birdie22

Currently free on Amazong for kindle e-book: http://www.amazon.co...rds=gluten free

 

 

I haven't read it myself but it seems to have good feedback. Might be a good read for someone just beginning this journey.

Just a bit of background... 1. I've been gluten-free since Nov 2011 2. My celiac panel prior to going gluten-free was neg so I've been labeled NCGI 3. I live in a non gluten-free household but have my own toaster, colander, labeled condiments, etc and dinner is always gluten-free for everyone So here's my issue. About a month ago in a moment of weakness and doubt I decided to eat 5 Wheat Thins curious to what my reaction would be. It was a late afternoon "snack" so my stomach was quite empty and I anticipated having an immediate reaction of my usual symptoms...massive bloating, nausea, heartburn. While I did think I bloated a bit, it wasn't distinct and no other symptoms came along, nor did I get a migraine or canker sore days later, which again I would've expected. I was surprised that it didn't amount to much. Fast forward to tonight when I had for dinner leftover gluten-free spaghetti with a bit of butter (my own, no cc), and a sprinkle of Parmesan. Within 30 I was so bloated that I thought I'd vomit. I took a phazyme and that helped greatly. I had the same reaction with that same batch of spaghetti a few days ago (the day it was first cooked). That time I had eaten it with red sauce and a side salad with ranch and I really wasn't certain the culprit. But given the same reaction tonight it must be that pasta. It's only corn flour and water. I eat corn and corn products regularly without issue. The only thing that I can think of as to why is that hubby cooked the pasta in a pot that he had used to cook Kraft Mac n cheese for the kids a few days prior. The pot was hand washed in hot soapy water. The pot is rather new, non stick, but has a glass lid (with a seem between the glass and the metal rim) so I'm aware that this could be a source of cc. So if I did get cc exposure in the spaghetti and therefore my reaction tonight and the other night was a glutening, the why such a non response to the Wheat Thins which would've been far more gluten? Is that possible? Actually while writing this I'm reminded that back in Feb I was accidentally glutened at a hotel restaurant. I had ordered a gluten-free flatbread pizza and I had already eaten 1/3-1/2 of it when the waitress came running out to tell me she made a mistake and gave me a regular version. Again, I would've expected the worst bloating, nausea, migraine, heartburn, canker sore, etc and yet only had a minor bloat. What gives? In both case of full on gluten consumption had I not known I was eating gluten I might not even noticed the bloating at all. Given my non diagnosis it just gives me a bit more doubt.

I recently purchased MAC makeup Mineralize Skinfinish Natural. It's a pressed powder for the face. I should've researched it first but found myself in a town with a MAC counter (don't have one close by) so I bought it on impulse. I called their customer care and they said it contains wheat, soy, corn products (I'm ok with corn and soy). I found this ingredient list online and I'm guessing the wheat is probably the yeast extract.



So my question is...would you use this product even though it contains wheat of some sort? I do not have DH and don't seem to be sensitive to topical wheat/gluten. I am vigilant about only using gluten-free lip products, face wash, shampoo (as these are things that would tend to run down my face/mouth in the shower) and hand lotion. I've mostly used Bare Minerals foundation which I know is gluten-free. I haven't worried about my eye shadow, blush, mascara, etc. and haven't had issues.

I wanted to share that EOS products are gluten free, even those containing oats. I knew that their lip balm was gluten free because the packaging states that but didn't think their lotion, shave lotion, etc were because they contain oats. I had contacted their CS with feedback about packaging on a special set that included both lip balm and lotion whereby the "gluten free" statement was placed in such a way that it appeared that both products were gluten-free even though the lotion contains oats and I indicated that was confusing. Their CS replied:


JAN 10, 2013 | 01:12PM EST
Thanks for writing us. The oat ingredient in our products is certified gluten-free, so therefore our lotion is in fact gluten free. Please let me know if you have any further questions.
Regards,
Sherry J.

Diagnosed NCGS. Had full celiac panel done 11mo ago and all was negative. Had positive response to gluten-free diet. Been gluten-free ever since. I have 2 daughters. Both are tiny (as am I), one has constipation issues for sure. My dad was tested for celiac back in the late 80s or early 90s. Result was negative. My mom is pursuing testing because she had a rock bottom B12 and D levels last month and suffers from depression, fatigue, leg aches, etc. I had a follow appt with my doctor today and requested genetic testing. She wouldn't do it. Said it's useless info and that I'm best to do an elimination diet with my kids if I'm concerned (their pediatrician is aware of my diagnosis but hasn't tested girls because they are so young..5 and 2yo).

I'm located in NY. I know I could pay for genetic testing via enterolab and perhaps others. If you were me would you bother? I inquired because I think it would be a helpful piece of the puzzle. If I have genes then a)perhaps I'm a seronegative celiac instead of NCGS and b)if I have genes then I'm more likely to closely monitor and test my daughters. Is that faulty thinking on my part??