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~**caselynn**~

Member Since 28 Aug 2011
Offline Last Active Aug 18 2014 03:39 PM
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#910429 3 Years And Counting!

Posted by ~**caselynn**~ on 26 March 2014 - 12:08 PM

Lol Dr Stefan at Portland Gastroenterogy of Maine! He's pretty awesome! :)
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#910202 3 Years And Counting!

Posted by ~**caselynn**~ on 25 March 2014 - 06:17 AM

Today marks my 3 years since diagnosis! It's been quite the adventure, but I can now say that I am healed and my health has been awesome! I couldn't ask for better a doc who has guided me through it all. Hope you all have a great day!! :)
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#814344 The Funny Pages - Tickle Me Elbow - The Original

Posted by ~**caselynn**~ on 28 July 2012 - 05:00 AM

I hope you enjoy your concert. That does sound like a good lineup and what's better than free?I imagine Mike will do a tribute to Davy Jones. That was so sad Posted Image

Loey


The concert was great! We had lots of fun and I bet I was the youngest person there haha I liked all of the groups except Union Gap? I hadn't heard of them and it sort of felt like a bad Vegas show and Neil Diamond might walk out at any minute. 😄 but the lady sitting next to me was GOING NUTS for them haha I think they were her favorite part!
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#813728 How Do You Do It?

Posted by ~**caselynn**~ on 25 July 2012 - 04:20 PM

Well I'm not avoiding gluten at this time so i'm not worried about cross contamination just yet. But how could someone actually live that way anyways?? So I can't eat a steak at a steakhouse because they serve gluten foods there?? Ridiculous. I better be negative for Celiacs cause this wont work for me.


Hi, my name is Case and I'm a Celiac. I eat steaks at restaurants, drink beer with my friends, and eat pizza from time to time, glutenfree ofcourse.. Haha😜I just want you to know that life isn't so bad on this side, I'm a regular young adult who lives a regular life, I've just adjusted to being gluten free. Yes, there's a learning curve but it's possible! Once you learn to work the diet into your life you'll be fine, don't give in yet!! 😃😃
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#813457 Reception Dinner Etiquette

Posted by ~**caselynn**~ on 24 July 2012 - 05:33 PM

I say bring your own food to the wedding, and when the meal comes, a hungry guy will gladly eat it for you, in addition to his own meal :).


Yup, this is exactly right! Haha I always bring my own and my guy friends count on it! Meaning they know they are going to get my dinner/cake everytime! Even at work when we celebrate birthdays two of my coworkers always try to see who is going to get "my" piece of cake haha works for me!
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#813443 Misdiagnosed?

Posted by ~**caselynn**~ on 24 July 2012 - 05:12 PM

Hon, may I suggest something? First of all (hug) :) and please, hear me out. This forum was part of what saved me from dying. My celiac panel was NEG, too. But it was WRONG.

No doctor could help me --and I saw dozens in 3 different states--- as I went down hill for 3+ years. I finally figured out it was celiac...and my doctor confirmed it, but not before I had suffered major debilitating consequences. (the irony is...my PC doc has 3 kids with celiac, but he did NOT see it in me for 12 years) Many of us suffer for MANY years before we get relief.

That said....

If we need to eliminate gluten because it is killing us, (and believe me, I am slowly coming back from the dead ) then, we need to look at OTHER sources of nutrients to provide our sustenance.

This is all about making sure we are getting what we need in our FOODS, okay? Time to take a look at what is most important.

YOU! You are most important.

I have been reading this thread all along--before it was edited and after and ...like you, I have a personal and moral issue about eating meat, but I am going to tell it to you straight.

I HAD to eat meat! PROTEIN and lots of it---to eliminate a B-12 and B9 anemia( I mean I had a SEVERE Folate and B-12 deficiency ) that made me unable to walk or THINK straight and sleep--at all. In short, I was a mess. I had so many symptoms, it would take an hour to write it all out. I am not kidding-- and my story on here is well-told, but my brain could not function and I was destined for a wheelchair or a mental health ward. I would not give up. I fought LONG and hard for an answer--for 3 YEARS!!

Once DXed, I began a new life. I learned what to do by listening to the people here on Celiac.com....Gemini, Ravenwoodglass, Skylark , LISA, Kareng, Peter, Sylvia, JESTGAR, Jersey Girl, Lovegrov, MUSHROOM, Eatmeat4good... and DARN210........ and so many more....These people have lived this thing.

