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sariesue

Member Since 02 Aug 2011
Offline Last Active Jun 01 2012 12:28 PM
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#795015 It's Unfair

Posted by sariesue on 12 May 2012 - 05:54 AM

Honestly, if celiac and tourettes are the worst genetic disorders that you could pass to your future children then you should consider yourself lucky. Neither is a certain death sentence unlike cri du chat or tay-sachs both genetically linked disorders that generally result in death in infancy. Celiac and tourettes can be managed and since you know that there is a possibility that your future children may develop celiac or tourettes you can be vigilant in watching for symptoms.
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#789565 Beware B Vitamin Toxicity!

Posted by sariesue on 21 April 2012 - 05:52 AM

Personally, I really HATE reading posts like this because they could actually harm someone if they actually have vitamin deficiencies and read the original post and just stop taking their supplements. Since you are not a medical professional, it may have been better to add that supplementing vitamins should be done with your doctor's knowledge and blood tests to monitor vitamin levels rather than to suggest that someone discontinue a supplement they are taking. Especially if they are taking it because they were instructed to by a doctor for an actual deficiency. Because those mega doses of b12 that you are so hard on are the only thing thing that is keeping me from becoming anemic and stops the neuropathy due to the deficiency.
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#787507 Supervisor Problem

Posted by sariesue on 13 April 2012 - 08:07 PM

If he is insisting that you not bring your own food then I wouldn't bring food because to do so appears would really hurt your supervisor's feelings. And I see his point, he wants to treat you and the rest of the interns to a dinner like it's a reward for doing well during your internship. To bring food would be kind of insulting like going to an awards banquet and supplying your own trophy. Visit the restaurant and see what would be safe to eat and make the rest of your plans from there. Some foods are obviously going to be safer than others. I've always found that a garden salad with out croutons with oil and vinager in shakers is a safe option. But, talk to the restaurant and see what items contain gluten and what needs to be done to make menu items gluten free. However, if you still feel unsafe eating there then I would plan on eating your dinner either before you leave or after you get home. At the dinner you could just have a drink. Regardless of whether or not you decide to eat at the dinner I would definitely NOT suggest you bring your own food because your supervisor said not to and that if you did go against his request it could be seen that you can't or won't follow requests from your supervisor. Especially, because he tried to be considerate to your celiac by allowing you to be a part of picking the restaurant but you declined to speak up for yourself and suggest a place you find safe. So if you find that you don't feel safe eating ANYTHING there then you are really forced to suck it up and eat outside of the event. You have to realize that he will be a reference for you for a while and you want to leave on the best note possible and purposefully making him feel uncomfortable isn't the best way of doing so even if it is difficult for you.

I realize that my opinion probably won't be popular because people here seem to think bringing food and hurting other's feelings is better because it's "safer" for the person with celiac. But, there are times where other's feelings do have to come first even if it's difficult for you.
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#782241 Going Downhill Fast

Posted by sariesue on 21 March 2012 - 06:52 PM

Already had x-rays. That was one of the ways they determined it wasn't a tooth. The thing that surprised me though was that my "new" doctor was able to test all of my saliva ducts simply by pressing the right places with a tongue depressor. Holy cow did they ever squirt! Why was he the only one out of all the doctors and dentists I've seen who knew how to do that? Or more likely, as an uninsured patient, the other doctors just wanted to get me out of there seeing they couldn't make a bundle off me. (Not fond of doctors. Can you tell? :lol: )


Were the xrays of your teeth or of your whole head. Not everything can be seen with the bite wing xrays that dentists use.
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#770563 Oh The Joys Of Contamination

Posted by sariesue on 03 February 2012 - 07:37 AM

Meanwhile it might be wise to invest in a small dorm refrigerator and a hot plate if you get my gist, and maybe a slow cooker and toaster oven. If you do end up buying your own food and making your own meals you should get money taken off since you'd then not be using the cafeteria--assuming you pay for the cafeteria ahead of time in your general fees.

Bea


I'm not sure the last time you lived on a college campus, but most dorms FORBID hot plates, toaster ovens, crock pots, etc in normal dorms without a full kitchen. This includes george foreman grills. At my college we couldn't even have a normal coffee pot because of the heating unit on the bottom. At my school if you needed to make your own food, you had to get special housing and go through the housing office. At my school if we had multiple room inspections where they looked for items like that. IF found they confiscated them the first time you had to wait like two weeks and then find a way to get it off campus either drive home or send it home. The second time you didn't get it back until the end of the term AND you got a strike against your housing standing. We had a 3 strike policy 3 strikes and you could no longer live on campus and having one or two strikes against you meant a lowered housing status when you picked rooms for next semester. It's the difference of being 10th in line to pick a room and being 100th. Which means a really bad room assignment next year. Your suggestions could get the kid in trouble not only this semester but effect his future living arrangements at that college.

