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saintmaybe

Member Since 10 Sep 2011
Offline Last Active Jul 12 2012 04:15 PM
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Posts I've Made

In Topic: Fibromyalgia And Chronic Pain - Anyone Else?

10 July 2012 - 04:52 PM

Hello,

I'm 5 weeks new to having Celiac Disease. For over 3 years I've had crippling chronic pain over my body and was diagnosed with Fibromyalgia. I've gotten shots in my hips and spine, been on Neurotin, Cymbalta, pain meds, you name it. Nothing worked. Does anyone have experience or clear info on whether Celiac can mimic Fibromyalgia? I also have horrible stiffness and pain in my hands and my feet. I am hoping and hoping that a gluten-free diet will help but I don't want to get my hopes up too much. I would love some feedback/encouragement. 5 weeks on the diet and I haven't noticed anything yet.

Thanks!


Certainly have no advice to give on Celiac and chronic pain, but have you been evaluated for other rheumatic diseases, Lyme disease, lupus, spinal arthritis, or Crohn's and ulcerative colitis which can and do present with musculoskeletal complications? Fibromyalgia, while there is a lot of evidence that it's a real disease, is a diagnosis of elimination, rather than inclusion. Wondering if you have all your chronic bases covered. =)

In Topic: Humira, Enbrel, Remicade

29 June 2012 - 01:44 PM

I don't have any experience to offer you, but I would suggest you look up the dosage and administration of each of the drugs. That might help you in making a decision.


Yeah. One is at home and one has to be administered at the doctors office. I'd take the office administration if the benefits were worth it, but if the two aren't categorically different, I'd prefer at home administration.

In Topic: Hair!

25 June 2012 - 08:45 AM

There is a ;) POSSIBLE ;) link between B12 defiency and premature greying. (also a possible link for geographic tongue)

I really suggest the Biotin. Biotin would naturally be found from eating animal liver. I seriously doubt many of us are eating enough Biotin in our diets. (that and there has been warnings for years about too much contamination in animal liver) There is no known adverse affect from "high" doses of Biotin. Not only will your hair grow but fingernails too. :)


Wow, that has a name?! I just looked up pics, and I've had that my whole life and no one has ever said anything to me about it. Thats good to know though, about the b12, both for the tongue and the hair. I am vain, and freak out about every new gray.

In Topic: Hair!

25 June 2012 - 08:40 AM

There is a ;) POSSIBLE ;) link between B12 defiency and premature greying. (also a possible link for geographic tongue)

I really suggest the Biotin. Biotin would naturally be found from eating animal liver. I seriously doubt many of us are eating enough Biotin in our diets. (that and there has been warnings for years about too much contamination in animal liver) There is no known adverse affect from "high" doses of Biotin. Not only will your hair grow but fingernails too. :)


Sorry to hijack the thread, but what on earth is geographic tongue? I have visions of a tongue with a little suitcase and passport. :-D

In Topic: Continuing / New Symptoms

24 June 2012 - 12:08 PM

Depends on where the pain is. I had lower back and hip pain I at first thought was a direct result of my job working in a garden center. Then I found out my brother has ankylosing spondylitis, and lo and behold so do I. That is a WORST case scenario, and It's doubtful that's your specific issue. It could be the early stages of bursitis or sciatica, generalized inflammation of the joint. I generally eat primal, and it has helped some. It's definitely toned my migraines down to manageable levels. What's clear is that there's something else going on and you should get it checked out.