 April 2013 - 06:41 PM

I have often told the cashier to wipe down the conveyor before I put my stuff on it. Yep, I'm one of those annoying people... I see people roll their eyes at me all the time. But I don't care.

I also bag all my produce, because I figure a bit of flour stuck to the outside of a bag isn't as bad as flour stuck in broccoli florets.

And I refuse to walk through the store's bakery section. Also, I've noticed that the times I've wandered down the baking aisle (danger!) I hold my breath as I walk by the bags of flour. I do it subconsciously. Lol.
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#862128 Is It Normal For Doctors To Discourage Celiac Testing?

Posted by Ollie's Mom on 06 April 2013 - 03:11 AM

Aveeno has gluten in it. Just FYI.

Good luck with the testing!
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#859771 Can Going Off Gluten Be Dangerous?

Posted by Ollie's Mom on 21 March 2013 - 10:21 AM

I only eat cauliflower when it's in season. Same as asparagus. So for many months of the year, I don't have even a trace of these foods. When they're back in season, I can eat them no problem.
My husband has gone months eating gluten free, then eats it again if he's out with friends or craves fast food. He does this no problem.

But.. I can't touch gluten. He can't touch cantaloupe. We each have our own food sensitivities. Not eating a particular food doesn't create intolerances; but elimination diets can and do make underlying sensitivities more obvious.
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#858134 They Are Refusing To Test For This Based On My Ana, What Do I Do?

Posted by Ollie's Mom on 12 March 2013 - 06:14 AM

I wish we could answer those questions for you. I already replied to your other thread so I won't repeat myself too much. But if you don't need an official diagnosis, going gluten free now without testing is a viable option.
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#855063 Gluten Challenge Results: Opinions Needed

Posted by Ollie's Mom on 20 February 2013 - 05:41 PM

My son was getting tons of "mystery" fevers. Sometimes as high as 103+. They all disappeared after we removed gluten from his diet.

A fever just means your immune system is ramping up a response to something. It doesn't necessarily means that something has to be viral.

Sounds to me like the gluten challenge confirms a gluten issue. I think the fact that his exposure was accidental, but that you noticed his symptoms without knowing he had been exposed, makes the results that much more striking. It is not like you were anticipating a reaction of some kind because you knew he had consumed gluten.
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#854949 Toddler Has Celiacs?

Posted by Ollie's Mom on 20 February 2013 - 05:23 AM

I know the daycare is saying they're being careful (and I am sure they're trying) but trust me, your daughter is definitely being exposed to cross contamination. If there are other kids in the same room eating gluten foods, there are crmbs everywhere. And my son has been known to snatch bits of crackers and cookies off the floor and pop them in his mouth in a few nanoseconds. And playdough is a staple at those places.

If we have him home for a week or more, we see significant improvement in his bowel movements.

Could you take a week or two and keep her home to completely control her food intake and environment?
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#846929 My 16 Month Old Daughter Got A Borderline Positive

Posted by Ollie's Mom on 05 January 2013 - 07:38 AM

I agree with pp's. Positive after 2 months gluten-free plus resolution of symptoms on gluten-free diet would be enough for me.

If you need a diagnosis, perhaps you could see about getting a referral to a celiac specialist, even if it is a few hour drive away, so that you get that official celiac diagnosis. Then you can march in toa doc office closer to you for more regular care wwith a diagnosis in-hand.

Good luck, and you must have awesome mommy instincts!! :-)
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#843234 Christmas Family Event. Beyond Frustrated

Posted by Ollie's Mom on 15 December 2012 - 05:57 PM

Also, I think I understand from your post that you want to keep this conversation you had with her a secret, essentially. Is that correct? Why?? You're not being unaccommodating, she is. Maybe I'm old school, but she isn't really part of the family. You are. Your DH and DS certainly are. Just let everyone know matter of factly what was said (preferably with her there to witness it and "defend" herself). Then if she got all snarky, that's when I'd be b!tchy back (as above).
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#838446 Not Sure I Can Do Much More Of This...:(

Posted by Ollie's Mom on 23 November 2012 - 06:57 AM

I will start this by saying I'm autistic, so don't have much advice about how to handle your family. What you have described sounds highly disrespectful on their parts, but to be honest stuff like that doesn't bother me. Guess you could say I'm lucky that way.

I did want to tell you that a few months in you will probably find that your tastebuds have changed, and that things that used to sound so good (processed snacks and fast food, for example) just don't smell at all appealing anymore. I used to love kraft dinner, but now the stench of it (yes, it's a definite stench) turns my stomach.

There's a positive side to this in that you will taste "ordinary" foods in a new way. Apples taste fresh and delicious; roasted beets are so sweet and hearty; salads taste delicious without any salad dressing.

Since going gluten-free 3 years ago, my diet is much more varied and I enjoy food much more than I did before. And I'm getting really good at pulling together husband and kid approved meals with whatever I happen to have on hand.

I have dealt with people being obnoxious about my dietary restrictions, but I have noticed now that more often I hear people saying "I wish I ate as well as you" or "your lunch smells terrific" all while they wolf down their stinky whoppers or big macs.

You will get there in time. And this is definitely the place to come for great advice and support.
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#794969 If You Have Celiac Disease, Would You Keep Your Children Gluten Free For Life...

Posted by Ollie's Mom on 11 May 2012 - 07:06 PM

I work with ASD kids and I can tell you the diet doesn't make a difference. The only thing it wil do is make the kids have less stomach problems IF they're already celiacs.


I must have missed this post. This is from almost a month ago.

In any event, I must completely disagree with your statement that a gluten-free diet doesn't make a difference for those with an ASD. I would not have an issue if you said it didn't make a difference in ALL cases, bit I know from experience it makes a difference for some.

I am autistic and I can assure you that being gluten-free has a huge impact on my ability to relate to others and the world in general. When I have been glutened, I feel much more estranged from people, am more sensitive to sound / odours / touch , cannot express myself and am prone to meltdowns. I describe it as feeling "more autistic". Being on a gluten-free diet doesn't make my autism disappear, it just makes it much more manageable and tolerable.


Saying there is no impact on those with ASD is a very closed minded position to have.
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#785713 Autism Rising

Posted by Ollie's Mom on 06 April 2012 - 09:25 AM

I have AS and was diagnosed as an adult. For me the label gave me some peace because I now understood why and how I was so different from all the "neurotypicals" around me. Before, I thought that everyone else was just way better at handling the stress off social situations, loud noises, smells, lights, textures, etc.

I didn't access any special services ( I've learned my own coping mechanisms over the years) but I would have had I been diagnosed when still in school.
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#751996 Still Angry Sometimes After 2 Years

Posted by Ollie's Mom on 29 November 2011 - 06:24 PM

Personally, I simply tell everyone that I am "allergic to gluten." Sometimes (if they are somewhat knowledgeable about gluten) they ask, "Do you have Celiac?" and I say "Yes."

But I am self diagnosed via an elimination diet.

I want people to understand the seriousness of my gluten issues - to the point where I don't care if what I'm saying is actually true or not. If people asked me if I have Celiac, and my answer was, "Well maybe, or maybe it's gluten intolerance. I was never officially diagnosed, I figured it out on my own," I really don't think they'd take me as seriously as I want them to.

I also find the word "allergic" helps when people have never heard of gluten. They think peanut allergy, and that suits me fine. Then they don't get upset when I refuse to eat their delicious, home made cookies.
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