So, to eradicate the excruciating burning, numbness, and tingling I had in my entire body, I made choices to EAT.

What it comes down to is this...if you are a celiac, you have been MALNOURISHED for many years and the key to feeling well is...to EAT.

While I respect and admire your desire to not eat meat, you will not recover without: the magnesium, calcium, folate, (B9) B-12, B1 (Thiamine) Vitamin B2 (riboflavin),Niacin (B3)
Pantothenic Acid (B5) - Vitamin B6
Vitamin E, and the important, Vitamin K (which all celiacs are severely deficient in) and Vitamin D...which are found in MEAT.

It is what it is.

Fish has some, veggies have some, but if you want to get yourself straightened out, and feel better, well, you have to focus on the hierarchy of the world...and it sadly, involves being a carnivore and eating meat.

I was told --for 20+ years that I had "IBS" and "GERD" and "fibro" and a bunch of other "syndromes" and all along, I was slowly dying from celiac. I knew those "Diagnoses" were not right. I knew something was keeping me ill.

Off gluten, I do not have any of those syndromes, but I am suffering major consequences from "listening to doctors".

The very celiac-savvy GI doc I have now says "OMG. ...what a disgrace. You are a walking celiac." He has helped me get well the last year through follow-up testing. I do not know If I will recover fully, but you can.

Make a choice---change your diet--- and live a healthy life.
And please, stick around...we do have so much to offer.
Best wishes, IH


Great post! I must say, I'm glad you're on the upside what a road you have traveled to get here. One of the best things about this site is reading others experiences, and how they have gotten to the point they're at! 😃
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#813400 Nervous About What To Say When Ordering

Posted by ~**caselynn**~ on 24 July 2012 - 03:34 PM

When I first started out I was a bit meek about the whole asking thing, to the point that my best friend spoke up during me ordering and said" She has Celiac disease so don't you dare let any gluten touch her food, write it in big letters so they can read it!!"(how embarrassing, I wanted to crawl under the table, now I could care less!) haha I remember that day like it was yesterday! She was a bit forceful so after the waiter left I told her she was a bit over the top. Her response, and I quote " It's your health we're playing with here". She's right! So now I speak up as soon as we sit down and ask for a gluten-free menu, and when I order I be sure to ask them to make sure nothing touches that it does need to be gluten free. I'm also an avid googler before I'll eat anywhere. I have to check out there menu and reviews by others. I use Find Me Gluten Free iPhone app, it will list restaurants with gluten free options in the area of the zip code you enter, that gives me a general idea of what to google and some options, also people leave reviews on there so it gives a general idea. Lol it's a starting point for me anyway! There's def a learning curve but it won't take you long to catch on! Good luck! 😃
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#813365 Misdiagnosed?

Posted by ~**caselynn**~ on 24 July 2012 - 01:08 PM

Hehehehe Darn210 says fungus and Mushroom responds!! Good timing!! 😄😄😄
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#812700 Help Again

Posted by ~**caselynn**~ on 22 July 2012 - 06:58 AM

Why don't you start a new thread in the recipe section since there seems to be so much interest in condiments including ketchups, mustards, barbecue sauces, pestos, salsas, marmalades and preserves. It would probably get the attention it deserves for those who haven't checked these posts.

Personally, I think I'll just come to your house to eat!!! Posted Image But I don't have a muu muu yet. Posted Image


Pick me up on the way, I think that's the best plan yet! Lol 😃
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#812648 Corn Avoidance

Posted by ~**caselynn**~ on 21 July 2012 - 07:53 PM

What is it about celiacs that our bodies like to defy science? Lol



Hehehe nothing like keeping the science community on their toes, right?? 😜
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#812646 Some gluten-free Bread May Not Be Gluten Free!

