Okay, I have a 9 year old daughter and the dermatologist told us last Thursday he suspects DH. She was diagnosed with OCD at 6 and was thought to be an obsessive compulsive skin picker UNTIL we saw the dermatologist for plantar warts and I asked him to look at her "picking spots".
He said gluten free diet immediately, come back in a month, and if her spots were improved due to diet, he would biopsy two and do bloodwork for gluten allergy. He said he was SURE this was DH.
Does this sound like good advice?
I'm trying desperately to keep her away from ALL gluten, but she's had a slip almost every day. Yesterday was first 100% gluten-free day. How long before the dh will improve?
HELP ME PLEASE!!! )
NO!!! The biopsy needs to done while she's eating gluten (now), and when she isn't on steroid creams/oral med (if she is...). The biopsy is a punch biopsy taken next to a lesion. It is dyed and the lab tech looks for an iga pattern - iga is the antibody celiacs produce in response to gluten. So gluten is necessary for an accurate biopsy and accurate bloodwork.
That said, you can try testing now and if + you have your answer. If -, consider a gluten challenge and retest (misery for dh sufferers).
There are meds that can be used to reduce dh eruptions, but I don't know if a young child can safely use them.
Most dh sufferers are quite sensitive to gluten - so the smallest bit could keep it active. Others have dh that is reactive to iodine - like water on a grease fire (gluten being the grease). So, some of us need to follow a low iodine diet for a while.
I think there's a basics thread on dh in the dh forum? There's definitely a newbie forum for celiac on here.