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33 in Ca Celiacs and DH

Member Since 25 Aug 2011
Offline Last Active Aug 29 2011 09:49 AM

Topics I've Started


25 August 2011 - 09:49 PM

Do we really have to use gluten free makeup, lotions, soaps, detergents, etc?
If so, do you know of any gluten free Makeup lines? I am an esthetician, so my hands are ALWAYS in different cleansers, peels, makeup, etc!

Dapsone? 100 Mg For 20 Years?

25 August 2011 - 07:26 PM

Does anyone else take Dapsone for DH? I haven't found much research on the risk/harm that Dapsone causes after long periods of time. Any insight on this would be great!

I take 100 mg daily. When/if I miss a dose, I get blisters within 30 minutes. The blisters did not subside when I was on the gluten-free diet for 6 months. Is that common?

Thank you so much!!

New Diagnosis: Dh Without Celiacs, After Being Diagnosed With Both For 20 Years

25 August 2011 - 08:37 AM

Does anyone else have DH and negative for Celiacs? I was diagnosed With Celiacs and DH for the last 20 years.. Although I do have the bloating, constipation, achy joints, iron deficient.. I am not/have not been gluten-free since 2000 (for 6 months).
A new Dr recently suggested that I have the blood work to see if I truly do have Celiacs, and to our suprise, the test came back negative.
I do, however, absolutely have DH. I take 100 mg of Dapsone daily and if I miss a dose by just a few hours, I get blisters on my face, shoulders and under my butt. :(
I am having a gastro-intestinal biopsy Monday.

Does anyone else have DH but not Celiacs? My Dr said it is possible but that goes against everything any other Dr. Has told me?!?!
Please help clarify... Deeply confused!

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