Its confusing because I have a primary doctor. She told me that the celiacs
blood test is very expensive. But she was the one that ordered the MRI of my brain and spine.
My neurologist and GI specialist work at the same hospital. Because I was diagnosed with H-pylori back in July (bacteria that causes ulcers) My GI specialist wanted to do endoscopy to make sure i didn't have an ulcers. I took a 7 day treatment for the bacteria, after it was confirmed through blood test.
When I met with my neurologist for the first time, she mentioned celiacs disease and said that she would tell my GI specialist to look for it as well when they do the endoscopy.
I'm confused and I'm kinda all alone. My father, he believes me to an extent. My stepmonster--i mean mother is another story (I'll save that for an episode on Maury) at least i still got my humor!
Anyways yeah, I don't know what I should do. It very hard to get in touch with either one of them. Maybe I should call and ask if they are looking for celiacs as well.
I wanted to give you all an update on my health. No huge changes actually. Still sick but trying my best to be strong. I had a blood test taken about 3 weeks ago to test for any autoimmune diseases (i.e lupus)came back negative. I know that celiac is autoimmune. However, I have yet to have the celiac blood panel test done. Apparently it's really expensive and they would rather do the endoscopy first. I'm not too happy about that. If I have celiac, would my ANA test be positive?? I had an MRI done of my entire spine yesterday, without contrast. I'll be going back to my neurologist for the results. Endoscopy was rescheduled for Dec 15. I'm really nervous about that. Anyone here can tell me there experience with endoscopy?
As of right now my symptoms include:
Frequent headaches (everyday!)
Sharp pains in stomach and sometimes stomach (either one everyday)
Bouncing back between diarist and constipation.
Different colored stools--sometimes dark and sometimes very light
Its been almost 6 months and I'm still suffering. Blood work, MRI and CT scan of brain is fine. I guess the next step is Endoscopy.
LOL, I actually live in Canada where for the most part health care is free. I must have spent about 500 dollar over the past 7 months.
I'm wondering if I should take the blood test first? If it comes back negative, then go through with the endoscopy? I have been gluten free for almost 24 hrs and I do feel better in terms of energy. Maybe it's just a placebo effect? I dunno.
Thank you so much for all of your responses. It means the world to me to have people who understand me or at least sympathize. Even the people I live with seem to not believe me because I "look" well. I feel like I've been to hell and back. I've never been so sick in my whole life. I'm hoping in a strange way that I do have celiacs. I know it sounds awful/offensive to say that, but I want to know what's wrong and get better. I just want my health back. I hope I didn't offend.
I have not had a blood test for celiacs. I plan on asking my doctor about that. I have an endoscopy scheduled for Nov 25th and I will ask for a colonscopy after. I'm getting a blood test done sometime this week for other auto-immune diseases (i.e lupus, scleroderma..) I think the fact that I'm black and overweight, is probably why it took so long from them to even mention celiac's. I was actually afraid to mention it because I didn't want to be laughed at again. But I definitely will be more stern with it. I believe that all of my problems are due to some sort of digestive problem. Some of the symptoms may be an indirect cause of my problem? Vitamin deficiency caused by malabsorption from whatever primary problem I have. I will definitely keep you updated. Thank you all again so much.