Present day, if you cannot eat on campus in the cafeteria due to dietary restrictions you must go through the schools housing office and file for medical accommodations. At my school it was a packet of information about your diagnosis and what accommodations are needed. Parts of this form must be completed by the individual's doctor. And my school heavily relied on the doctor's recommendations and a specific diagnosis to determine if special housing was needed. Even then it was almost impossible to get out of the meal plan completely. You generally still had to stay on the lowest meal plan. My room mate senior year had a very limited diet for medical reasons and fought all year to get off the meal plan and was still unable to even though her doctors fully supported her not ever eating anything from the school. This may be true at most schools that use dining dollars where you can buy items peice meal in a to go cafe or market. It's pretty hard to say that you can't buy any bottled drinks or whole fruit due to celiac.


Sorry to be a little off topic, but I have seen that advice before for college students from older adults who haven't been in a college dorm in years and have no clue how many new rules and restrictions they have for the safety of the students. So, it really bothers me because it's no longer practical advice. Especially if the person is to depend on that for the rest of the year and years to come.
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#759373 Need Help Settling A Gluten Disagreement

Posted by sariesue on 23 December 2011 - 12:28 PM

Since you don't mention any food sensitivities that your new in-laws might have, I wouldn't worry about telling them that your rolls are gluten free. However, just in case, I would do as the poster above suggested and have your hubbie bring some "regular" rolls if people notice that yours are "different." If even one person inquires as to why the consistency is different, you'll need to spill the beans...and then people might ignore the rolls for the rest of the evening. If asked, you might even say, "Oh, some are gluten free and others aren't," and then people won't be able to choose only the gluteny ones.


If they ask I will tell them the truth, I just don't see the need to announce it.
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#759104 My Aide Glutened 1 Of My Students!

Posted by sariesue on 22 December 2011 - 01:04 PM

I'm not sure what your position in the program is, but you could at least suggest that snacks brought from home should be taken out prior to beginning snack time. That might help some of the confusion and accidents. Because if the child already has their snack in front of them, they would not be given the "normal" snack. Rather than passing out the provided snack skipping the children who usually bring food then giving them their snack. I know sometimes or most of the time snack time can be chaotic and sometimes people aren't paying excellent attention to who exactly they are giving the snack to instead making sure that everybody has a snack. Or, if you have prep time prior to when the children arrive, you could go over the allergens in today's snack and which if any students cannot have it. That way everyone has been made aware to make sure that the children get the appropriate snack. Another thing to consider is food stealing with students with special needs. I have worked with some individuals that had behaviors that were related to food. One stole food from others which was even more dangerous because they had severe food allergies. We had to really monitor that individual during snack time. Just some thoughts...
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#758613 Mother Drives Me Nuts Cooking Gluten Laden Foods

Posted by sariesue on 21 December 2011 - 08:43 AM

With certainty, a point could be made without criticism. I don't find it useful in the least. B)


One of the definitions of criticism is to pass a judgement. Just like all you have since you insist on attacking me because my judgement was different from your own. Another definition of criticism is critical commentary. Here critical commentary is needed as my feeling that she is overreacting to the situation and is in the minority. Because of my feeling that the OP is overreacting to the situation because she chose to make the unsubstantiated assumption that there was a gluten free stollen and eat it. Since my opinion is against most others I felt it needed to rationalize my opinion. Everyone else had to make a pass a judgement on the situation as well in order to determine if the OP was overreacting or justified with their feelings. Passing a judgement is also one of the definitions of criticism. Which if I remember right was part of the OP's post.

That being said how can a relevant point be made from a post if you have not judged it in some way, shape or, form? The judging isn't always of a feeling or opinion sometimes it's of a fact or a set of facts.
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#758380 Mother Drives Me Nuts Cooking Gluten Laden Foods

Posted by sariesue on 20 December 2011 - 02:39 PM

Who among us hasn't made a mistake as Newbies?

She said she believed her father said one was gluten free.

And quite frankly, I think you all may have missed this one important and poignant sentence in the OP's post:

"I am very hurt and frustrated about this. I'm about to have surgery that will prevent me from being able to eat much for hte rest of my life and this was my last year of having the stollen which is a family tradition. I can't believe my mother's thoughtless behavior made me get sick and that she treated my problem so lightly."

