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Kjas

Member Since 19 Sep 2011
Offline Last Active May 20 2012 10:26 PM
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#784569 Autism Rising

Posted by Kjas on 01 April 2012 - 09:04 AM

Prevalence and incidence rates are two different things.

There are just to many factors at play right now to be saying we have any "answers". All we do know that there is a define genetic component.

Most of the current data is skewed in some way. You have to take into account diagnosis methods (which differ worldwide), who is doing the diagnosis's (some countries limit to psychiatrists, others allow psychologists) , those who have been diagnosed later in life since the said definitions were not available then (likely most of the older generations in HFA range before 1980), things like urban vs. rural likelihood of DX, ditto that with terms of things like class, race, gender and socio economic position. You also have about 50% of the DX now being made that are in the HFA / Aspie /PDD-NOS category.

In many ways autism is like celiac disease in the way that while we have some data, we certainly do not have all of it and the data we have is still skewed to some extent. I really do think it is too early to be drawing conclusions yet. Give it 20 years and at least then we will have more reliable data.
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#784359 Autism Rising

Posted by Kjas on 31 March 2012 - 09:15 AM

Two other things to consider:

1) Autism was not even included in the DMS until 1980 as a diagnosis itself. Before that it was classified as under childhood schizophrenia if it was diagnosed at all.

2) Aspergers Syndrome, Retts and PDD-NOS where not included in the DMS until 1994.

Considering those 2 things alone, is it any wonder the diagnosis rate is on the rise?
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#784330 Autism Rising

Posted by Kjas on 31 March 2012 - 06:41 AM

Raven,

Being diagnosed is not a bad thing, it's just like celiac, it depends on your attitude towards it. Some people will use it as a crutch, but those people are probably already using some other excuse as a crutch anyway.

Quite frankly, it helped me stop feeling like a complete alien when I finally had a reason for the way I was since at least then I knew I wasn't crazy and it wasn't all in my head or that I wasn't trying hard enough (which I did plenty of). It helped me develop proper coping mechanisms rather than just trying to be normal until I overloaded which would always leave others confused since they didn't know why I was acting that way. I can't tell you the number of friendships I have lost over the years because they pushed me when I was already on overload and they pushed me to the point that I either had a meltdown or I shut down.

At least now I know what I need to stay calm and focused and have options available to me when I feel like I'm going to start to overload. Sometimes the fact of just knowing you're not crazy or an alien is enough for some people. Just like celiac - at least you know what's making you sick. At least you find a way to cope with it - you take your lunch to work with you when you know you can't find something gluten-free.

I have no doubt many of the great inventors and philosophers etc were in fact Aspies. But equally, I have no doubt that a diagnosis and coping mechanisms would have helped leaps and bounds when it came to their personal relationships.

I would like to point out that it's probably more people with PDD-NOS or Aspies who are actually being diagnosed. As it is, both of those are under-diagnosed or misdiagnosed, particularly in women. Not all autism comes in the low to medium functioning range, which is a common misconception.
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#774678 Anyone Else Lose All The Friends?

Posted by Kjas on 20 February 2012 - 04:20 AM

Another one here.

I lost most of my so called "friends" when I got sick. The only ones who have stayed are a couple of very old friends. It wasn't just my friends that left. My boyfriend did too. He couldn't accept my illness (even though his brother and step father have the same thing) and he kept making me sick and then blaming me for being sick.

The "friends" that I lost, are the ones I didn't need. They were the ones who used to weigh me down. The ones who expected everybody else to accommodate them. They were just friends with me because it was convenient for them and / or I had something they wanted. A girl to go for a girls night out, some who just wanted someone to listen to their problems although they would never listen to mine (but they had no interest in doing anything about those problems). You get the picture.

When you make it further along and have cleared your head you will see these people for exactly what they are. It hurts now, but long term you are better off without them. If they couldn't handle you being sick, it just would have been a matter of time until another life changing event would have happened and they would have disappeared then anyway.

You will make new friends. You have a lot more space for new friends now, and you have an automatic bullcrap test (the celiac). When you make new friends this time, I suspect more of them will be the stick-by-you kind because of this.
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#771050 We Need To Start A Thread On Stupid Stuff Doctors Say!

