Could very likely be cross contamination. Also, how many are you eating? My nutritionist has figured out I'm having some fat malabsorption issues and I can't eat more than 4-5 almonds or pecan halves etc.. at a time. More than that and I'm miserable with pain, etc.
A good certified gluten-free source for nuts is nuts.com. I know other members of the forums also like them.
Hello, my name is Tracy and I was diagnosed about 3 weeks ago with celiac. I have been on a gluten-free diet since then but I noticed that I am still extremely tired and it gets worse when i eat. Is this normal? If it is normal how long will it take for it to go away?
Welcome, Tracy! You've come to the right place for support and information.
Hmmmm....not sure there really is a "normal" recovery for anyone here on the forums! It all depends on how sick you were prior to diagnosis, how your body heals, how strict you are about diet, accidental glutenings, etc.
I can tell you that the doctor who did my biopsy told me to give it 3-6 MONTHS for any sort of improvement and 6-12 months to see real improvement. I'm at almost 10 months gluten-free and while many of my symptoms have improved (or gone away entirely) I am not 100%.
Also, what are you eating? A lot of us find that going for natural whole foods helps us feel better especially right after diagnosis. Stick to meat, fish, eggs, nuts, fruits, veg, dairy (if you can tolerate it) and skip all the gluten-free replacement foods. Eat smaller meals more often throughout the day. I had to up my protein intake and spread it out throughout the day -- no more than 2-3 oz. at a time.
Have your vitamin levels been checked? Low levels can make you tired.
Have you cleaned out your kitchen? Replaced the toaster, wooden utensils, scratched pots, etc? Do you have a shared kitchen? Could you be getting cross contamination that way? What about medicines? If you take any have you checked their gluten status? And lipstick/lip balm? Toothpaste, mouthwash, etc?
Plus, gluten withdrawal...it was awful for me. That might be impacting how you feel also. It passed within about 2-3 weeks if I remember properly.
I guess my big concern is going cross border. Typically they don't like you to bring food across. Also...am I allowed to bring snacks in flight? For some reason I thought I couldn't heh. I don't trust them to have gluten free available. They had some tastey veggie chips the last time but that was before i knew i had to go gluten free so i'm unsure if it was.
For gluten-free snack info on your flight you'd have to check with the airline -- but I doubt it. I'm currently in Europe and have had no trouble with having food in my carry-on in Germany, Poland, Italy, and Greece. I pack all things in small containers or ziploc bags and don't have any liquids. I haven't even been questioned about it.
As for the Canadian border crossing I found the following:
Q. What food am I allowed to bring into Canada?
A. Visitors to Canada may bring certain goods as “personal baggage”, duty and tax free, provided all such items are declared to Customs upon arrival, and are not subject to restriction. *A reasonable amount of personal items, supply of food (for personal use) and a full tank of gas. *Gifts not exceeding $60 Cdn for a friend/relative in Canada. This does not include tobacco products, alcohol or advertising material. Gifts valued at more that $60 Cdn are subject to duty or applicable taxes on the amount the gift exceeds the $60 value. *Live earthworms are permitted, but only when packed in artificial bedding (no earth or soil). Frozen or salted minnows are allowed.
US Food Restrictions
When entering the United States from Mexico or Canada, travelers may bring bakery items and some types of cheese across the border without worrying about being inspected. Other items that are generally accepted include packaged coffee, tea, condiments and spices, among others. Refrain from bringing rice across the border; according to the U.S. Department of Homeland Security's border patrol website, rice can harbor unwanted insects. Other banned items include meat products; some exceptions do apply. In many cases, you cannot bring foreign fruits and vegetables.
Canada Food Restrictions
When crossing into Canada over the U.S. border, you are not permitted to bring any potatoes or temperate fruit. As far as meat goes, you are allowed to cross with any type of seafood -- aside from putterfish and Chinese mitten crabs -- as well as 44 lbs. of meat per person; of those 44 lbs., only 24 lbs. can be beef. Tea, coffee and condiments are no problem; any vegetarian pastries and bakery items are not prohibited.
Until Kelloggs does a cost-benefit analysis that shows how having a gluten-free product will make them money they aren't going to do it is my bet.
General Mills is smart and forward thinking...I saw an article in, hmmm, was it the Wall Street Journal (?) in the last few months that laid out why GM is paying attention to the gluten-free market and changing the ingredients of some products and for others just updating labels. GM did their own research and found that of the population that is eating gluten-free about 80% HAVE TO eat gluten-free for medical reasons and will do so FOR LIFE. GM recognized that if they can build a loyal customer base with that population by having quality products and labels we can trust they will make $$ in the long term. They haven't rushed into it and are doing a lot of focus groups to make sure that the products they tinker with ingredient-wise still taste the same or close enough so gluten eaters will continue to eat them! I know I called GM at one point asking about an ingredient label and when the customer service rep found out I had questions about gluten due to having Celiac Disease she asked if I'd like to participate in any focus groups, try out new products, etc. I was stunned. I couldn't commit to it at the time but after our move is completed this summer I may just call them back and see if they still need participants!