Posted by ~**caselynn**~ on 21 July 2012 - 07:50 PM

When I was first diagnosed my Gastroenterologist suggested that I not eat corn of any sort for a year approx. NOT because of a gluten issue but because it can be an irritant to some individuals and he felt I would heal better without the added irritation. He's a brilliant man, so I did what he said, and he was right! (ofcourse he was, haha so far he's amazing in my eyes ;) ) He also suggested I go straight to whole foods, nothing or very little processed foods--salad dressings things of that sort with very few ingredients. His point was to get back to basics, start from the beginning and build from there. I had to keep a log and figure out what I handled well and what I didn't. If it didn't agree I didn't eat it anymore. Simple process I must say. He also taught me that when reading a label if I can't pronounce it or am unsure about it then don't eat it, I still live by that. Any question about an ingredient in my mind and I won't touch it--this is my personal preference. I can't rely on anyone but myself to keep me healthy, and I wouldn't want it any other way. My suggestion would be to do just as I did--get back to the basics, keep track, and learn to make some of your favorite things you enjoyed before but gluten free. This get so much easier with time, but us gluten-free-ers can't depend on anyone but ourselves to ensure we're eating healthy for each of our individual selves. What I need and what others need nutrition wise can be on opposite ends of the spectrum, and we can't expect a company to pin point merchandise to each of us specifically, that would be unrealistic, but it's very realistic for each of us to determine our own needs and make appropriate judgements from there! Good luck to you! I hope you feel better soon!!! :)
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#810951 Please Read & Respond

Posted by ~**caselynn**~ on 14 July 2012 - 03:13 AM

It's me again, the woman who's glutened by cat litter and dog food. But maybe not? I take a beta blocker called Bisoprolol (Ziac) to prevent migraines. Been taking it for about 4 years. Developed some mild reactions (blurry vision, loose stool) after about a year and stopped it, but the migraines won out and I started taking it again about 3 years ago, as it totally prevents them.

Tonight I decided to research the side effects of beta blockers just to see if maybe some of my symptoms might be related to this drug and this is what I found (I bolded my current symptoms):

"Many side effects have been reported from these medications, including rash, anaphylactic shock (sudden unconsciousness or death), slowed heart rate, low blood pressure, cold extremities, worsening of heart failure, fainting, rapid heart beats, dizziness, fatigue, headache, depression, sleep disturbances, nightmares, hallucinations, short term memory loss, high or low blood sugar, stomach ache, flatulence, constipation, nausea, diarrhea, dry mouth, vomiting, heartburn, bloating, impotence or decreased libido, difficulty urinating, bronchospasm, cough, wheezes, nasal stuffiness, joint pain, and muscle cramps."

I was originally prescribed one 2.5 mg pill a day but usually take 2 because in the beginning one didn't always prevent the migraines but 2 did. Now I'm wondering if I developed an allergy to this medication and if some or all of my symptoms are related to these beta blockers. If I stop taking these the migraines will come back.

Apparently all beta blockers have the same side effects, and they are also known to prevent migraines. I'm wondering if my symptoms are responding to being gluten free because it is helping the symptoms, which may or may not be caused by celiac disease.

Any suggestions would be greatly appreciated. Thanks.


Did you get any of those symptoms before you increasesd your dose? And did you choose to increase the dose or did your PCP make that decision? 😊
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#810912 Accidental Exposure

Posted by ~**caselynn**~ on 13 July 2012 - 06:35 PM

Help with the kissing or the eating out?? Haha 😝 I learned cross contamination by kissing the hard way, phew that only took me once!! Now eating out is a tough subject, you have got to find a place you can trust. I live in a small town and the restaurants here are owned by people I've become friends with, easy to get aroun gluten when they are well informed. Now, when I travel, I google for gluten-free menus, place phone calls, read comments by other gluten free people, and quiz the wait staff. The biggest thing is for you to be aware of what you can and can't eat and don't be afraid to tell them, it's our health not theirs! Lol another thing I do is leave a comment on their website. If I've had a great experience, I like for them to know, positive feedback reinforces that they are doing well! A properly trained staff is half the battle! Good luck! :)
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#809603 A Relative Is Diagnosed Celiac- Won't Go Gluten-Free

Posted by ~**caselynn**~ on 08 July 2012 - 03:46 PM

I just shared a piece of gluten-free chocolate cake with her. It was a great recipe. So glad to see that she liked it. Just wanting her to know it can be done.

:D


That's a great start, and keep showing her it can be done! When she's ready you'll be there for her, and that's the best part, having an awesome support system! :) ....chocolate cake always helps too haha!
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#809455 A Relative Is Diagnosed Celiac- Won't Go Gluten-Free

Posted by ~**caselynn**~ on 08 July 2012 - 04:47 AM

I have a family member this way as well, she's willing to listen but not ready to jump in. Although, I'll give her props, she's slowly begun to make the transition with my help. I figure that if she's slowly making the transition then it's a start, I give her recipes and when we have family parties my family always is super conscious of me being gluten-free. So it's easier to sit down and eat with me, maybe it's all about not feeling singled out? Not sure but it's working and I'm glad for her in that aspect!
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