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nikkigal

Member Since 22 Jul 2011
Offline Last Active Jul 31 2011 01:58 AM
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Posts I've Made

In Topic: Frustrated And Don't Know What To Do

25 July 2011 - 04:38 PM

It was mentioned but KEEP EATING GLUTEN during testing!
The problem is the symptoms for Celiac and gluten sensitivity are associated with other disorders. Gluten can also be a "trigger" for other disorders or just known to excerbate other illnesses. It would be best to get a proper diagnoses. If you end up being diagnosed with another illness, you can use a gluten free diet to help manage other disorders/diseases. If the diagnoses is Celiac/DH/gluten sensitivity a gluten free diet is your primary treatment, but you may need to supplement vitamins and minerals.
It might be helpful to keep a food journal (even while eating gluten) to pinpoint other food sensitvities.



keeping a journal is a really good idea. I have an appointment at the Celiac center at Columbia, I discussed the options with my parents and they want to make sure it is Celiacs.

In Topic: Frustrated And Don't Know What To Do

23 July 2011 - 07:46 AM

Oh wow! Another walking poster child for Celiac/Gluten Intolerance.
And Oh my God...Another ignorant GI who doesn't know endoscopy from colonoscopy.
Try to get the endoscopy. If you can't or if it comes up negative, try the gluten free diet stricly for several months. Gluten Intolerance is every bit as miserable to live with as Celiac...tests or no tests.



is it really worth getting all these tests?

In Topic: Frustrated And Don't Know What To Do

23 July 2011 - 07:37 AM

If you have insurance and you are from New York, then make appointment at Celiac center in Columbia University Hospital in New York. They found many things that I have, or had and they will also test everything what need to be tested. I saw doctor Tennyson, but any doctor would take you.



even if you don't have a formal diagnosis? i'm going to try the gluten free diet for about 2 weeks and see how i feel. my GI is being somewhat supportive in my experiment.