What I've done while traveling is freeze food in individual portion containers and then let it thaw out during the car ride or plane ride. I also take hard boiled eggs and some cheese figuring those will be the first things I will eat on the trip!
I always take a good selection of 'snacks' with me that can sustain me for an extended period of time...beef jerky, tuna in pouches, nuts, fruit, veg (carrot sticks and celery sticks travel well), rice cakes w/ cashew butter or p.b., Kind bars, etc. Now most of my carry-on is taken up with food...thank God I have a Kindle or I'd be in huge trouble!
If you are driving and can stock a cooler for parts of the trip that will help you out. You might just have to plan on stopping at grocery stores at least once a day for things that you can keep in the cooler and eat up -- deli meat, cheese, fruit, etc.
I have some good days but still have a few too many bad days. I'm getting depressed cause I feel like I'll never feel normal again. I've been gluten free for nearly 4 months, I don't eat out anymore and there's no risk of CC as my daughter eats what I eat. Is this normal? To have different symptoms during recovery?
Welcome to the forum!
The healing process can vary from person to person...some people seem to take days to feel better while some of us (ahem, me included) take much longer. I am 8+ months gluten-free and still dealing with some issues (abdo pain is my main one right now.) At the beginning I swore it felt like two steps forward, one step back. I also wanted more good days but it just didn't work that way for me. You have to have patience and this is funny coming from me because I am notoriously impatient! One thing that really helped me was to keep a list of all the problems/pains/etc. that I had so that I could keep track of what was improving. I may not be 100% yet but I've said goodbye to the brain fog, dizziness, tremors, scary weight loss, brittle nails and hair, skin that looked like paper, etc. When I look at the list it is easier to see that overall I am improving.
I figure it took time to get in such bad shape and it will take time to get back into good shape!
Also, have you checked for cross-contamination issues? Replaced your toaster, strainers, etc. Could there be trace gluten sneaking in?
I'm not big on make-up except for lipgloss and lipstick -- it has always been my one splurge. I pitched everything upon my diagnosis and went without until I found Red Apple Lipstick. I have been using their stuff with no problem. They are gluten free, paraben free, a bunch of other stuff free! I was not keen on ordering lipstick online since I've always liked to see it in the past but I gave it a try and I haven't been sorry. I really love the stuff. They've also recently introduced a balm that is very nice -- I bought three and have one at home and one in my purse and a backup because I just know I'm going to loose the one in my purse (it has happened in the past!) I've also used the Neutrogena Naturals lipbalm with no problems.
It sounds like this doctor has no real experience or knowledge of Celiac Disease or even auto-immune diseases. Can you stick with the 'new' doctor? If not, did you ask the 'old' doctor why you feel better and have improving symptoms since going gluten-free? If he says it is "all in your head" (I got that one from one of the docs I was seeing prior to diagnosis?!?!) you NEED a new doctor!
Also, I've dealt with military doctors in the past and while some have been great some have been absolutely the pits -- if they can't figure it out right away it obviously isn't a 'real' problem at all (back to "all in your head!") A couple of them also did not want to admit they did not know absolutely everything about illness and injury, as if admitting a lack of knowledge diminished their worth or something. Personally I'd rather have a doctor who will admit to not knowing something (as my GP did once I was diagnosed with Celiac Disease -- he's been amazing, doing lots of research on his own and always listening to anything I say that I've learned about Celiac myself!) than be dismissed out of hand because they were less than an expert in an area.
Where are you located? Any Celiac specialists in your area?
It just seems like a doc would look into this... Especially with an endoscopy.
Are you having the endoscopy to biopsy for Celiac disease? If so you must continue to eat gluten until the biopsy. If you are going to go gluten free for several weeks beforehand the results will be skewed. My bloodwork came back high positive but I had to continue eating gluten until the day of my scope (about 3 weeks later)...I considered it my swan song and loaded up on Chinese food and triscuits!
Also, I had serious GERD issues before my diagnosis. In fact the doctors wanted to only consider GERD and then functional dyspepsia (when the PPIs couldn't control symptoms) until a new doctor suggested the Celiac bloodwork as a test of exclusion. All the docs were surprised when the bloodwork came back positive!
I'm still on Prilosec (20mg two times per day) after 3 months gluten-free -- my main doctor is hopeful that as I heal I won't need it or at least will be able to reduce the dosage. I can say that my GERD symptoms are definitely reduced after being on the diet.
I'm only 3 months into the gluten-free diet and living in Poland where I've had some issues with meat (glutened from both chicken & turkey...food labeling is hit or miss as I have found out!) so I was leery of eating at another person's house, especially with all the flour that was going to be around (for the gravy, the pies, etc.)
We went to enjoy the day with friends -- I ate before we left but still had a good time visiting with everyone. Honestly, it was more about being with friends and my family than the food for me this year.
Next year we'll be back in the United States and I'll go all out for my first real gluten-free Thanksgiving!
As of today I am 8 weeks gluten free and am enjoying the fact that my abdominal pain issues (which were almost debilitating) are drastically improved, my energy levels are increasing and my brain fog is clearing. All this means I can function at an almost 'normal' level of activity...going to the grocery store or walking the dog no longer kills me for the rest of the day. IT IS AWESOME!