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Member Since 20 Oct 2011
Offline Last Active Jan 27 2013 06:49 PM

Posts I've Made

In Topic: Looking For gluten-free Cheese Cracker Recommendations

20 August 2012 - 01:02 PM

I totally understand your concern about your child not participating in shared snack - we're in the same boat. In the 1s and 2s classes at our daycare parents provide all food each day, but in the 3s room there is shared snack like you describe. Our son graduated to that room last week, and so far he's been fine. Not at all traumatized or upset like I worried he'd be!

The Glutino crackers are really tasty- we like the cheddar and original flavors best. Sometimes we spread them with cream cheese to make sandwiches. Other favorite lunch box items (in addition to fruits and veggies):
- Annie's Homegrown Cocoa & Vanilla Bunny Cookies
- Back To Nature Gluten Free Rice Thins Multi Seed Crackers
- Glutino pretzels (minis and sticks)
- Baybel cheeses
- Cheese sticks
- Applesauces
- Ham and cheese roll-ups
- Yogurt
- Van's frozen waffles
- Almond butter and jelly on Udi's whole grain or cinnamon raisin bread
- Annie's gummies

In Topic: Starting Preschool...what Precautions Do We Need To Take?

14 August 2012 - 10:17 AM

Our son (now 3) was in preschool full time when he was diagnosed last year, and we've had a very good experience so far. I did send in a lengthy health notice that's posted in the classrooms, pasted below. I was terrified at first of him eating other children's snacks, crumbs, playdough, etc., but with good teachers it has been totally fine. I'm amazed at how quickly he learned not to share other kids' food, and he will ask us and his teachers if food is gluten free. We're very honest with him about things which seems to have helped. He moves up to the next classroom tomorrow, where they do shared snack, and we've been explaining that he'll still eat snacks that we pack from his lunchbox. Hopefully he takes it in stride...

xxx has Celiac disease, an autoimmune disorder that prevents him from being able to eat any gluten. xxx needs to avoid all gluten completely. Even a little bit could be harmful for him. If he eats it, he could feel very ill, and even if he does not feel ill, he will sustain serious damage to his small intestine. Ingesting gluten also puts him at risk for severe stomach pain, and many other serious conditions such as nutrient malabsorption, diabetes, anemia and even certain cancers.

For that reason, he needs to be very careful that nothing with gluten in it enters his mouth during meals, snacks and arts and crafts. xxx is aware of his condition, but is too young to be able to avoid gluten on his own so we need your help and cooperation to ensure that he always stays safe at school.

Gluten is a protein found in wheat, rye, and barley. It appears in most types of cookies, snack foods, breads and cereals. Gluten is also hidden in many foods not made with wheat, rye or barley. A gluten-free food such as corn chips or nuts may be processed on machinery that also processes gluten products, or gluten may be hidden in other ingredients such as flavorings (natural or artificial). Unless a product is clearly labeled Gluten Free, or we’ve contacted the manufacturer, it is not safe for him to eat. Gluten is also found in medicines (such as pain relievers and cold medicine) and even arts and crafts supplies.

We will send safe, gluten-free food for him each day. If there is a special occasion such as a birthday, we would appreciate knowing in advance so we can supply him with a gluten-free treat similar to what the other children are getting. Please make sure he does not eat anything that we do not supply, and if other staff are helping out in the classroom, that they know not to give him anything that’s not from his lunchbox. The only exception to this rule is fresh fruit and vegetables that are cut on a clean surface; fresh fruits and vegetables do not contain any gluten. And please continue to help us to teach xxx not to trade or accept food from other children.

xxx should be very careful using play dough and finger paints for art projects and should clean his hands thoroughly afterward. If you are planning to use flour or pasta products for any project, please let us know and we may want to supply a gluten-free version for him to use on a clean surface.

If xxx does play with or eat the wrong food, please do not panic. Because celiac disease is not an allergy, he will not be in immediate danger, although he will likely experience discomfort or pain later and may sustain intestinal damage. Please take the food or product away, assure xxx that he will be okay, and let us know so that we can monitor him later that day for symptoms, and can speak to him about the mistake.

Please call us anytime with questions or concerns you may have, or let us know what we can bring into school to help xxx have a positive experience at school. Thank you very much for all of your consideration.

In Topic: Are My Kids Too Young To Be Tested?

14 August 2012 - 10:04 AM

My understanding of the genetic test is the same as StephanieL's; a positive genetic test means you have a predisposition to develop Celiac (or another of a handful of autoimmune diseases including diabetes and Hashimoto's).

My older son was essentially diagnosed at 27 months, and without a biopsy. He had been growing extremely slowly since 6 months, and then became extremely ill around his 2nd birthday (bloating, massive diarrhea, fevers, lethargy, etc) and at 27 months he was 30" and down 20 lbs. All blood tests came back overwhelmingly positive for Celiac. The pediatric GI we saw gave us the option to biopsy or not. He said he could be 99% certain our son had Celiac without the endoscopy, so we skipped it. Because he was so ill and frail we couldn't get comfortable with doing the procedure to get the extra 1% certainty.

Now, nearly a year later, we just had a followup visit with the GI. He said in recent months things are shifting further away from needing the endoscopy for an "official" diagnosis when there is a strong positive blood test. Despite not having the endoscopy, he has given our son a diagnosis of Celiac disease, given his initial strong test results, symptoms presenting at time of crisis, and response to a gluten free diet. 10 months after removing gluten from his diet (and our household) our son is 28.5" and 34.5". Still really small compared to his classmates, but he's healthy and growing. And his IgA TTG is only baaarely above normal.

Our younger son was only 8 months old when things got scary for his brother. The GI recommended that both the baby, my husband and I had bloodwork done. It showed that my husband and younger son tested positive for the gene pairing, but negative for celiac. At 12 months the baby's growth slowed way down, and at 15 months he started having GI symptoms (as well as extreme fussiness). He was only eating a small amount of gluten each day (shared snack at daycare). We did another bloodtest which still came back negative, but we removed all gluten anyway. By 18 months his symptoms went away and his growth has picked back up. The GI can't give him a positive diagnosis, but we all agree he should remain gluten free. We can revisit doing a gluten challenge when he's older if we feel we need things to be official...

In Topic: Drs Do Not Want To Test My Chidlren- I Am Positive.

20 February 2012 - 01:41 PM

My older son was diagnosed with celiac disease this fall (at 26 months old). His GI recommended that the immediate family all be screened, including our 8 month old younger son. We each had blood drawn and it showed that none of us are positive for the gluten antibodies, but my husband and younger son did test positive for the gene pairing that predisposes them to develop celiac. We'll probably have them tested once a year going forward even if they're not showing symptoms just to be sure. I'm glad we did the testing so we can be proactive.

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