pricklypear1971

This was in my inbox this morning.

Would take further reading to find out if test subjects were screened for DH or Celiac.

 

Apparently, I can't link to the article without going into my personal account.... so, here's the info. Go to Medscape http://www.medscape.com and get a free account, and you can read it.

 

 

Dapsone Resurrected for Chronic Urticaria

Kate Johnson

Mar 06, 2013

Has anyone here been dx'ed with DH and lupus?

I was looking for rashes triggered by autoimmune flares...and this came up: http://www.ncbi.nlm....9115907/related

Which made me wonder about people who have rashes occur long after DH seems to have cleared.

Some pics I've seen of what is labeled as a lupus rash looks like some DH rashes. Confusing. But then again DH has never been easy to label based on looks.

I'm just tossing this out there, you DH'ers will understand why.

Took my son to a Pediatric GI yesterday. He reviewed his labs (showing two sets of negative celiac blood tests) and we discussed our concerns about son's gi troubles.

I told him we were having him tested because of a lifetime of issues, and I was recently dx'ed Celiac.

He listened and then asked me a few questions about my dx process. I told him it was complicated, that I have dh (and that's what lead me down the Celiac path). I ended up telling him I was never biopsied (skin), or scoped, or given blood work. He understood my doctors failed to catch it, and I had the steroid use that would interfere with testing, and my dx was basically process of elimination and reaction to gluten-free and iodine (rash).

I then showed him pics of my rash (iphone). He did NOT say "that's not dh!". He accepted everything I told him. So, I had a doctor (who is familiar enough with Celiac he's starting a study about Celiacs going back on gluten - no, I did not volunteer) not pooh-pah my rash as DH.

Not much, but a step in the right direction.

And yes, son had abdominal xray (constipation) and a third Celiac panel (doc wanted to run it at a different lab just to see if it differs). Endoscopy in the next few weeks to look for any abnormalities, including Celiac.

Okay, just had a mild freak out. Grabbed a box of KA flour and the bottom was caked in whole wheat flour (sitting next to KA whole wheat flour on shelf).

I'm not one to freak over that stuff usually but I grabbed a poor manager and told him why that can't happen, where it should go...and was doing this with a clump of whole wheat flour stuck to my thumb, which I held out like an arm dripping in blood.

He ripped the gluten-free flour off the shelf, with the tag and ran for the hills.

I feel bad, sort of...

I had flour all over my phone, hand, hopefully not my produce. Aaack!!!!

Okay, I'm having a hard time recovering from that bug we had last week. And yes, I'm sure it was a bug because my son and I got sick together.

The bug itself was mild - cramping, d, nausea. But it will NOT go away.

To make matters worse at my doctors visit I found out my iron and d are still in the toilet. Technically in the "normal" range but still low, especially iron stores and d. So low they are making me produce excess reverse t3, so I am stuck in hypothyroid hell...

Sigh.

So, I started taking my iron and d again. She wants me to do 2 weeks of 20k d, and right now I am sick over doubling my iron to 50 and taking 4k of d.

She also wants me to take 2 digestive enzymes and 1 probiotic per meal...which I think is excessive.

I have spent the day wanting to vomit and rushing to the bathroom. No d but horrid gas/bm issues (sorry, tmi).

My stomach wasn't this upset when I STARTED gluten-free. This is terrible!!!

I think I'm quitting the d and iron for a few days. I sent my doctor a message about d and iron injections. I mean, why keep taking them if they barely work??? I'm ready for a shot of d. I know iron isn't as easy....

Help!!