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Member Since 30 Apr 2005
Offline Last Active Apr 15 2012 09:23 PM

Topics I've Started

Aloha! Honolulu Update :)

29 December 2007 - 11:12 AM

Hey Everybody! What's up?? Long time no see! ;)

In November I came to Hawaii (Waikiki) to present on Celiac Disease at the Pacific Coast College Health Association Conference in Honolulu. And trying to find info on where I could get gluten-free food was a *joke* - So, now that I'm back for a couple weeks (met a cute surfer boy last month! ;)) I thought I'd give you updates as I find places to eat!

Stores: "Down to Earth" is a health food store with lots of gluten-free and dairy free stuff - but, for all you carnivores out there (like me!) keep in mind that it's totally vegetarian so you aren't too likely to find any gluten-free sausages, shelton's products, or fun stuff like that. Everything here is madly overpriced so.. plan on that too if you are coming on vacation (and I thought things were expensive in Utah! Man!!)

Another store is "Vim & Vigor" in the Ala Moana shopping center. They have a lot of gluten-free stuff also (not as much as Down to Earth but the store is right there in the big shopping center, as opposed to in the middle of nowhere like Down to Earth). I was a bit disappointed that they didn't have something I wanted and then (amazingly!) found it a few stores down at "Foodland" (keep in mind that not all Foodland stores carry gluten-free products!). So... if you're in the Ala Moana shopping center - you will find food! Yay!! The place is huge though so here's a map so you don't wander around for hours without finding anything (like I did when I first went there!) http://www.alamoanac...com/mallmap.htm

The best store I've found is the Umeke market (http://www.umekemarket.com/) - (maybe it's because it's the cleanest and least frantic looking) Anyway, they have a great selection of gluten-free foods. But - again, out of the way.


Dukes: (right on Waikiki beach) had a divine baked fish dish. They don't have a gluten free menu but I asked a lot of questions and basically told them I would die if I came in contact with wheat and the servers where fantastic. I took a chance on the baked fish dish because it was cooked in a pan all by itself and wasn't too likely to come into contact with a contaminated grill. It was sooooooo good!

Yard House: I was shocked when I asked for a gluten-free menu and they actually had one. Be careful of the servers though and always cautious. They brought fries out on my supposed gluten-free plate even though I'd read on the gluten-free menu that the fries weren't gluten free. I'd ordered the spicy chicken "sandwich" (without bread!) and it was tasty - I didn't eat the fries and didn't get sick ;)

Roy's: I haven't actually eaten here yet but stopped in and talked to the servers who know all about gluten & food allergies. I've heard the place is great but.. again, everything is pricey!

There are also Outback Steakhouse & P.F. Chang's establishments here. So... that's always comforting, eh? (haha - sorry, the surfer boy's Canadian - I think it's rubbing off on me!)

OH! And don't forget sushi! Bring your own soy sauce - you wouldn't want to miss the fresh sushi here! Yum! ^_^

I'll keep you updated as I find more food! Love to you all!

- Michelle :wub:

Bad Endoscopy Results :(

19 January 2007 - 06:05 PM

Hey - I have some questions!

This morning I had an endoscopy and these are the findings:

The examined esophagus was normal.
The Z-line was irregular and was found thirty-six cm from the incisors.
The entire examined stomach was normal.
Atrophic mucosa was found in the 2nd part of the duodenum. Biopsies were taken with a cold forceps for histology.
The duodenal bulb was normal.

So... I don't know what to think. I have been gluten free since May 11, 2005. And I am *extremely* careful about it. I actually now give presentations on the gluten-free diet. Nothing that I eat, and no medication that I take, is anything where I haven't contacted the manufacturer. I check ingredients in a serious OCD sort of way. I don't eat where I am not sure that it is safe. :(

What is going on with my villi? :(

Since the beginning of November, I have had "esophageal spasms" - and the main point of the endoscopy was to try to determine what is causing that. The only thing that stops the intense pain of the spasms is a calcium channel blocker called "Norvasc" - and when I miss *one* pill, the pain is unbelievable within 24 hours. But - after the endoscopy, I received a printout that said, "No cause found for symptoms. Await pathology results."

Anyone know what the Z-line is, or (more importantly) what the significance of an irregular Z-line found thirty-six cm from the incisors is?

I am terribly, terribly afraid that my osteoporosis is never going to improve if my villi aren't healthy! :(

I came home from the appointment and just cried. I am so careful, I am cautious of every single thing I put in my mouth. Why isn't my body healing? :(

- Michelle

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