squirmingitch

You're right IH she did ask about Feta cheese & we dropped the ball on answering her on that one. Good catch IH. You don't need to leave us. See --- you just caught something!

Fashionista --- no feta cheese --- sorry --- only the stinky, very hard cheeses.

There will come a day when you can have lots & lots of things. But for now, you need to toe the line otherwise the day you can have all those other things will get pushed back & back & back. Toe the line now & you get those other things sooner. I think you have seen this is the truth & are dedicated to doing so --- I just wanted to remind you of the "big picture". Not honking on you okay? Call it a gentle reminder.

Can you get your 2 second cousins with celiac disease to sit down with you & your parents & have a talk about how celiac disease is genetic & how much damage it can do if you don't follow a gluten-free diet like giving you cancer or insulin dependent diabetes etc, etc...
It sounds like your parents are in denial & your brothers are just being pesky brothers who won't take you seriously as long as your parents don't take you seriously.

O-M-G! OMG, OMG, OMG, OMG!!!!!!!!! Looking at those pictures (which are fabulous BTW; b/c they show it in such detail) are giving me flashbacks. The photos plus the fact that your mom was diagnosed with celiac ...... that poor baby has dh! And therefore celiac.

He must be miserable. I KNOW. He is miserable.

Okay, you need to get him tested right away. The sooner the better so you can get it done & get him started being gluten free. He can't go gluten-free until the testing is done but you will want the diagnosis for his benefit for the rest of his life you see. You need to see if you can find a GOOD derm who is EXPERIENCED in dh biopsy. And you need a pediatric gastro who is experienced in celiac diagnosis. I don't care where you have to drive to but you need to do it NOW. Talk to your mom's doc who diagnosed her & see if he/she can recommend the proper docs. OR take your son to your mom's doc & see what that doc says.

Meanwhile, use the coolest water he can stand to bathe in as hot water makes the dh even redder & itchier. Use witch hazel & soak cloths with it & swab him down --- it will help to cool the dh & help some with the itching. For that matter; after a bath you can just pour it on him. Since he seems to have allergies you will want to test the witch hazel first to make sure he's not allergic. I have a friend allergic to witch hazel so it does happen.

Get gluten-free everything you use on him --- shampoos, soaps, lotions --- everything.

I'm positive others will be on here to answer soon as well.

I'm crying for your poor baby. And that doesn't mean I think you're a bad parent. please understand I'm not knocking you in any way, shape or form. I just know the misery he's going through.

Most excellent info. ALL of you & I greatly appreciate it! Call me hardheaded --- go ahead --- but I think I'm going the low sal first & then try the other special diets if I continue to have problems. BUT --- I found Chobani PLAIN yogurt today!!!!!!!!!!!!!!!!!!!!!!! YAY!!!!!!!!!!!
I'm doing pretty good w/o the sals & I'm getting iodine now (enough but no ODing on it) so I'm going to run with this program for a while & see where it takes me. No itchies lately ---- 3-4 days now. I'm smiling!

I know where to find those other diets if I need them though.

It doesn't make your situation any better with your MIL but if she's been battling cancer for half a decade then she's doubtless shall we call it "cranky"? We don't feel good because of what we're going through --- imagine her situation. She can't feel good either. And she's probably more than a little jealous of you. You can go gluten-free & heal. While she is at the mercy of something no one really can control --- CANCER. I imagine she's terrified & takes it out on others. Doesn't make it right but makes it somewhat understandable. I'm just saying....

Still, I hope you can get out of that situation very, very soon!

JustNana, how long have you been gluten-free?

And yes, like Diane says ... iodine & sals. That Aleve & Ibuprofin you took for your hips likely is the reason you woke up with the itching & blisters. I will also mention that sals are cumulative.

I'm getting better everyday since I went low sal soooooooo

Actually Dani, I was just looking & boiling tomatoes is the only way as canned tomato products are high in sals if you're watching sals --- besides the fact that it would be a processed food. So you done good. But I'm not sure the acidity of tomatoes will go well for your mouth sores but if it doesn't irritate them then go for it!
Oh no, sorry to disappoint you but rice cakes are not like cake at all. They are like puffed rice smushed together & dried so crunchy is the texture & not much taste at all. It's really just something to put the nut butter on.
And you can have sunflower seed butter as sunflower seeds are a seed & not a legume.

Yes, starting out very positive this morning.

Anytime dani, anytime. We are all here for you.

May I ask what country you are in?

If you can get fresh water fish it does not have the iodine content.

Awww dani, I'm so sorry. It's that old "caught between a rock & a hard place". That's why so many of us are self diagnosed. We can't bear going back. Might as well be asking me to put a bullet in my brains. No way! But each of us has to do what we need to do.
That doesn't mean we can't hold your hand while you wait & worry & wonder.
Go do something special today. Go to some park or museum or somewhere that really turns you on. That will help get your mind off it & help you relax & renew yourself.

Yum, yum, yum!

Good for you Kimbalou! You did it, you resisted, you WON!!!!!!!!!!! Now, treat yourself with a really special yummy desert.

Or at least get a new textbook!

Then I will say congratulations to you both! And when you post such as this it gives inspiration to the newbies such as myself. Thanks for sharing.

I've noticed though that I never had much problem with pappa johns pizza. I've been rather gluten free(for the most part) for about 1/2 a year but I'm pretty sure I've had some stuff that was contaminated.

This weekend I ate 2 pizzas 1 per day and had very little if any reaction. This is very surprising to me since even a something mild as a cracker can sometimes send me running. I did drink A LOT of water when I hate the pizzas(about 4 bottles over a 30min period) and I took some vitamins while I was eating the pizza. (I repeated this the next day to see if it was going to cause any problems and it didn't seem to).

From my understanding I should have definitely had some reaction. It is possible I had a mild reaction but wasn't severe enough to cause problems. Also, the week before I was eating nothing but potatoes and apples because I ran out of gluten free products.


So I have a few questions:

1. Is there anything "special" about the bread in PJ's pizza that may make it less likely to cause symptoms?

2. What is the normal digestive reaction time when indigestion gluten to cause the intestines to go into shock(the runs!). It almost seems like the intestines are trying to flush out all the material as a normal reaction. (It's almost more like water coming out than anything else).

3. Suppose that for some odd reason I am not having the obvious reaction to PJ's as others. Am I doing harm to my gut if I eat the pizza? Obvious answer is yes but can I splurge every once in a while or am I doing more harm than good. (Gets old eating the same crap because of the limited gluten free foods around)
I'm just wondering if I don't have a physically noticeable reaction if something that is just as serious could still be happening. i.e., the destruction of the intestines just as much as any other case.

4. Has anyone noticed if certain things help reduce the symptoms when eating gluten such as certain vitamins, fruits, etc or if certain "forms" of gluten seem to have less of a reaction?

Do you believe in magic? I don't.