I remember when I first joined this group after my Celiac diagnosis, I read a post from a lady who said she couldn't tolerate any grains except for occasional white rice. I thought to myself, bless her soul! Well here comes another one.
I don't know if I'm having a bad week or what. I had a bowl hot cereal--teff grain made with pineapples and pure brown sugar late one day. (It tastes almost identical to pineapple upside down cake; teff hot cereal has a bready taste, and texture like rice cereal.) Shortly after, none of my joints wanted to move and I felt whipped. On the other hand, aspirin took it all away so I'm sure the cause was mainly inflammation. On another day I had Udi's granola in yogurt and almost immediately the same joint pain started back up, and again aspirin took it away. No stomach symptoms, just extreme unusual fatigue.
Though I've never had a single symptom from brown or white rice, I went grain free, all natural/whole foods, for a couple of days and I've felt fabulous.
In addition to Celiac, I'm completely intolerant to corn, as in I can't tolerate corn vinegar, oil, derivatives, caramel color, starch, etc. without having the same symptoms as Celiac, plus anaphylaxis from the very contact of corn on my throat. It's immediate and scary. My last episode was from almond/coconut milk that contained the forbidden potassium citrate. I had had a tablespoon in my coffee. I responded to one swallow of the coffee.
Could there be some reality to being grain intolerant altogether?
I get the feeling the researchers should have categories for Celiacs, like diabetes type 1 and 2. If that were the case, I think I'd be Celiac Type 10. It seems like I keep having to adjust my diet and it takes a lot not to get depressed over it.