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Member Since 08 Sep 2011
Offline Last Active Nov 16 2012 06:08 AM

Topics I've Started

Swollen Hands

18 January 2012 - 04:19 AM

Last night my hands were very swollen and I noticed that the vein on the top of my hand (between my index and middle fingers) is also very swollen. We checked my feet and they look ok. I've had swollen hands before, but never the vein and it got me nervous. This morning the hand swelling is a little better, but the vein is still swollen. Of course I Googled it and I am either about to burst into flames or it could be something as simple as too much salt! I did see a lot where it mentioned autoimmune issues, so I'm wondering if this is a Celiac thing? Does anyone else have this? Any ideas on what the cause is?

Oddly it's on the right hand, which is the hand I get my DH on.

Dad Meant Well.....

16 January 2012 - 03:42 AM

I feel so bad. My dad knows all about my gluten issues (yet he won't get tested himself). Anyway, last night he called me and told me he made meatloaf and made an extra one and wanted to bring it down for us for dinner. I asked if it had any bread in it. His response? "Yes, I put a tiny amount of Italian bread crumbs in it, but it's not enough to bother you." I seriously almost lost it. I said I was sorry, but there was NO WAY I was eating it, that ANY amount would bother me and I can't have ANY bread crumbs, bread, gluten, etc.! I feel really bad for having to tell him I wouldn't eat it, but geez.....he KNOWS that I can't eat that!

I guess it just goes to show no matter how vigilant we are some people just won't get it. <sigh>

Gluten Free Disney

04 January 2012 - 03:34 AM

We are going to Disney (Florida) next month! YEAH!!! CANNOT wait! I must admit I'm a little nervous though. I don't like going to new restaurants anymore knowing we will have to grill the waitress or the manager to find out what I can/can't eat. I don't like knowing my usual options are a bun-less burger or a salad. I have done some research (thanks to what I read on these lists) and contacted our hotel and made sure we have a room with a microwave and fridge. I will be bringing some of my own snacks for the trip down so I don't get desperate in an airport. The hotel has sent me the menu for the breakfast items so I know what I can/can't have there and I've printed out the gluten free menus for restaurants in close proximity to our hotel (we are not staying on Disney property, we're staying near the Maingate East).

So, for anyone who has done Disney gluten free - do you have any tips? Any places we should avoid at all costs? Any places we should definitely go to?

Thanks so much in advance!!!

What Doctors (Don't) Know

29 December 2011 - 03:47 AM

I have a friend who is a doctor. He is a primary care doctor - I'd guess he's about 55-60 years old, he's not a GI specialist or anything like that. I was joking with him yesterday that the dog is happy that the treats I gave him for Christmas have wheat in them so he doesn't have to share them with me. My friend read the bag and said "Oh, they are made with barley flour so you can have them" :huh: Seriously?? He is a DOCTOR and he has no clue about Celiac? NONE?! I was really shocked when I heard him say that. It just really hit home that most doctors really have no clue what Celiac is. <sigh>

Accidentally Glutened Myself

13 December 2011 - 04:16 AM

Had some pork chops in the freezer that were already in a marinade (that I had put them in prior to freezing) that I wanted to use up. I completely forgot that I put them in the marinade pre-celiac diagnosis and ASSUMED the marinade was ok. NOT. I normally don't have GI issues after ingesting gluten but boy oh boy, did I have a reaction this time. I spent the majority of my evening in the bathroom and had a lovely migraine to boot.

I DEFINITELY won't be making THAT mistake again....<grumble grumble>......

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