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Member Since 01 Nov 2011
Offline Last Active Private

Posts I've Made

In Topic: Could This Be Dh?

11 November 2014 - 01:53 PM

That looks similar to my husbands who has a bad case of it on hands & fingers. His used to be much, much worse. It's really hard to tell b/c dh really can take so many forms as is evidenced by the sticky at the top of the dh forum. At any rate, you really need to get tested since your sister has celiac & it is a genetic disease. Odds are......  Plus people with celiac disease tend to have skin issues & rashes of numerous kinds/types AND we tend to have allergies. Allergies can get much better & some even go away once we go gluten free. Just FYI. 

Please make sure your sister checks out the Newbie 101 on this board.


It's not just as simple as "thinking" you are gluten free. There are issues with kitchen items and things you might think are gluten free but are not such as Quaker oats. Celiacs have to have certified gluten free oats, grown in dedicated fields, harvested on clean equipment & processed in clean facilities. 

In Topic: Endoscopy

11 November 2014 - 12:12 PM

It's called refractory sprue or refractory celiac.


Well, if you gotta do it, you gotta do it & as long as you're going to do it why not just go for a month & cover Thanksgiving & Christmas? :lol:  :lol:  :lol:

In Topic: Could This Be Dh?

11 November 2014 - 10:33 AM

Oh, & here is the current full celiac blood panel. If the doc does any less then it's not a correct celiac panel. 
Anti-Gliadin (AGA) IgA
Anti-Gliadin (AGA) IgG
Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA 
The DGP test was added recently to the full panel.
Also can be termed this way:
Endomysial Antibody IgA
Tissue Transglutaminase IgA 
Total Serum IgA 


Deamidated Gliadin Peptide (DGP) IgA and IgG

In Topic: Could This Be Dh?

11 November 2014 - 10:31 AM

To upload photos (last time I did it) go to Flickr



Or Photobucket



And read this thread on how to post photos:



Most of us with dh have mild GI symptoms that we never consider "digestive issues" even though we still get GI damage. We also tend to test negative on the celiac blood panel 60% of the time but it's worth a shot to see. The best way for us to get a dx is a skin biopsy for dh by a derm who really knows what they're doing. It must be taken on clear skin adjacent to a fresh lesion & most derms take it right on the lesion (shaking head). As Karen said, keep eating a full gluten diet until you get the results back & are sure no doc is going to want to do more testing. No steroid usage for 2 months prior to any tests. 


Since your sister is dx'd it's entirely possible your hand rash is dh. The derm will most likely tell you it is not b/c it's not on your knees or elbows but dh can & does appear anywhere on the body. Itches like bloody mad!!!!! Bilateral in nature echoing itself on each side of the body ie the backs of both your hands. 


Are your allergy shots steroids? If so, you'll have to stay off them for 2 months prior. 

In Topic: No-Cooking Celiac Options?

09 November 2014 - 07:01 AM

I'm sorry to hear of the death in your family Ruth. {{{{{{{{{{Ruth}}}}}}}}}}}}}}}}}