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sariesue

Member Since 02 Aug 2011
Offline Last Active Jun 01 2012 12:28 PM
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Posts I've Made

In Topic: Gluten-Free Food Taken Away At Sea World

16 May 2012 - 07:04 PM

The guard is technically correct to take away your sandwich. Sandwiches are specifically mentioned in the list of food and beverages that are NOT allowed in Sea World. I don't fully understand why you thought that your sandwich would be allowed even if it is gluten free because it is still a sandwich which is against their rules. Unless you didn't research sea worlds outside food policy prior to going to sea world. It would have been easier/smarter to bring foods that you find filling that aren't expressly forbidden in the outside food rules. There is no medical need on why you had to bring a sandwich instead of kind bars, lara bars, nuts, whole fruit, beef jerky, etc. The policy also states that in order to bring medical need food into the park you need MANAGER approval, which you didn't have so they can still refuse to allow you to bring in the sandwich because you didn't have management approval. The outside food and beverage policy is easy to find in the FAQs section of the sea world website. Since their policy is very clear and available online it seems that you went hungry because you didn't do the appropriate research into bringing outside food into sea world. While venues do have to make accommodations for us we do need to do the research into the venue's policies and what needs to be done to GET the accommodation. In this instance you need manager approval other places may have a more lenient policy and you may only need to tell the guard that it's a medical need. This is why it's important to know the policy of the venue you are going to and make and needed phone calls/emails to assure that you will be able to bring in the food.

In Topic: It's Unfair

12 May 2012 - 05:54 AM

Honestly, if celiac and tourettes are the worst genetic disorders that you could pass to your future children then you should consider yourself lucky. Neither is a certain death sentence unlike cri du chat or tay-sachs both genetically linked disorders that generally result in death in infancy. Celiac and tourettes can be managed and since you know that there is a possibility that your future children may develop celiac or tourettes you can be vigilant in watching for symptoms.

In Topic: Beware B Vitamin Toxicity!

21 April 2012 - 05:52 AM

Personally, I really HATE reading posts like this because they could actually harm someone if they actually have vitamin deficiencies and read the original post and just stop taking their supplements. Since you are not a medical professional, it may have been better to add that supplementing vitamins should be done with your doctor's knowledge and blood tests to monitor vitamin levels rather than to suggest that someone discontinue a supplement they are taking. Especially if they are taking it because they were instructed to by a doctor for an actual deficiency. Because those mega doses of b12 that you are so hard on are the only thing thing that is keeping me from becoming anemic and stops the neuropathy due to the deficiency.

In Topic: Regarding Groceries And $$....

21 April 2012 - 05:41 AM

Well, if you are looking to cut down food expenses stop buying salmon regularly. At least where I live salmon is almost 8$ a pound. Usually, there is some fish on sale so you could buy the less expensive fish and save money there. The same goes with the other meats and veggies that you buy go through the your grocery stores and buy what's on sale. If you varied your meals more you may find that you also save money. For example, if peppers and chicken breasts are on sale you could make a stir fry by adding some rice and some gluten-free teriaki or other sauce or seasonings of your choice. You can make a crock pot stew and extend the servings of that by serving it over rice. Buying in bulk then seperating out into usable portions can also reduce food costs. For example, if you buy chicken breasts at costco you can seperate them into meal size portions and freeze what you don't want to eat then.

You could extend the life of your children's snack foods by making them more filling. An apple isn't nearly as filling as an apple with 2T peanut butter for dipping. Also, you could figure out if they are eating because they are hungry or because they are bored. You may be able to change their snacking habits so they aren't hungry, but aren't wasting food by mindlessly eating it. For example, I LOVE raspberries, I got them out as a snack the other day and ended up eating the whole container sitting watching tv. I didn't need to eat them all and if I was really that hungry I could have made a better food choice. Your kids may be doing similar things especially if they are snacking on foods that aren't very filling like berries and grapes and taking the whole container to eat out of.

Not to sound harsh but, buying bottled water is about the worst solution out there. Bottled water is more expensive than other options and is bad for the environment(yes even if your recycle), isn't a better than filtering water at home since that's all bottled water is. If you do not like your well water what have you done to try to fix that problem? My house has a well when we first moved in the water filter needed to be changed so the water tasted bad and changing the filter made a huge difference and it's really easy. If that doesn't make a difference buy a brita or pur filter device and use that to filter your water. If filtering a second time doesn't improve your water then have it tested, your well may be contaminated in some way.

In Topic: Still So Fatigued...

15 April 2012 - 05:37 PM

What's the definition of normal for B12 and iron? I have seen a lot of people test 'normal' or 'within range' for a lot of things, but for that particular person, it's not enough. I need more iron than than 'normal'. Also, you mentioned problems with supplementation. Have you had any success with sublinguals?


I don't know but, I know for b12 the lower end of normal can be quite different depending on what country you live in and possibly the lab. When I was first told that my b12 was deficient it was 205 but the low end of the range was 200. So on paper I was not clinically deficiant but since I had symptoms and my b12 was so low it was treated for as a deficiency. However, I was told elsewhere 500 is the low end of the normal range. Some doctors do not worry about bloodwork results if the lab doesn't flag a result as abnormal. So you could be a few points above the normal range so your dr says it's "normal" but it might be too low for you personally.

On a side note, b12 deficiency can cause anemia.