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millersinkenya

Member Since 14 Sep 2011
Offline Last Active Mar 09 2013 10:58 AM
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Posts I've Made

In Topic: Is It Gluten Intollerance?

16 November 2011 - 08:19 AM

I could be. Has she started any solids yet? My kiddos had diarrhea really bad and then when we started solids, it was awful. I mean, 15+ stools per day when not ill. If they were ill, they had 25+. I was literally changing diapers all of the time. Once we cut the gluten out for my daughter, now she has extremely solid poos. I had to cut it out of everything I was eating... in the States, is there gluten in formula? There is here, so we unable to give her formula at all, too. With my son, his poos now range from good/solid to diarrhea. Not sure if he is super sensitive or getting glutened at school somehow. I think that depending on the amount she is getting, that could make her poos vary from ok to awful. I would talk to your doctor about what to do, since she is so young you want to make sure that she is getting the right nutrition. Good Luck!

In Topic: Serious Behavioral Issues

16 November 2011 - 08:13 AM

You mentioned that he is loud, and the tv is loud. Does he ask you to repeat things often, or do u need to speak loudly to him? Hearing problems can affect behavior. They cant completely hear and then may get aggrivated quickly. You said he is very verbal which is good, but there can still be a deficit. Have him screened. Sounds like you are already doing a great job with his diet needs.


Thanks, Kaysmom. We have had him screened. I think he was quite a bit younger than he is now... do I have to have it done every so often? I don't think he has a problem hearing, but I guess I wouldn't know unless we had him tested. Thanks for the encouragement :)

In Topic: Serious Behavioral Issues

15 November 2011 - 11:00 PM

Thanks, everyone!

I guess I just really need help with cutting more things out of his diet. I assumed I would have to cut everything out and add it all back in slowly- impossible for a four year old to understand.

I think I will start with milk. We don't have anything with soy, so I think that is already cut out. I will go back and read all of the labels again. Most things we have to make from scratch here, so that is one good (but hard!) thing about it all.

I definitely will keep an eye on the bipolar thing, but I just don't know how much I believe that there is onset in childhood. Obviously, I have thought about the tendencies that he has, but I would not ever seek a bipolar disorder label for a child. There are many other things I would do first.

I have wondered about the autism spectrum. I am a special education teacher, and this has crossed my mind a lot, actually. I know an autism specialist here in Kenya, so I may try to meet with her and get her opinions. I don't know about the loudness factor on tv and such, but I am not sure that I think it is sensory processing. Although he is quirky with how he likes his clothes, etc., I know MANY kiddos that are this way and do not have SPD. I am this way with tags and such... who likes to be uncomfortable? Not me!

I will follow up with the behavioral issues with his doctor. I just want to get some ideas as to food, how and what and when to cut thing out and how to tell if they effect him or not. I think the food dyes need to go, for sure. Any other suggestions?

In Topic: Serious Behavioral Issues

13 November 2011 - 12:42 AM

Has your toddler been formally diagnosed or do you suspect any other specific allergies, intolerances, behavioural issues, conditions etc?
Has he been tested for vitamin deficiencies?
Does he have other people (carers-friends,family,babysitters, nanny, etc) that you leave him with?
Are his Celiac symptoms only behaviour or are there others you can identify? Any other symptoms that you haven't mentioned (but aren't necessarily celiac related)?


Yes, he was diagnosed via biopsy. I do suspect that there is some intolerance to something... all RAST have been negative. We have not done a skin prick test. He has NOT been tested for any deficiencies. He goes to preschool each day. His teacher has celiac as well, so she is hypersensitive to his needs which is a huge blessing. He does have times at school, recess, etc., when she is not there but there are other teachers around who are aware of his celiac diagnosis. Our househelper is here with him some, but the house is gluten-free so she can not give him anything that he can't have. He does get diarrhea, migraines, sleep disturbances, etc. when glutened. He is extremely verbal and always has been. He is just so intense in all of his behaviors- even when he watches a tv show, the tv is loud. everything just seems to be so intense... like, when he was little and even now, time outs do not work. he will scream and cry and bang the door for HOURS. I am not even kidding. He will not give up fighting, everything is a fight, and he doesn't even learn why he was in time out in the first place because of his intensity surrounding the events. But, when gluten free (those 3 weeks) he was a great kids, never in trouble, never fighting about anything, very compliant and happy. I am just so overwhelmed with trying to figure out what the trigger is. There is a history of bipolar in my husbands family, but i do not believe that bipolar is a childhood disorder at this age... I really have this strong feeling that it is his food. But I dont know what. Oh, also, he is a very heavy wetter. He either pees the bed or goes through 2-3 diapers per night. Day time trained since he was 2 years old. Does that help at all?

In Topic: Endo Question

23 October 2011 - 02:45 AM

I've heard about canker sores for sure (apahtous ulcers- sp?). Two clinicians specializing in celiac spoke at a conference in my area and this was one of their slides. Are they on the tongue or cheek area?



no, they are in the esophogus... the GI saw them during the endoscopy.