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Member Since 22 Aug 2011
Offline Last Active May 22 2013 02:04 AM

Posts I've Made

In Topic: Lab Results. Platelets Dropped Again And Not Sure About Thyroid Levels

29 November 2012 - 02:05 PM

I make sure not to take my thyroid med or any supplement before labs for that reason. I'm taking Source Naturals Advanced B-12 Complex. It's 400mcg of Folate as Folic Acid and 5mg of Methylcobalamin and Adenosylcobalamin. I've been taking 2 each morning sublingually. I pop them under my tongue and go back to sleep lol I was going to ask him to increase my armour. I'll wait until the t3 results come in. Maybe if they're still on the low side he won't be as nervous to increase it. He's a nurse practitioner. He's told me to go to an endo but I don't like endo's :/ thank you for responding!

In Topic: Adrenal Fatigue & Pancreas Mri

17 October 2012 - 11:26 PM

Hi SleepyBunny!

Sorry for the delay but life has been busy and thank you for reminding me!

The results of my adrenal tests were that I am low, low, low in the morning but my noon and afternoon levels are optimal. I do a good job of making up from the low cortisol in the morning. The late night numbers are slightly elevated but not that much at all. It's the morning levels that are the problem, which matches my symptoms perfectly. How to correct that? Well...I already knew what I had to do but don't like the answer.

Cortisol is produced at night from restful sleep. However, the catch is that it's the sleep that is done before midnight that is crucial to cortisol production, so even if you go to bed at midnight and sleep for 8 hours, that doesn't count. I think it has all to do with the circadian rhythm and the way we are supposed to operate. Years ago, people went to bed when it got dark and woke up with the morning light. I don't do that very well.
My opinion has always been that I will have plenty of time to sleep when I am dead. I hate wasting too much time in bed, except for when I am really tired and can go right to sleep. I am supposed to be pushing back my bedtime by an hour and the doc wants me to get 8 hours of sleep, starting at least an hour before midnight. I get about 6 1/2- 7 hours per night, otherwise. I am not doing very well with it because I am busy and I normally don't get home from work until 7:30 so cannot go to bed by 10:30! I am so not a morning person and not so sure I can change that without being annoyed about the whole thing. I am not an easy patient. This is one set of instructions that I find extremely difficult.

I also am low on DHEA so am supplementing with that and that will help with cortisol production also. I am going to try and get to bed earlier but it isn't going to happen every night. I do the best I can. Otherwise, I am OK. I feel a little better in the a.m. so maybe my minimal efforts are helping a bit.

How have you been?

I know what you mean about not wanting to go to bed early lol it's easier for me to stay up all night cos I know no matter how early I go to bed I'll wake up late either way so I just stay up so I can have a "daytime". I went on a trip a few weeks ago and the friend I stayed with had windows and skylights everywhere. I woke up at 9 lol something I may need to look into. Our house doesn't have many windows and I keep telling my husband we should add windows and skylights but he's not too excited about it. If it helps me wake up earlier I may have to surprise him :D What supplement are you taking for the dhea? Is that all the dr is having you do? I told my regular dr about the whole adrenal fatigue thing me he looked at my saliva tests from the chiro an said he wasn't sure how accurate they were. He drew blood to see where my cortisol was. Surprise surprise it was normal. He took it in the afternoon when it's normal. That's good to hear that you feel a little better in the morning :) Hopefully it'll get better with time :) I can't adopt those sleeping patterns quite yet. I don't get out of work till midnight :( and my schedule rotates every other weekend :(

I've been feeling a little worse lately. I've been sleeping quite a bit. :( I've been depressed about food. If I eat something good (gluten-free and df) but its processed or something like beans chips pasta or rice I feel like crap. I feel heavy and slow. I haven't been eating as often but when I do I've been stuffing myself and have gained a few pounds :( I really feel I have no control sometimes. My stomach rarely growls but my brain says eat sugar, salt, and carbs and once I get going its hard to stop :( I'm trying to eat the way I was before again. I haven't wanted to exercise.. I know ll of this is related. I just have no idea where to start or what to do. I kinda wish I would have gone to the hospital. When I eat the stuff that's not so good I feel better sugar wise even though its probably high when I eat like that. The dr's office actually called last week and said the dr ordered a sugar monitor for me to wear for a week. It's supposed to test my sugar every 5 minutes. I just thought it was odd that I told them about my sugar like a month and a half ago and they're just now calling about this. I'm scared to have a needle stuck in my tummy :(

I'm bald to hear you're doing well. :) Did the dr make any other suggestions? I need to get some determination like you! :) I got some cleaning done tonight so it's a start lol

In Topic: Adrenal Fatigue & Pancreas Mri

17 October 2012 - 12:22 AM

The choice in doctors is a difficult one. Mainstream physicians that you would see are endocrinologists but they tend to not treat a problem unless it gets really bad. I don't know if they believe the concept of adrenal exhaustion vs. out and out failure, like Addison's Disease. This is why so many people walk around feeling like crap. Their doctors tell them they are fine when they really aren't.

I use an alternative physician to manage my thyroid and hormone issues because she has been the only one to think outside the box and actually give me relief. She is an MD, make no mistake about that. I don't make the mistake of going to a chiropractor for adrenal issues....they are not qualified to diagnose or treat that. They are extremely useful for back problems but not adrenal problems. You have to find a physician who will make use of saliva testing. My experience has been the opposite of what mainstream docs will tell you. I had symptoms of menopause for YEARS, in-your-face symptoms, yet the blood work from my PCP "wasn't too bad." So, guess what? They looked at me like I was crazy. However, my saliva testing showed low progesterone and estrogen...which matched my symptoms. So, for me, blood testing isn't always indicative of true levels of hormone. You have to utilize both, but if you have symptoms of something which points in the direction you are suspicious of, don't discount saliva testing.

Maybe you could post which state you live in and someone can help recommend a good doctor who could help you. All of your symptoms are connected....I've heard all this many times before. I have spent a lot of time in the past and now, educating myself to make sure that the doctors wouldn't mess up. You have to be an informed patient, especially when you seek real answers to your problems. Try posting, if you feel comfortable about it, in the doctors section. Good doctors are heard through word of mouth so maybe you will have some luck finding a good one!

Never apologize for asking questions!

Hi :) just wondering if you got your results back and wanted to see how everything is going :)

In Topic: Is Alcohol Dangerous For Celiac

17 September 2012 - 11:28 PM

I'm so glad I found this post. Before going gluten-free I could drink quite a bit and be a little tipsy but fine and would remember pretty much everything. Even on one or two occassions when I got more than a little tipsy I still remembered just about everything. About a month ago I had quite a bit to drink for my husband's Bday and don't remember a whole chunk of the evening. It freaked me out. I don't like not knowing what I'm doing or what's going on. So I need to be careful. I was wondering if this was normal. Good to know!

In Topic: We Need To Start A Thread On Stupid Stuff Doctors Say!

17 September 2012 - 10:59 PM

I went to a dr that someone suggested because she seemed to know a lot about celiac. I had been on levo for a few months and still didn't feel better. Actually I started sleeping more. I asked her if she could test everything having to do with my thyroid. I also asked her if she'd be willing to prescribe me t3 if the tests showed that I needed it. She pretty much said yeah and basically said she's not going to risk her job and give me something just because I think I might need it. My TSH came back around 2. something. It had started to creep back up but since it was normal she left it. Saw her once <_<

Oh and when I mentioned my c that even draino couldn't get rid of her brilliant advice was to eat more vegetables and handed me a paper with paleo info. :angry:

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