My 3.5-year-old son was diagnosed with celiac disease just over a year ago. His TTG has gone from well over 100 to normal during that time, and all symptoms are gone.
However, in all routine bloodwork done since Oct 2012 his liver enzymes have remained elevated. His GI ordered some additional bloodwork last week to look into it. All the typical liver tests came back normal, including his AST. His CK level came back very high though - just over 2,300. The next step is to see a neurologist. The GI said the CK has to do with muscles and red blood cells. The GI called us at 7 pm on a Friday to tell us this and we're terrified of what it could mean.
For what it's worth, he is an incredibly athletic, energetic kid. No signs of lethargy or weakness since going gluten-free.
semilyMember Since 20 Oct 2011
Offline Last Active Jan 27 2013 06:49 PM
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