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Celtic Queen

Member Since 29 Sep 2011
Offline Last Active Dec 27 2013 01:28 PM

#900722 How Do You Deal With The "haters"?

Posted by on 27 December 2013 - 07:19 AM


I ordered gluten-free sushi and asked additional questions (because I got hit the time before after many previous good experiences) and found out the staff was frustrated by people requesting gluten-free (and staff going through the menu, etcetera) and then ordering glutinous items. Yeah, frustration. We talked a bit and my waiter was happy to explain to the chefs that I was serious, and I got a safe meal.

Actually, a good friend of mine is a server at a high end French restaurant and this was a huge issue for him.  He had several customers send him running back and forth to the kitchen several times to check ingredients, only to go ahead and order something with gluten in the end.  I explained to him that those people were probably not true Celiacs and that I would never, ever order something with gluten in it on purpose.  People like that make the real Celiacs look bad.


A couple of weeks ago he had a true Celiac come into the restaurant and he was able to help her order something safe. He told me about it the next day.  Made me feel better that my "education" helped.  I have started telling servers that gluten will make me very sick just to clarify to them that that it's not a fad for me.


As for the hostility of others, I sometimes wonder if it is because they know they need to change their diet but don't want to, so they become resentful of those of us who do.

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#895005 Anybody Use Penzey's Spices?

Posted by on 06 November 2013 - 03:00 PM

Also, if you sign up for Penzy's mailing list, they'll send you a catalog each month with a coupon for a free spice that can be redeemed at the store.  No other purchase necessary.  My coworker does it.

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#888931 Wheat Bran - Try It - It's Great!

Posted by on 18 September 2013 - 02:33 PM

Candy, if you want to put your health at risk by eating wheat bran, that's your perogative.  If you aren't Celiac or gluten intolerant, it won't cause you any problems.  But if you are, it will do some damage to your system eventually. 


Personally I can find other ways to get fiber and B vitamins without the risk of cross contamination. 


As Kareng mentioned, this is a board for Celiacs and gluten intolerants, so you're not going to get a warm welcome here for suggesting that we eat wheat in any way, shape or form.

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#888767 Dermatitis Herpetiformis Charity Cross Grain Symbol?

Posted by on 17 September 2013 - 02:20 PM

Blame it on a gluten brain fog :D

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#886246 Why Is The Main Stream Media, Tennis Stars And Others Trying To Destroy The G...

Posted by on 28 August 2013 - 06:51 AM

Yeah, this is a frustration for me too.  I've had two personal issues with this.  We have a weekly dinner at church.  The few times I go to it, I bring my own food.  One person asked me why one night and I explained that I was eating gluten free.  Another lady overheard and said, "I'm so sick of hearing people talk about eating gluten free.  It's such a trendy diet."  I looked at her and said, "I eat gluten free because I have Celiac Disease and gluten makes me sick."  That shut her up pretty quickly.  The sad thing is that this lady is a nurse, so she should have a clue what Celiac Disease is.


Another friend is a server for a high-end French restaurant - one that should have experience in dealing with food allergies and intolerances.  He was complaining because a lady came in saying she couldn't eat gluten.  She wanted one thing on the menu and he checked with the chef and was told it wasn't gluten free.  So then he had to run back and forth about 5 times between her table and the kitchen checking the ingredients on other dishes.  In the end, she ended up ordering the first dish even though it had gluten in it.  I explained to him that she likely wasn't a true Celiac, but just one of those people following the gluten-free trendy diet.  I said if she truly had Celiac Disease she never would have ordered something knowing it had gluten because it would have made her sick.  She also would have had a good idea which dishes on the menu were more likely to be safe and which were off limits.


I guess he took my conversation to heart.  Last week he told me that he had another person come in asking about gluten free and he pointed to which things on the menu were safe.  And he double checked with the kitchen.  He said the person was so grateful for his understanding.  I said that person was more likely a true Celiac.  I felt a little better that my discussions with him may have made things a little easier for the next Celiac who visits his restaurant.  He was even telling me about a flourless chocolate cake that I could have for dessert if I came to visit him :D


My husband is always hearing me rant about the people who follow the "Lady Gaga/Kim Kardashian" gluten-free diet because it's trendy.  I just hope the trendy part of gluten-free will die down and that there will be more awareness of Celiac Disease and NCGI so that people who truly need the diet will get diagnosed.

