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saintmaybe

Member Since 10 Sep 2011
Offline Last Active Jul 12 2012 04:15 PM
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Topics I've Started

Humira, Enbrel, Remicade

29 June 2012 - 12:43 PM

Anyone taking these for RA, Spondylitis, JA, or PA? I'm in the process of getting diagnosed with ankylosing spondylitis, and my doctor wants to skip straight to biologics because my case is now progressing quickly and antiinflammatories don't work for me. I'm curious as to what your experiences are, which one you'd recommend. Are the costs, side effects, and frequent infections worth it? I work in retail and am thus exposed to germs all day, so I'm a little concerned about being on immunosuppressants for a long time...

Gastritis

26 April 2012 - 01:01 PM

Hey all. Just had my endoscopy and blood tests two days ago, so I'm waiting on the results. They did find gastritis of the Antrum (upper part of the stomach). Not diagnosed officially with GERD, but they put me on prilosec with a watch and see attitude. The constant kicked in the stomach feeling is a little less after two days. They took six biopsies of my small intestine, and one of the gastritis to test for H. Pylori.

Just a heads up also to new England folks. Dr. Sheth and the staff at the gastroenterology endoscopy center of Beth Israel in Boston have been wonderful. Though he doubts celiac for me, he's been very conservative in treatment standards, taken all necessary tests, and definitely thinks I'm non celiac gluten sensitive.

As an aside, I've read studies demonstrating lymphcytic infiltrative gastritis in as much as. 50% of celiac patients. So it seems to be a very common disease manifestation anyway. I'm very eager to learn my results, which hopefully will be available shortly.

Gluten Loading/challenge

22 February 2012 - 09:16 AM

I'm looking for experiences from veterans who, for one reason or another, went gluten free for a good while (say at least 4 months), and then had to go back on for a challenge. I have a GI appointment in three weeks with new blood testing, and the goal is to get my antibodies as high as possible without literally or metaphorically killing myself.

I just ate a nutrigrain bar, which was a really uninspired way to fall off the wagon. Surprisingly, we have almost no glutenous foods in the house, so I'll need to go shopping. What worked for you, and what didn't?

Anyone Get Worse At 5 Mo. Gluten Free?

18 January 2012 - 08:16 PM

I've been five months gluten free, and it was all going really well. Adjusting to the diet, getting healthier, getting my energy back.

All of a sudden, I've developed two new food sensitivities in two weeks. Corn, which is confirmed, makes me as sick as if I've gotten a huge dose of gluten. Soy, which I haven't completely nailed down yet, seems to be a new one, because I was eating stuff with soy last week. Now this week, I feel like I've been hit by a truck, and those are the only things I can isolate as repeatable causes.

I know it's normal to develop more sensitivities as time goes on, and I know it's normal to get more sensitive to gluten itself. My question is around what time in your recovery did your extra food intolerances start showing up?

Anyone Have Issues With Synthetic Dyes?

16 January 2012 - 08:15 AM

Hey guys! Long time, no talk! I've decided to go topically gluten free, since I appear to be super sensitive (I used a concealer yesterday that wasn't vetted gluten free, and that was a miserable mistake).

On working my way through three different rounds of shampoos and conditioners, I've noticed that even in some gluten free brands, I was still having a reaction. I was itchy, and still losing hair, though certainly not at the rate of using gluten containing products or actually eating gluten.

So I drew up the trusty old Venn Diagram, well not really, but kind of, and I figured out that even in my new products, there were still dyes, specifically Yellow No. 5. Teratrazine (doesn't that just sound healthy?). So I've RE-gone through everything I own, and thrown away everything left that had this dye in it.

So what about it peeps? Have you had problems with dyes, and what were they? Share your horror stories here. *makes grabby hands*