A little kindness is in order here, not a scolding, and certainly not condescension and criticism. Give her a break for pete's sake.
IMHO


No, I did see that part of the OP's post and mentioned that if she really needed to have one last stollen that she could make a gluten free one herself. Or to even start a non food related tradition. Traditions do sometimes need changing and adjusting.

I believe that sometimes criticism is needed to show the OP how to prevent a reoccurance. If all you ever get is that sucks your mom was soo thoughtless... How is the OP supposed to see past her feelings in the situation to find what went wrong. When we have strong feelings about a situation sometimes they color our impressions of the event and prevent us from being able to gain any useful knowledge from the situation. And in this case what went wrong were her assumptions and the actions she took based on them. Living gluten free is a learning process and with all learning processes comes criticism and then better solutions to the problem. Not a single person who said anything negative about what the OP did, did so without an alternative course of action. That will be useful in the future.
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#758004 Mother Drives Me Nuts Cooking Gluten Laden Foods

Posted by sariesue on 19 December 2011 - 08:40 AM

I think you are overreacting to some of this. While it was thoughtless for your mother to send the stollens because they have gluten, it is a tradition and it appears that the rest of your family still eats gluten. So to not send them would deprive them of the tradition as well. That is not thoughtless. Thoughtless would have been to just skip your family because you can't eat it so your children miss out.

It is your fault you got sick. You are the one who made the assumption that one of the loves was gluten free. Unless it was labeled gluten free there really is no way to make that assumption since even wheat baked goods don't always end up looking the right way. And the fact that one didn't look perfect would cause me to send an extra in case the funny looking one didn't taste good. Since it was not labeled gluten free the next step would be to call your mother and confirm that one actually was gluten fee and what it looked like. But you didn't do that. Instead you guessed and guessed and got sick. You need to take responsibility for your intolerance and be unassuming. gluten is not something that you would be able to see in a dish. So this means that you need to check and recheck the ingredients in your food. If you don't know the ingredients it is your responsibility to find out. I say that because that was the hardest part of going completely gluten free for me, I was great about checking packaged things with labels that I was buying but, I had difficulties checking on food that was given to me that might be gluten free. But until I learned to do that I was getting glutened that way.

To me it seems that you are displacing the anger of glutening yourself on your mother so it's not your fault you made yourself sick. It can be very hard to admit when our mistakes make us sick. It is reasonable to be upset that you couldn't eat the stollen that was sent to you. But, not to blame your mother because you got sick. She never said that one of the stollens she sent were gluten free. If with the stollens was a note that she had made a gluten free loaf then she is being purposefully mean.

I'm not sure how your attempts at gluten free baking have gone but it is extremely difficult to reproduce gluten items. You can't just go buy a gluten free flour and replace it in a recipe. Your mother may have very well intended on making a gluten free stollen and been unable to do so. Plus with the risk of CC it would be very risky to eat a gluten free stollen she made while making other gluten items.

If your heart is really set on having stollen then you should find a gluten free stollen recipe and make one for yourself. Or start a new tradition that doesn't involve food.
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#753604 Restaurant Waitress

Posted by sariesue on 04 December 2011 - 07:21 AM

When she said she didn't know what was in the pork roast. Did you ask her to check with the kitchen about the roast or did you just move on? Because if you asked a question got a insufficient answer and left it like that then it's partially your fault that you were going to miss out on the roast because you could have asked her to check with the chef. If you asked her to check with the kitchen and she refused, then she is lazy and not doing her job. Sometimes people need a little more direction that we think they should. But, if you aren't satisfied with an answer it's up to you to ask the right questions until you are satisfied with the answer. Also, depending on the venues alerting the event organizer in advance about your dietary restrictions can be helpful. They may have a special protocol for events that have guests with known dietary restrictions.


When I worked for a company that was event catering, the menu changed to some extent every time. We were told the names of the foods we were serving and any pertinent details like tonight's gyozas are pork not veggie. But, we weren't told what the veggies were. If we had a known allergy at the event we were told the items that contained that item. But, if no allergies were disclosed then we weren't given that information. If we had a known allergy a special meal was often sent. So as servers we didn't have to be concerned with the possible allergens in main meal because a special one was there if the allergen was in the main course. This company asked during menu planning about any allergies/food restrictions during menu planning. If it wasn't then we knew that everything would be safe. Also, waitstaff in general has a very high turnover rate, which makes things harder. A veteran server would know to go ask the kitchen if they didn't know an answer, but a new staff member may not know to offer to do that.
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#750504 Forum Pet Peeves

Posted by sariesue on 24 November 2011 - 06:20 PM

so perhaps this topic is not required ? for newbies ? please?