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#760289 Do Not Trust Anyone!

Posted by on 28 December 2011 - 11:33 AM

It's funny because my Uncle called me the other day and said he wanted to send our family some cookies. Then he thought about me and didn't want to tempt me. I told him I wouldn't be tempted at all and that I felt so much better gluten free that I wasn't about to ruin that. I told him hubby and my son would enjoy the cookies.

I don't think he truly got it until he was having Christmas Eve dinner with my cousin, who is also diagnosed. He said said she explained it all to him in detail about eating gluten free has made such a big difference in her health. I think a light bulb came on for him.

Personally, I'm still fighting so hard not to get accidentally glutened that I'm not even remotely interested in doing it on purpose.
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#756021 Possibly Celiac, Gi Disagrees

Posted by on 12 December 2011 - 08:00 AM

I would suggest reading Healthier Without Wheat by Stephen Wagnen. He discusses a lot about how you can test negative for Celiac Disease and still be gluten intolerant.

Eliminate the gluten and try the diet. See if it works. Give it a month. You don't need a prescription to do the diet. Or a special test. And if it doesn't work, you aren't out much money. But if it does work, you may have found the answer to a lot of your health problems. What do you have to lose?
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#754190 Restaurant Waitress

Posted by on 06 December 2011 - 08:03 AM

I think sometimes there is a lack of communication between the kitchen staff and wait staff that contributes to the problem too. And even between management and the staff. We went to one of my favorite local chains for a hamburger a couple of weeks ago because a friend of mine saw on Facebook that they were doing gluten free burgers now. When we got to the restaurant and I talked to the waiter about it, he had no clue what I was talking about. My friend pulled the facebook page up on his phone and showed the waiter. The waiter asked the chef and the chef knew exactly what he was talking about. The chef cooked my burger separately from the others and put it on a lettuce "bun." He was very serious about cross contamination. The waiter apologized for not knowing about it. But I couldn't blame him. It was obvious that management hadn't communicated to all the staff. It ended up being fine because I got a very delicious burger without getting cross contaminated and the waiter now knows what to do the next time someone orders the gluten free burger. But it easily could have gone a bad way if I had gotten a waiter that didn't care. Or a chef that didn't have a clue.
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#752567 What Are Your Glutened Symptoms?

Posted by on 01 December 2011 - 07:49 AM

I'd add depression, brain fog, fatigue, apathy and hair loss.
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#752232 Still Angry Sometimes After 2 Years

Posted by on 30 November 2011 - 01:33 PM

There is no reason whatsoever that a GI specialist should not be able to perform an endoscopy correctly. This is 2011, and this is barbaric.

I totally agree. My GI was an arrogant idiot more interested in taking my money than helping me. I told him during our initial appointment that I hadn't been eating gluten for 4 weeks. He still ordered a colonoscopy, endoscopy, and biopsy. At that point I hadn't found all the intelligent people on this board who would tell me that it wouldn't do any good to have all those tests run since I'd been off the gluten. So when the tests were run, I'd been off of it for 6 weeks. And of course, everything came back fine. And I don't even know how many samples he took.

When the nurse called to tell me that the biopsies were fine, I asked about a follow up visit. She said, "But everything is fine." And I explained about not eating wheat before the test and that I still had a positive Celiac panel. She said she would check with him and would get back to me. She even metioned that the whole office had attended a presentation about gluten intolerance the day before and how she had learned so much.

Another nurse called back and said the doctor didn't want to see me again. I explained to her, yet again, about the positive blood work and how the diet affected the test. I said that I would have gone back on gluten if I had known it was going to affect the test. She mentioned that they wouldn't have allowed that because that would be cruel. Okay, how else are you going to diagnose me again.

Twice I tried to get the doctor of follow up with me and twice he refused. Now I'm out $1,100 of my money for a test that is basically worthless. I can't even begin to tell you how mad that made me. I did make sure to tell my GP, the one who had referred me to this idiot. She was pretty upset. So maybe I helped someone from her practice getting stuck with this guy in the future.

