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Kurly

Member Since 21 Aug 2011
Offline Last Active Sep 07 2011 06:44 PM
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Posts I've Made

In Topic: Bacterial Overgrowth In Small Intestine

07 September 2011 - 06:44 PM

I've been struggling with stomach cramps, severe D and just plain misery fatigue and haziness since Feb (Sept now) so far most tests show nothing... Best guess is bacteria over growth.... My celiac markers in blood were slightly elevated so went gluten free... Desperate for any relief... That helped for about a week, then all symptoms were back... I've done at least 5 courses of different antibiotics including one of which was IV when in the hospital from symptoms with white blood cells through roof... Kept in hospital 3 days until fever broke and WBC count came down... Anyone have success treating this??? Any hope in eating ever bc right now as some others said even water gives me pain that doubles me over!

In Topic: How Did Your Dh Start?

26 August 2011 - 05:28 PM

When my rash started it popped out over night and was the size of a large dinner plate if not bigger and was a full out monster with blisters and all. My hypothesis is that the CT scan I had the night before ending up in the hospital must of had gluten in it and was the cause of my problems. That was the first time I had the rash. It was the second time in a week I had to drink the contrast... ironically enough they were trying to figure out what was going on with my stomach/intenstines. At that point the dr called it a fungal rash, which reading the previous posts is a common theme... like eatmeat4good and Ghost... a few others as well... ring worm is fungal as well. Then they said it was hives.. even though I was already on zyrtec at the time.. but I am sure it was HD in hind sight. Hindsight is 20/20.

In Topic: Celiac Dh Rash

26 August 2011 - 05:16 PM

Well my rash was raised and had almost boils like. Was very hot to the touch hotter than the other areas that were not affected. It was the itchiest thing in the world and did not respond to anything I put on it.. the best thing was just a cool wet cloth that I put ice cubes in it. I had it on the small of my back that went all the way down my buttocks. One doctor who looked at it thought it was fungal, another thought it was massive hives... only post gluten sensitivity/possible celiac have we determined that it was DH rash. Mine also finally resolved after about 2 weeks and faded, only to reappear in the same exact spot!

In Topic: Anyone Recover From Chronic Insomnia After Going gluten-free?

26 August 2011 - 04:59 PM

I have been so hyper at night and unable to sleep (been very productive at 2 or 3 in the morning) but on the other hand, I really should be sleeping and it has been going on for a long time. I didn't associate it with my gluten intollerance until I saw all these postings and read everybody else's expierences! I was diagnosed with Grave's disease almost 15 years ago (autoimmune hyperthyroid), then had the thyroid removed a few years later, and now on synthroid. I did check that it was gluten free when I discovered my intollerance. I already do B12 injections, I'll try to up the dose and see if that helps with the insomnia. Thanks for all the advice and knowing I'm not alone at 3am!

In Topic: Wearing Medical Alert Bracelet?

26 August 2011 - 04:43 PM

SKBird I would highly reccomend you get a medID bracelet, I am currently going to school for EKG and phlebotomy and one of the antiseptics frequently used it betadine. If for any reason you are not conscience and they need to start an IV you don't want them to use the betadine, plus all the other antibiotics that you are also allergic to. Although your reactions until recently have been just hives, if you are having a crisis, that reaction could be hightened and you don't want any added complications. The celiac part of the medID is the least of your concern, but once getting one, might as well add it.

Kaiti, I had a very interesting allergy testing experiences. I had done many years ago the skin prick test and had been told that I was allergic to some airborn stuff (mold, dust, cockroaches, ragweed...), recently when I got sick I saw a new allergist who did a blood test. The weirdest thing... I came back as being allergic to NOTHING! It turns out I have very reactive skin but not actually allergic to anything. I have reactive airways and apparently gluten sensitivity (extremely sensitive!) My skin reacts to almost anything and everything! The new allergist said that for people like me with reactive skin the prick test gives false negatives. So happy to hear you are having the blood tests.