Sam81

Quick background to this is I was diagnosed with bechets at 16 at put on dapsone tablets - 50-100mg daily.  Left to manage it on my own.  I stopped taking it 2 years ago when I was pregnant and havent taken it since due to breastfeeding.  Slowly symptoms of my body/stomach not liking something have come along and I also get this rash when I eat certain things.  Im tired, irritable, constant stomach aches/pain, migraines, urgency for toilet and messy when I go, dizziness and bad memory.  Dr's so far have put most of these symptoms down to stress and having children.  But I feel different, my head is always foggy and I hate this anger that comes from no where.  Rash has been treated over the years as Psoriasis, impetigo and one dr said it was because i must of left mess on me when I'd been to the toilet!  Dr has done "celiac Blood test" which he says is negative but refuses to give me the actual result.  From what I can tell he has only tested the "Anti-tissue Transglutonase" level?  So here are some pictures of the rash I get on my face (purple marks that can be itchy but usually painfull and take months to go), bottom - (intensely itchy and burning - note the scratch marks!) and legs - these look more like hives I think.  I havent included all the pictures of the rash on my beind as it's very embarassing - just imagine the last 2 pictures all over!!  Everything else seems mild at the moment.

Any opinions, thoughts etc are welcome.  Ive just had a colonoscopy (as Dr wants to do the cheapest procedure first) and it was clear.  I have a dermatology app in 3 weeks and am seeing stomach people for first time in October.



  

Yes, exactly. When I went in for my colonoscopy (which found nothing but my healthy colon ), they asked if I wanted an endoscopy also while they were at it, I said SURE! Why not? So glad I did or they wouldn't have found it.

Yes - I'll be asking for an endoscopy when I go in...