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33 in Ca Celiacs and DH

Member Since 25 Aug 2011
Offline Last Active Aug 29 2011 09:49 AM
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Posts I've Made

In Topic: Dapsone? 100 Mg For 20 Years?

25 August 2011 - 08:59 PM

Wow! Thank you!! I didn't realize that DH was as serious as Celiacs. I look forward to reading additional doc's when you have the time to send them. :). I will research Dapsone and DH. I have tried a few different Dieticians and have been so disappointed with their lack of knowledge.
Iodine too! Geez, shellfish is my all time favorite food with the second being Chineese food. I am trying to quit smoking... Now I am going to add the gluten-free diet... But in return- I'm adding LIFE!!

Thank you so much!! The info I have received from my only 2 post is more than I have received in total- for the last 20 years!

In Topic: New Diagnosis: Dh Without Celiacs, After Being Diagnosed With Both For 20 Years

25 August 2011 - 07:22 PM

Thank you for all of the insight.. I was hopeful that I didn't have Celiacs as I have never been very good about sticking to the diet and more importantly, it seems there is so much more at risk with Celiacs (specifically Cancer, miscarriages (I've had 1) and/or fertility). I am not symptomatic other than bloated belly/gas and constipation. I do get blisters within 30 minutes of not taking Dapsone at my normal time... So it seems it's a no- brainer that I have DH.
I was thinking (probably not smart), that there was a possibility that I wouldn't have to watch what I eat as long as I continue to take the dapsone.

On another note, does anyone else take Dapsone for DH? I haven't found much research on the risk/harm that Dapsone causes after long periods of time. Any insight on this would be great!