This topic is not required for anyone and is meant to be fun. I find it interesting to see what annoys people and to see if others find similar things annoying. I am actually newer to the forum than you, but I have belonged to other online forums in the past so some of my peeves were started in another forum. Like the walls of text I mentioned. Regardless, if this topic bothers you feel free to ignore it.
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#742697 Ugh! People Just. Don't. Get. It.

Posted by sariesue on 28 October 2011 - 07:02 PM

IrishHeart, it is heartbreaking knowing the pain and suffering you've endured for years before coming to this lifesaving diagnosis. And I feel so horrible being so bitter about it when so many here are grateful for it.

I'll post what I said on FB after getting feedback from my friends regarding my original post, which merely stated how giddy I am at the thought of a gluten gluttony binge.

----

And that's part of my struggle. The rational side thinks it would be ridiculous to do anything to risk my health over a dinner roll, especially considering how much I'm fighting to stay healthy over a whole OTHER health issue. Obviously, I want to live, right? I'm doing pretty much everything I can to get myself in good shape, yet am willing to throw it all away for a dinner roll? It makes no sense.

Emotionally, I'm not handling this well at all. I really have had thoughts of cutting my arms with a sharp pointy object to bring about a physical pain strong enough to drown out the emotional pain of being in the same room as a dinner roll and having to face watching others eat it. Since that wasn't an option at the time, I also considered taking a number of pain killers to make me so high that I wouldn't even care if I was surrounded by a sea of dinner rolls. Somehow I managed through the meal, but not without tears and lots of violent uncontrollable thoughts racing through my head. I'm still feeling traumatized by the whole event. Do I want to go on living like that? OVER A DINNER ROLL??? WTF? Why it has so much power over me is beyond me. I don't WANT to be this way. I don't WANT to WANT something so much that I'd risk my life to have it. But, I do. If I ended up in the ER, I think I would actually say it was worth it. THAT is NOT an exaggeration. And I hate saying that. I hate how weak I am.

The rational side is fighting the emotional one, and it's not currently winning. Perhaps another type of drug is the answer. Perhaps I should just take some anti-depressants to numb myself. I don't know.

I do have an appt with the doc to discuss all of this. And, basically, to tell him where he can stick it. I have no plans for an endoscopy because doc does NOT want to do it to monitor. He says the risks (general anesthesia) don't outweigh the benefits. I plan to make him see otherwise. If I can just have PROOF that this diet is doing SOMETHING to help (i.e. better looking villi)... Maybe I just need something to prove it's been worth my while. I don't know.

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So, that's my struggle. If I *could* just be happy with what I CAN eat, I wouldn't be in this situation. It's easy to say to just get on with life, but, in reality, it's not that simple. It's not like I WANT to live like this. I don't. I WANT to enjoy what I have. I WANT to be ok with this. I'd LOVE for ONE DAY to go by without thinking about eating a dinner roll, or any number of other things I can no longer have. Hell, it's gotten so bad that I am now fantasizing about a McDonald's cheeseburger. I have an obsessive side. A very strong obsessive side that I have little control over. And, things just are not getting better; they are getting worse.

If I'm visualizing cutting my arms or fantasizing about taking oxycodone just to numb my emotional pain, then there is something very wrong, and it needs to be addressed. I have a hard time going on anti depressants when the ONLY thing causing my depression is the limitations that have been placed on me. It's NOT a chemical imbalance - it's grief. And it's coming out in unhealthy ways. No amount of denial is helping me cope. I try to ignore it, but it seeps out of my overall outlook like a toxic ooze.

What it boils down to is this: which is worth the sacrifice - my physical health or my mental health?

I came a long way to be able to live my life with an incurable liver disease. I went through a 6 month depression before coming out of it deciding to die living my life instead of living my life waiting to die. But, this. This is more than I can handle on top of that other crap. Every day - multiple times a day - I am reminded of my precarious health and my limitations BECAUSE OF THIS NEW LIFESTYLE. I had managed to do a great job living in denial because I have no outward physical manifestations from my liver disease. But, now, denial isn't an option when every time I put something in my mouth, I have to think about what's in it, what it's touched, or the pathetic excuse of a replacement that it is.