I've learned so much more from everyone here on the board than I have from any of my doctors.
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#751759 Still Angry Sometimes After 2 Years

Posted by on 29 November 2011 - 07:21 AM

And while your analogy is like comparing apple and oranges in many respects (and for the record, it is Asperger's Syndrome, not disease - and note the correct spelling - every effort at making it sound less like like a sandwich made of rear ends is a plus,) the Asperger's community is currently fighting against the inclusion of Asperger's Syndrome into the manual as simply "Autism."

Katrala, I apologize for my typo. Usually I'm a better speller than that and I certainly didn't mean to offend anyone with Asperger's Syndrome or Autism. My point with the comparison is that at this time Asperger's is considered part of a spectrum of Autism, which acknowledges that there are people with varying degrees of issues, from mild symptoms that still allow them to live a normal life to very severly autistic people who have more severe difficulties.

But I still stand by my statement that I think Celiac is just a small part of the whole gluten intolerance spectrum and that doctors are only treating one small part of the problem, mainly the gastro issues. Many people get treated because of gastro issues, but for many of us there are other issues that are just as severe. Just yesterday someone posted on this board that they felt suicidal as a result of their gluten issues. To me that is a much more serious issue than having constipation or bloating.

From my perspective you seem to think of this as a very black and white issue. Either you have Celiac or you don't. I'm thinking of it more as a shades of gray kind of issue. I guess we'll just have to agree to disagree. :)
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#751443 Beyond Frustrated With Family

Posted by on 28 November 2011 - 07:27 AM

I feel your pain. My best friend has been diagnosed with fibromyalgia and also has thyroid issues. She's always exhausted and her muscles constantly ache. She has poor memory and brain fog. Plus, I believe she has gluten ataxia. And she's had gastro problems for years related to panic attacks. In short, she has a lot of symptoms of a classic Celiac.

She's been to a host of doctors - gp, gi, ortho, rhumetologist, etc. Not one has mentioned Celiac.

I've told her about the diet. She knows I'm totally off gluten. I've explained to her how many of her symptoms could be related to the gluten. I told her that she could probably get off a lot of her medicine if she was on the diet. Heck, I even sent her a powerpoint with all this info. I've tried. And she's "looking into it." But I know she won't do anything about it. It frustrates the h*ll out of me. I know she could feel so much better. But I also know she won't do it.

This morning I decided I'm going to pray for her. I'm frustrated cause I can't make her do anything about this. But I can pray. It's the one things I can do.
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#751438 Still Angry Sometimes After 2 Years

Posted by on 28 November 2011 - 07:18 AM

Gluten intolerance / sensitivity and celiac disease are different things.

I disagree with this. Personally, I think Celiac Disease is one part of Gluten Intolerance spectrum. To use an analogy, I think it compares to Asberger's Disease being part of the Autism spectrum.

It frustrates me that doctors don't take Celiac Disease seriously, and they don't even begin to have a clue about gluten intolerance, which is just as serious. And I personally hate the label "Gluten Intolerant." It makes it sound like a minor problem and not the serious issue it is. People (including doctors) seem to take it more seriously if you say you have Celiac Disease instead. "Disease" sounds much more serious than "Intolerance." But all the problems with Gluten Intolerance can be just as harmful as Celiac Disease.
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#749861 Thankful To Be Gluten Free

Posted by on 22 November 2011 - 02:00 PM

Like the rest of you guys, I'm having a hard time with the holidays coming up. There's lots of tempting gluteney food everywhere that I can't eat. And navigating the food at all the social events is like walking through a mine field.

But in the interest of being a "glass is half full" kind of girl, I was thinking about things I actually liked about having Celiac Disease. Things that made me thankful this holiday season. Here's a few I came up with:

1. My coupon clipping is much faster now, since I can't buy half the stuff in the insert. B)
2. My hair is slowly starting to grow back in. Yay!
3. I don't have to worry about putting on holiday pounds since I can't eat a lot of the treats that will be around.
4. I'm eating more fruits and veggies.
5. My friends and family have been so kind and supportive.

So, what are the things that Celiac Disease makes you grateful for this Thanksgiving?
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#749521 The Most Annoying Thing About Celiac Is...

Posted by on 21 November 2011 - 12:03 PM

Paying twice as much for a box of gluten free bisquick that's 2/3 the size of a regular box.

Worrying about what I'm going to eat at social event or if I can eat anything at all.

Having to become a high-maintenance person when I go out to eat. I'm not that way at all. It's hard having to be particular about things.
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