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Member Since 04 Sep 2011
Offline Last Active Jan 27 2012 10:48 AM

Topics I've Started

Day 86 Of Going gluten-free And Not Feeling Good, Help?

18 November 2011 - 07:11 AM

I am now on day 86 of being gluten-free and its been going ok. I have my up and down days, but I hear thats normal.
The past few days I have not been feeling well. I dont know whether its celiac related or im just getting sick.
I just spoke with my gastro (his assistant) she said it doesnt sound like anything celiac but she would ask him when he gets back, the end of this month. So I made an appt with my primary Dr today.
I feel weird, my face is hot and at times red. I feel blood rushing through me, sometimes my heart pounds (heartbeat loud) or it races fast. I have no temp, even though I feel weird.
I drink at least 67ounces of water a day, if not more. I write everything down and keep track of what I eat. Nothing there.
Im also 40, my Mum said she had the 'change' early.
I guess the main reason im writing this is to see if any other women have had this happen.
I otherwise feel ok. Just weird. Is it menstral related?
Thanks for any advice.

Is It Normal....

23 September 2011 - 04:11 PM

....to still have symptoms after following the gluten free diet for 4 weeks?

I am still getting numbness in my hands and feet and headaches. Compared to what I had 4 weeks ago, its lovely.
Thanks for any information.

Pretty Sure I Have Celiac

19 September 2011 - 01:21 PM

After a couple months of being ill my Dr thinks I have a gluten allergy. She suggested I follow a gluten free diet for 3 weeks to see if it helps.
My symptoms were/are vertigo, lightheaded, extreme fatigue, tingling/numbness in hands and feet, heart palps (double beats, extra beats), neausea, stomach pains/gassy/bloating, headaches, weight loss, diarrhea. I was unable to do anything but lie on a couch. Since this started the end of June I have been in the ER 6 times. Twice for dehydration.
I finally got a new Dr. She performed a Cat Scan with/without contrast. I guess the contrast I had went thru my system really quick and by the time i had the scan done it was in my bowels. Apparently normally it stays in the organs. But didnt with me. The scan showed my organs are normal but this was not. She then sugg following a gluten free and dairy free diet for 3 weeks.
I am now on day 26 and doing SO much better.
I went to see a Gastroenterologist last week. She asked me to go back to eating gluten so they could test me blood. I have never said NO so fast in my life! She said the only way to test was bloodwork. She also said a scope down my throat would help as well. We decided on taking blood that day and waiting for the results.
This past Friday was the best day I have had in months. I feel like im finally getting better. Even though I am still quite lost on whats 'safe' I am getting by.
The medical bills are coming in, its not good. I have decided to not do any further testing. I just think its unnecessary.
I guess I am writing this here to see what you all think. I have never felt so alone in my life.
I have eaten a couple of things that I thought was gluten-free, only to get very sick. Im guessing that happens a lot. I am keeping a food diary for that very reason.
I hope I havent rambled on too much. I am finally able to sit here and type all this.
Thank you,

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