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pricklypear1971

Member Since 24 Aug 2011
Offline Last Active Private
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Posts I've Made

In Topic: Alternative Treatments For Adrenal Fatigue

23 January 2014 - 12:12 PM

Yes, I know there are real serious adrenal diseases, but that wasn't the topic.

You are all stating your opinions and experiences, fine. If taking something harmless helps you feel better, that is great. I can choose to want to see the scientific evidence that these things helped you. Do you have before and after lab work we could look at? I realize you don't.

Feel free to discuss your treatments here. I have the right to discuss my opinion that I want scientific evidence and worry about people self-diagnosing serious illnesses.

Sorry Gee Eff, I just wanted to express my concern about all the self-diagnosis and people who are getting taken by some of these practitioners.


Karen, I do have labs. They even came from certified mainstream labs. I have a few witchy labs, too.... They're cross verified with mainstream labs. I don't have to prove a thing to you.

In Topic: Fibromyalgia Anyone?

23 January 2014 - 11:39 AM

Thalassemia will not respond to iron and iron over load can be dangerous if given and not monitored. On your CBC lab tests, anything out of range? My red blood cells are tiny: mcv,mch,mchc and are all out of range (entire life). The good news is that my body does compensate for having a low hemoglobin (just below range) but when it really gets too low from low iron stores (that is from celiac disease) and I feel the effects: fatigue, out of breath.

 

Thal can go the other way. You can have high rbc, low almost everything else and good or high iron. If a doc runs a "basic" cbc s/he may assume you are anemic, when you really are overloaded or fine on iron.

 

My son is fine, my husband is overloaded. Life just got interesting around here.


In Topic: Alternative Treatments For Adrenal Fatigue

23 January 2014 - 11:31 AM

I don't care what it's called. You can call it When Pigs Fly Up Your Butt. Whatever. I worry about cause and effect for my treatment.

 

My experience runs along the lines of a hypo thyroid/underperforming endocrine system state changing to a steroid induced hyper adrenal state - my symptoms were Cushings-esque, coupled with unaddressed and untreated Celiac Disease, along with under treated Hashimoto's - and that's what I'll address.

 

What I deal with is a type of adrenal insufficiency brought on from the above factors (steroids, thyroid). Since I had undiagnosed Hashimotos for at least a few years prior to treatment, I suffered from a decreased endocrine system performance (hypo) http://www.emedicine.../article_em.htm. Two steroid shots and a round of oral Prednisone, along with topical steroids put me into a hyper adrenal state and I had Cushings symptoms. At a certain point, the hyper functioning of my adrenals changed to hypo - I now have some symptoms of Secondary Adrenal Insufficiency. This problem seems to be strongly tied to my thyroid - as my thyroid performance improves via correct medications and supplements my adrenals improve. As a matter of fact, I'm a point now where we're trying to determine if I am on too much thyroid med (of the wrong type) or too much adrenal supplementation. Figuring it out is a mix of labs and trial/error. I sincerely hope that I am able to come off adrenal cortex in the near future, as does my doctor. 

 

For those of you who argue about if "adrenal exhaustion" is real or not, I think you need to drop the semantics and dictionary debate and pay attention to what people are saying when they talk about what's going on. The main adrenal-related complaints I hear about from people (and keep in mind I talk to lots of thyroid as well as gluten intolerant people) center around thyroid performance, glucose stabilization, and temporary sleep disturbances. I really don't recall anyone just saying "Hey, I feel off, I think I have Adrenal Fatigue so I'm gonna go buy a supplement at the store".

 

I agree with this 100%: http://www.hormone.o...adrenal-fatigue. As a matter of fact, the first thing I advise is a thyroid panel.

 

Doctors urge you not to waste precious time accepting an unproven diagnosis such as “adrenal fatigue” if you feel tired, weak, or depressed. If you have these symptoms, you may have adrenal insufficiency, depression, obstructive sleep apnea, or other health problems. Getting a real diagnosis is very important to help you feel better and overcome your health problem.

 

 

I have received medical advice, I think I know all of the diseases I'm dealing with....and have decided to go forward with a treatment plan that includes adrenal support. 

 

I would like to address some specific remarks I feel that were aimed at my posts.

