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Jai

Member Since 14 Oct 2011
Offline Last Active Jan 13 2013 08:44 AM
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#754593 Did Your Partner Support You ..........

Posted by Jai on 07 December 2011 - 10:28 AM

Hi Sorry about your struggle. I was in a similar situation where we did not have the 100% YES you have celiac diagnosis. Luckily, my husband was supportive none the less and often believes it more than I sometimes do....
I also have to family history, and symptoms, but inconclusive blood tests.
Do some research on the internet about false-negatives results, clinical trials (if you stop eating it and get better, there's your answer.)
It's too bad that he's not more supportive on his own, but work at it. Prove it to him! And I say don't wait to go gluten-free. Everyday you keep eating you're losing a day towards your full recovery!
Good luck!
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#738884 In Desperate Need Of Encouragement

Posted by Jai on 15 October 2011 - 08:18 AM

My title says it all. I'm new here. Have been helped a lot by reading for the pat few months and finally decided to join. Here's my too-long story. I apologize in advance. I'll make it point-form!
-March randomly fainted...followed by a week of dizzy spells

-March - June continued to have random dizzy spell, felt faint, light headed, had migraine with aura for 1st time ever, caught every cold, flu, bug going around.

June got sick. Couldn't get out of bed for 2 weeks kind of sick, loss of appetite, diarrhea, fatigue, weakness, dizziness, lost 10lbs in 1 week Bad. Went to ER, found nothing, but clued in that my mom has celiac and I had the exact same symptoms that she had before diagnosis. So, did the blood test, went home and immediately went gluten-free. Took over 2 weeks for results in which time I was very slowly but also very definitely improving. Results were "inconclusive" and I postively refuse to eat gluten to do biopsy!

Digestive symptoms improved quickly, but took all summer to get any sort of strength/energy back and get rid of brain fog. Don't work in summers and it's a good thing. No way I could have worked.

End of August started back to work (home daycare) which was extremely difficult and caused me to have anxiety/ sleeping problems. I overcame it within a few weeks realizing that I can do it!

mid Sept had a set back of abdominal pain. The Dr's guess was gastritis or ulcer caused by Advil. Took about a month to finally start seeing an improvement. Again, just when I though I was overcoming that I had a major bout of diarrhea last night like I've never had in my life! Today I'm left weak, exhausted and wondering where the light at the end of the tunnel is.

In 2 weeks I'm seeing a gastro for the 1st time in all of this! Gotta love our health care system here in Canada. Don't have colon cancer, so I'm not much of a priority...as I was actually told in emerg!
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