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alucard4545

Member Since 02 Sep 2011
Offline Last Active Jun 02 2013 04:39 PM
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Posts I've Made

In Topic: Not Sure I Can Do Much More Of This...:(

27 November 2012 - 04:57 PM

alucard,

Could it be that you ate something with cinnamon in it? Some cinnamon (especially when bought in bulk) has an anti-clumping ingredient in it that can contain gluten. It's gotten me before!


Holy crap really? I've never heard of that before, that's pretty scary. That being said though, I didn't eat anything with cinnamon on thanksgiving. It's possible that it may have been a kitchen contamination issue, since my kitchen is not a gluten free one. My mother was the one preparing all of the food. Of coarse she knows I'm a celiac and was trying her best to make me separate food, using separate utencils and taking all the usual precautions you would take to prevent contamination. But a mistake might have been made somewhere along. I'll know better next time and just prepare my own food myself to keep in bins, while staying away from what everyone else eats. I'm sure she'll understand.

In Topic: Not Sure I Can Do Much More Of This...:(

26 November 2012 - 02:28 PM

to a84c72,

just wanted to say that you are not alone. I actually got glutened this thanksgiving regardless of serious efforts to prevent it. I have no idea how it happened and the next day I felt sick and was absolutely frustrated and miserable. Hang in there. It will take time, but everyone will understand and accept us eventually, just like they do with pretty much all other diseases. I know we will get there.

In Topic: Discrimination Against Celiacs?

26 November 2012 - 09:22 AM

The problem is she was not dismissed by CBS. She has not been released from her contract to the show. She has stated both in print and in spoken word - she understands if they need to replace her, but release her from the contract so she can look for alternative work.


Exactly. It really is as simple as that, yet some people on this thread are still missing the point.

In Topic: Discrimination Against Celiacs?

25 November 2012 - 04:03 PM

Me too.

When I read some of the stories here I am so grateful for my own improving health and that I caught it when I did.

I am a full time Mum now, but I am terrified at the prospect of working again. I could probably do 20 hours most weeks, but not on regular hours. The thought that if I was in the public eye my fellow celiacs would attack me is dreadful.


It is dreadful isn't it? That's why I started this thread and put the link to the petition right in my first post. In the end it is up to the person to decide whether to sign it, and in my opinion it couldn't hurt. I think it is important to help a fellow celiac who has been mistreated because of her condition. We can have a voice in this.

In Topic: Discrimination Against Celiacs?

25 November 2012 - 10:17 AM

Exactly!
I do not understand how someone can "assume" anything about her diet or if she is compliant or if she is trying to get more money (she isn't. She was interviewed about this subject and she said that was not the issue. She wanted to keep her job, but if she could not meet the demands of the schedule, she wanted them to let her out of her contract. .)

I do not understand how anyone with celiac can criticize anyone else with celiac, period.

If you know anything about this disease, you know it comes with consequences from going undiagnosed as long as she did.


And finally, some celiacs have OTHER issues develop, like microscopic colitis or pernicious anemia--- and this can cause weakness and feeling faint. I know 2 celiacs with these additional AI diseases and they are 100% dietary compliant.

Not everyone with complications from celiac is able to work full time. Those who can should rejoice at their good fortune --and refrain from passing judgement on those who cannot.


I could not have said it better myself. I found it a little disheartening to see some of the previous posts, especially ones that are from Advanced Community Members. People who, by the very fact that they are on this site, should have a clearer understanding that gluten free doesn't automatically mean the problem is solved for all celiacs. I too can not understand how anyone with celiac can criticize another celiac...