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nikkigal

Member Since 22 Jul 2011
Offline Last Active Jul 31 2011 01:58 AM
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Topics I've Started

Confusion Interpreting Blood Work

30 July 2011 - 12:55 PM

Hi,
I got blood tested for celiac disease and was given this sheet by my primary doctor (I am going to a specialist in mid-august)

IGA Total --> : ()
I have never seen that anywhere, does anyone nkow what it means.

Celaic disease evaulatar with IGA --> ()


Thanks!

Dermagraphism?

23 July 2011 - 09:35 AM

I'm always super itchy and then get these red puffy welts all over my body. Zyrtec helps a bit. Could this be DH? Is DH relieved by antihistamines? Has anyone else been diagnosed with dermagraphism?

Is A Formal Diagnosis Necessary?

23 July 2011 - 07:40 AM

Hey,
So I am pretty convinced I have celiac's:
A list of symptoms:
1. bloating, gas, abdominal cramping
2. iron deficiency anemia
3. D or loose stools with lots of undigested food and muscus
4. dermagraphism, hives, itchy skin
5. more fatigue than most people my age, at college I actually get a descent amount of sleep but am always exhausted
6. pica- i love flour and uncooked pasta
7. headaches - throbbing pain on one side of my head, about one every 2 weeks
8. There are a lot of stomach related issues in my family, but no one ever feels the need to get tested

colonoscopy negative. currently on levsin .125 mg twice a day for IBS-D. However, I feel really strongly celiac's might be the answer.

Anyways, Is it necessary to have a formal diagnosis? I don't know what I keep going through these procedures such as a colonoscopy for a label.

I am going to try the gluten free diet for two weeks and see how it goes.

The only benefit I can see to having a formal diagnosis is at school to get gluten free food with my meal plan which is required. I know they provide special food, but you need documentation. Is there any other benefits to having a formal diagnosis?

Thanks!

Frustrated And Don't Know What To Do

22 July 2011 - 06:33 PM

Hi all,
I feel like this might be repetitive, so sorry in advance.
I just turned 20 and have had stomach problems for at least 7 years. In the beginning, I had diarrhea and vomiting and constant stomach pain. I ended up getting exploratory surgery and had my appendix removed. Symptoms subsided for a bit, but I still had cramping after most meals and a very sensitive stomach. Within the last 2 years things have gotten much worse. I've had a variety of symptoms and when I came across celiac, I really thought it would explain everything.

A list of symptoms:
1. bloating, gas, abdominal cramping
2. iron deficiency anemia
3. D or loose stools with lots of undigested food and muscus
4. dermagraphism, hives, itchy skin
5. more fatigue than most people my age, at college I actually get a descent amount of sleep but am always exhausted
6. pica- i love flour and uncooked pasta
7. headaches - throbbing pain on one side of my head, about one every 2 weeks
8. There are a lot of stomach related issues in my family, but no one ever feels the need to get tested

I finally convinced my parents to take me to a GI doctor. I got the blood test for celiac, said it was negative. I got a colonoscopy a week ago, negative. Every since the colonoscopy my stomach has been in enormous pain. I got an x-ray today and they discovered there was a pocket of air that was never removed after the procedure. I have a feeling that my doctor tries to see as many patients as possible and I am not treated as an individual. It is much harder when my parents are starting to believe the doctor and the stress is causing my symptoms.

He says it is just IBS and I have a sensitive stomach and a proper diet will help my symptoms. I eat pretty healthy and exercise frequently. I've asked several times to be tested for celiac again or to request more specific testing (since I'm from NY it is illegal to order from entrolab). I don't get why they won't do more testing if I have insurance and I will pay for it. Does this sound like it could be celiac?

I've read a lot about people trying the gluten free diet and it helping. I'm a bit hesitant to start the gluten free diet if there is more testing I can get before I try the diet. I am going to call my primary doctor and see what she recommends.

Any advice is greatly appreciated! :D