I'm sorry I'm such a downer. I really try to stay away from here because I know I'm toxic right now and of no use to anyone. I have nothing positive to say about it.

I need a personality-altering drug, I guess...


This post screams I need help. Please go find a GOOD therapist, as soon as possible. Take this post if you need a starting point as it can be hard to jump into your problems with a complete stranger. Therapy has been proven to work very well with situational depression. If the first therapist you find isn't a good fit, find another. Therapists are worse than medical drs when it comes to finding a good one because people need different things from their therapist. So don't give up if the first one you find isn't perfect. But, please get help before you injure yourself. IF you do end up in the ER from self injury it will NOT be a pleasant experience, you will wait around forever, be treated poorly, probably put on a psych hold, medications are almost a definite as well and not just a simple anti depressant harder stuff like Xanax or Hadol since they both calm people down very quickly.
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#742213 Well My Son Got A Good Report Card...sort Of...

Posted by sariesue on 27 October 2011 - 07:43 AM

Have you considered that timeouts don't work because he doesn't understand the connection of the time out and what he did wrong. Let's look at the situation that occured with the computer.

today he came home and wanted to play a game on the computer..it was already on here but he didn't get it???Were you at the computer when he went over? In kindergarten they have a very literal sense of things being used. Having something on the screen would not get the same reaction of you sitting in front of the computer. As an adult we would think someone is using the computer because a program was running. But from a kindergarten point of veiw if no one is sitting there it is available for use so he purposely tried to go downstairs(I had told him no) he screamed, This would be a good time to try toredirect his behavior. He was just told he can't do his first two choices of activities using the computer or going downstairs. This is a great time to suggest an activity that he can do to prevent his behavior from escalating.got time out, it's a constant screaming and getting off of the chair.What was the timeout for? Screaming? trying to use the computer? trying to go down stairs? Because depending on what he was being punished for a more useful punishment could have been given. Time outs really don't work unless the time out is taking away from a WANTED activity. A time out when there is no current activity doesn't do anything. I can't put him in time out in his room because he will pee his pants. I seriously don't know what to do when he acts like this because nothing has worked. he also purposely threw stuff on the floor, wouldn't pick up, so I took it all away. Instead of taking away the objects could you have just waited with him until he was ready to pick up his things? That's a more useful punishment since he threw the objects he should be the one picking them up. By you doing it he won.ugh. it's been a rough day. and then at the end of the school day, he refused to pack his backpack and yanked his lunch box off the hook and broke it!! aaaaaaaaaaaaaaaaaaaaaaaahhhh....oh yeah, all his tests for celiac are negative so dh refuses to try the gluten-free diet for him. complains it costs way too much. :*( sorry just had to vent.

Maybe my point of view is skewed because as an educator I have been taught and seen how timeouts are an ineffective and outdated punishment for that age group. I learned that you try to prevent the need for time outs by using other tools first like redirecting behavior, waiting out a willful behavior, ignoring behavior all together, etc. Also learning to pick and choose your battles might help your frustration level. Is you being right and what you want to do worth the headache of what you will have to go through in order to do it? Like in teaching sometimes you don't correct a behavior that might bother you and be against the rules because it's not interrupting the lesson and allowing it won't cause a bigger problem. It's basically an unsaid compromise, and you are the only one who knows. Yes, sometimes it does mean that you don't get what you want, but being in charge doesn't always have it's perks. Have you tried working with a behavior therapist? They might be able to give you an insight into his behavior and give you tools to use. Communication with his teachers might help as well, what works at school? Does he have a behavior plan? Can you create one that is used both at home and at school? Consistency is key with kids with behavior problems.
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#738160 If I Cheat On My Gluten Free Diet, Could I Be More Likely To Get Type 1 Diabe...

Posted by sariesue on 12 October 2011 - 11:04 AM

Aren't some hot water bottles filled with wheat?

I just can't not eat the cake. I want to have what everyone else is having :angry:

It's too late by now anyway. Usually my reactions are over within 12 hours. I don't think it would be more than 24-48 hours and we'll be flying over to Spain for the honeymoon 2 days later. Maybe I'll try and strengthen my immune system and be well rested before the day so I withstand the *attack* better. :huh:


None that I am aware of. Hot water bottles are rubber, you fill them with water. I think there might be reusable heat packs that have grain. But, they make the fillings out of other materials as well, I had one with cherry pits. You can make one and fill it with rice and dried lavender, but you'd need to be able to sew.
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