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pricklypear1971

Member Since 24 Aug 2011
Offline Last Active Today, 12:24 PM
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Posts I've Made

In Topic: Starbucks?!

Today, 10:53 AM

Actually on second thought - I was house sitting for a month in a very gluteny house. Maybe it's a combination of things. Ugh, just... grr.


It could be both, just one, neither...

I think what the root of the problem is you're struggling to accept how careful you may have to be? Cc is a tough lesson - it's easy to avoid gluteny food - cc is a different animal, though. You're constantly double-checking and reevaluating your surroundings and choices.

It's part of the acclimation process.

Sorry.

In Topic: Starbucks?!

Today, 10:13 AM

Thanks psawyer, for clearing up that myth!! I'm happy to know I won't have to give up vanilla lattes, HA.

And thank you, pricklypear1971... I'll talk to my manager and see if they can make some accommodations for me until this clears up. The dough, luckily, requires minimal handling (no kneading or anything- just place a cookie on a baking sheet and done) so it shouldn't be too eager to fly into the air, right? Perhaps if I ask others to handle it...

Oy.


I'm afraid you're being a bit naive...there's gluten all over your workplace. This is different than just walking around in a gluten world. You are fighting tremendous odds here. You're going to keep getting glutened. You can take every precaution - but the bottom line is you are working in a very high risk environment.

I sincerely hope you can make this work.

In Topic: Starbucks?!

Today, 08:43 AM

5. I handle all of the pastries and bake all of the products - even though I use gloves, could this be problematic?


Yes. If you're playing with flour, you're probably inhaling.

Yes, glutening water spraying on your face is potentially problematic. Eventually, it will probably work itself into your mouth.

You are playing with gluten. Eventually, it will get you.

I wouldn't worry about any other intolerances until you can eliminate gluten - and in your current job, it appears you can't.

In Topic: Dermatitis Herpetiformis ... My Journey

Today, 07:01 AM

I googled about pool water and I think I'm going to visit the YMCA tomorrow. I refuse to let Celiac/DH rule my daily activities, other than my food intake.

I saw my Rhuemy this morning for a follow-up. He asked to see my rash again. The belly is some better but still inflamed. He increased my Dapsone usage. I have had the blood test you mentioned Tinpins. My liver stats stay around 55 and have for several years, may be from fatty liver, which is mild.

He assured me he has a few patients on much higher levels of Dapsone but wants to take 'baby steps' with ordering more, for me. My PCP initially ordered 2 tabs a day of 25 mg, now I will take 3 tabs to equal 75 mg. Hopefully the additional Dapsone will help!


I found pool water burned my dh sores...and the wet bathing suit rubbed them. That aside, I was fine. Just see how you feel.

In Topic: Dh Caused By Stress?

Yesterday, 08:31 PM

I don't recall stress causing my dh to flare, but the appearance of dh sent me down an emotional and physical roller coaster every time.

Steroids can screw with your adrenals, making it more difficult to deal with stress, and also create symptoms. Steroids screwed me up. It's been 2 years and just starting to approach "normal" adrenal function. Maybe.

I'd be more suspicious of your thyroid or hormones, as far as cause/effect. I flare from viruses. Seriously. The flu gives me a breakout. I hate the flu. That's how I can tell if I've had a virus of any type - I get a bit of dh.

 

 

 


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