Posted by Kjas on 04 February 2012 - 11:23 PM

diandliam,

I am a psychologist which is what made that statement so ironic. I would know if I had an eating disorder because I work with these girls and the occasional boy everyday because they have eating disorders. The test came up with that I do not have an eating disorder along in the past I have had periods of disordered eating, mainly due to the celiac.
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#771028 We Need To Start A Thread On Stupid Stuff Doctors Say!

Posted by Kjas on 04 February 2012 - 09:01 PM

My favourite one:

After me convincing my old doctor to spring me out of hospital as long as he took full responsibility for my care the conversion goes like this:

Doc: When they sent me the note they said you needed to get a psych test to see if you have an eating disorder.
Me: What the hell?
Doc: Apparently you refused to eat a lot of the food while you were there.
Me: Yeah cause I was throwing up and had D constantly, I would just throw up more food, what is the point? Plus she wants me to eat toast, and that's what started this thing when I first got admitted to the hospital. I told the nurse it makes me sick and she threatened me saying if I didn't eat, they'd make me do a psych test.
Doc: Toast makes you sick? Why don't you eat wheatbix or crumpets instead?
Me: Because they make me sick too?
Doc: Well I don't know what's wrong with you but in the meantime I'm going to run some autoimmune tests because one of your tests came back with the Ttg through the roof. In the meantime, take these steroids so you system will stop attacking itself and you have to get a psych test.
Me: Okay, so what do I eat in the meantime?
Doc: Pasta, cake, cookies, muffins, whatever will keep the weight on.
Me: That couldn't be causing the problems could it? When I was a kid I never ate anything like that stuff and I never had these problems.
Doc: Don't be silly, food can't make you sick. You probably just have an eating disorder and need an excuse to throw it up.
Me: I think I would know if I had one, I work with ED patients all the time at work. Besides how am I supposed to fake the Ttg or whatever it is?
Doc: You're probably in denial, just do the psych test.
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#766921 People Who Don't Want To Understand

Posted by Kjas on 21 January 2012 - 02:45 PM

My response to this is always the following, they need to think before they say crap like this.

"Oh, I would die if I couldn't eat bread."

"Don't worry, it'll kill you first."
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#757499 I Am Wasting Away - Please Help! :(

Posted by Kjas on 17 December 2011 - 01:25 AM

I guess what I can tell you is that you are not alone. This is what has worked for me so far.

I am 5'0 ft and was 61 lbs at my worst.

I cannot tolerate alcohol, caffeine soy, dairy, corn, eggs, potato, sugar or sweetener (except stevia or nativa). Anything processed, anything that contains starch or anything that contains grains also are not well tolerated with me.

I was 68 lbs when I started this last month.

The solution for me was to make a big bunch of soup for the week and freeze what you won't use in the next day or so and take it out as you need. Use homemade stock, as much meat as you think you can handle, as many vegetables as you can pack in, and add things like herbs, spices, oil, coconut milk, avocado to pack in more fat. Make different types, as you will need variety.

If you eat homemade soup 3 times a day along, and eat vegetables and meat as a meal another 2 or 3 times a day, you will start to gain weight. You need to eat 5-6 times a day, maybe more if you're not gaining. You need to take digestive enzymes or papaya or pineapple extract so you can start absorbing your food. Probiotics help a lot. Optional extras I chose to use are L-Glutamine and Colostrum.

After a month of this, the other day I managed to keep down some organic, grass fed, unhomigenized milk for the first time yesterday. No D, no vomiting and not even any stomach pain. I won't be making a habit of drinking it, but it's nice to know it's working. I'm now at 78 lbs and still rising.

I hope you find something that works for you from the posters here. Goodluck.
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#752028 Dating A Celiac

Posted by Kjas on 29 November 2011 - 08:30 PM

It's perfectly okay to keep toothpaste, a toothbrush and soap in your purse. My boyfriend has to carry those things with him every time he comes to see me. Once you get used to it, it's no big deal.

Thank you for being so thoughtful to him, I hope he appreciates it.
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