 

 

Karen, sure...self diagnosing is dangerous with any disease. It's my experience most people try to get medical help for endocrine issues and are turned away - thyroid and adrenal. Kind of like with Celiac and NCGI. My range of doctor experience with adrenals is as varied as my experience with thyroid and gluten. To summarize, most MD's will acknowledge an issue but not treat it. Most ND's will acknowledge and treat with various treatment plans/supplaments.
 
Irish - we all understand you had terrible luck with doctors of all types, and the only thing that was ever wrong was Celiac disease and stupid doctors until you also figured out you have MCAS.
 
For many of us Celiac is not the beginning and end of our issues - it's just a piece. A good number of us have legitimate issues with other body systems that are not instantly (or ever) cured by going gluten-free: our lack of cure isn't due to our lack of compliance with a gluten-free diet, or vitamins. Neither is it our overindulgence of gluten-free processed foods, or lack of patience.
 
The links I provided clearly outline the role adrenals play in health. I understand you don't see "adrenal fatigue" written out. What you have to understand from reading is that adrenals are part of the endocrine system - an important part that can luckily be manipulated and supported. Using myself as an example, I boost  adrenal performance with adrenal cortex the same way I boost thyroid performance in my severely underperforming thyroid.

 

The debate about "adrenal fatigue" has been going on for decades. Bottom line - some people need to address their adrenal performance to improve the function of the endocrine system - temporarily or permanently.

 

Cushings Syndrome: http://www.endocrine...s/cushings.aspx

Addison's Disease: http://endocrine.nid...on/addison.aspx

 

Other names for adrenal fatigue are non-Addison's hypoadrenia, sub-clinical hypoadrenia, hypoadrenalism, and neurasthenia. http://thyroid.about...enalfatigue.htm

 

And I thought this was incredibly interesting. I'm going to go eat another Brazil nut, now. http://www.ncbi.nlm....pubmed/24437222


In Topic: Test Results.....worrying?

22 January 2014 - 10:24 PM

Did they test thyroglobulin or TPOAb?

Thyroglobulin is not used to dx Hashis.... http://labtestsonlin...bulin/tab/test/

The TPOab is used to dx Hashis Hypothyroidism. http://labtestsonlin...roid-antibodies

You need to understand if they ran the correct thyroid antibody test.

You can have inflammation from ANY autoimmune disease. Since you know you are hypothyroid, I'd pursue that AND your gluten intolerance....

You should probably read this about Fibro/thyroid: http://c.washingtont...ms-uk-research/

Your high cortisol may be the effect of poorly managed thyroid. You may need more, or different thyroid med. you really need free t3, free t4 and reverse t3 to see what your thyroid hormone levels are and if you are utilizing the meds properly. You may need an adrenal support supplement or lifestyle modification/change to help lower your cortisol.

And finally, if you haven't been gluten-free to Celiac standards:observing gluten-free to prevent cross contamination, etc., you could try cleaning up any remaining gluten to see if you feel better. I mention this because some people who are unsure of their status don't observe strict standards. I'm not saying you don't....

In Topic: Alternative Treatments For Adrenal Fatigue

22 January 2014 - 09:07 PM

For sure this can happen with steroid use. I'm thinking it may be part of my ongoing issues. I have been on oral steroids 5 times in the last 1 1/2 years plus had shots plus had it through my IV (my asthma was very bad and very difficult to control) after this cardiology testing is done, if it doesn't show anything, my GP is referring me to an endocrinologist for a complete work up. Now they never mention "adrenal fatigue" which I do agree with Karen may be a term used in alternative medicine, but I could very well be suffering from true adrenal problems


MD's don't say 'adrenal fatigue', they say something like 'temporary overstimulation' or 'not functioning as well as it could, but nothing to worry about'. Or 'temporary side effect of x med or condition'. Then they shove another med down your throat or say "everything looks normal, go see a shrink".

I will not argue that some alternative docs are wack jobs.... And some are fabulous. I could say the same for MD's. Of course, my view is probably skewed because I live in Thyroidland...and must MD's are in denial over the latest research (long story of what 'standard of care - unrevised' can do to a huge group of patients).