Jump to content

Follow Us:   Twitter Facebook Celiac.com Forum RSS      

Get email alerts  Subscribe to FREE Celiac.com email alerts
arrowShare this page:
Subscribe Today!

Celiac.com Sponsor:
Celiac.com Sponsor:


Member Since 28 Jul 2011
Offline Last Active Aug 20 2014 10:48 AM

Topics I've Started


20 June 2013 - 08:27 AM

I have kind of a strange question.  A couple times that last week or two I have been sitting in my chair and would get a wave of chills or something over and over.  It kind of starts in my stomach and goes down my legs and I call it a wave because it's feels like it's almost rhythmic.  I just sit there and get a cold chill feeling and it goes down my legs and then again about 10 seconds later and then again 10 seconds later.  It doesn't last for a real long time but it has happened a few times recently.  Could this happen if I ate one of my allergy foods? (wheat, sesame)  Could it be an autoimmune response to something?  Very curious as to what it is.   

Article In Runners World

20 May 2013 - 08:23 AM

I had a couple thoughts about an article published in Runner's World.  They posted an article titled, "Are you really Gluten sensitive?"  Basically the article says that while Celiac Disease exists in 1% of the population most people who say they are gluten sensitive aren't.  The study took 37 people who said they were gluten sensitive and gave them a diet made in low-fermentable, poorly absorbed, short-chain carbohydrates, or FODMAPs.  These foods include apples, artichokes, mushrooms, chickpeas, and wheat.  They then took these same people and moved them to a diet containing gluten.  The participants intestinal inflammation and fatigue levels improved when reducing the FODMAP foods in 34 patients while 3 patients showed a worse  reaction to gluten.  Why this article was interesting to me was that I was never officially diagnosed as gluten intolerant.  But, I was diagnosed by an allergist as allergic to wheat and sesame (severaly allergic to sesame).  So, I wonder if avoiding certain foods like wheat, sesame, or certain carbohydrates would be more beneficial to me than the actual gluten itself.  Not hard to imagine confusing a wheat allergy with gluten intolerance.  My second point is that I know several people who say they are gluten intolerant and feel better gluten free but still eat gluten a few meals a week.  It drives me crazy and I finally told one of them either you are or you aren't, but if you don't do it 100% then you might as well not do it at all.  Your body can't heal if you don't stop 100%.  The reason it bothers me is people who do have a problem can't be taken seriously if others think they might and are willy nilly with their diet.  The comments on the article were concerning as well as most comments were along the lines of that's not surprising, or yep, just a fad.  These feelings come when people say they are intolerant and then a few times a week 'cheat'.  If they really felt like most of us on this board did, then they wouldn't be tempted to 'cheat'.  Interesting stuff.

Sesame Allergy

15 May 2013 - 05:23 AM

I posted about a week ago that I had an exercise induced anaphalaxis reaction while jogging and had to be rushed to the ER.  I had allergy testing done on Monday and while they found I was allergic to a lot of molds, trees, weeds, and grasses which I knew already and knew they gave me asthma and not an anaphalaxis reaction.  I also found out I am highly allergic to sesame and the sesame oil in my food that night caused the reaction I had.  So, I was out of town yesterday for a funeral and I haven't had any time to look into eating sesame free yet and my daughter gave me a handful of trail mix.  I took a handful and my tongue swelled up, my mouth itched, and I had hives on my arm.  Read the back and yep, sesame seeds.  So, it looks like I will be doing some research today to get a sesame free list.  I know that celiac will not show up on a skin test because it's an auto immune response, but wheat also showed up as an allergy.  The allergist wondered if my being allergic to pretty much all types of grasses made my body react to wheat the way it does.  I thought it was interesting as someone who isn't diagnosed celiac to look at wheat as just another type of grass my body is reacting to. 


07 May 2013 - 07:41 AM

I had a question for the board.  Has anyone ever had an anaphyaxis (spelling?) reaction to gluten?  I am not sure if gluten triggered it but Sunday night I had dinner (salmon, sweet potato casserole, green beans) and an hour later went for a jog.  I was running and my chin and lip started to feel numb and swollen.  So I cut my run short and headed home.  Started to feel itchy and so I went to wash my hands and looked in the mirror and WHOA!  My face was swollen like Will Smith in 'Hitch' when he eats peanuts.  Look down and my hands, forearms, and legs are swollen and red.  I paniced, my wife sees me and panics, we throw shoes on the kids and we are off to the ER.  I don't think it is exercise induced because I am a 20-25 mile a week runner and this is a first for me.  Maybe I breathed in something in the air?  I started to think about what I ate that day and wondered if the glaze on the salmon my wife made could of had gluten.  Needless to say I am on edge and will be seeing an alergist (again).  Has anyone had this happen to them?   

6 Year Old About To Be Tested

11 March 2013 - 11:06 AM

My six year old is going to be tested with a blood sample this week for Celiac.  I was wondering what your thoughts were because her symptoms don't seem celiac related but gluten free seemed to help them.  She had a rash all over her stomach, legs, bottom, back, and forearms.  It isn't the celiac rash and the doctor described it as discoid eczema.  She wets the bed almost every night at age six and has extreme anxiety.  We started a gluten free diet about 3 months ago because I was gluten free and figured what could it hurt?  Well, the rash started to clear up within a few weeks after she has had it for months.  She stopped wetting the bed after about a month gluten free and she used to have a lot of issues at school including shouting matches with other kids, issues with paying attention, to almost panic attacks to dramatic improvement in behavior that the teacher is really stunned by.  Well, we took her to an allergy specialist for the rash and she wants a blood test which means 4 to 6 weeks of gluten again.  It has been a month now and the bed wetting is back, the rash is back, and the anxiety is starting to come back.  We decided we don't really care what the results say, she is back gluten free after this.  My question is, are these symptoms normal for kids?  Bed wetting, eczema, anxiety, attention issues?  She really doesn't have any GI issues at all. 

Celiac.com Sponsors: