I have another appointment booked for the middle of may, (she is on vacation for the month of april....go figure!!) so I am going to stick to the hypo diet now until she comes back. I have taken pics of my newly raging rash to show her just how her cream worked . I will tell her that I am now totally gluten free and advise her to open her mind. Not all DH takes the same form nor does it land in the same places on the body on every person. She had looked at my elbows and knees and stated that it probably wasn't DH because it was in the wrong places. After I see her I will try adding back in dairy and soy. I am actually a bit scared to eat a huge variety of foods right now, the rash has totally freaked me out. My husband cant believe how much worse it is, he is totally on the side of the hypo diet and thinks the derm should update her antiquated education!!
It's good to hear from you Elaine. You have been much in my thoughts & I was wondering how you were doing. I'm so sorry it has worked out like this. I wish it had been something else. Question: When you said that after the trial hypo allergenic diet & seeing the deem, you went back to your normal diet. Do you mean you ate gluten? Or do you mean that you ate gluten free but not hypo allergenic?
AMEN to telling her of her narrow mindedness!!! I, personally, would never succeed in keeping my cool & being all diplomatic with her but if you are versed in those methods & can do that with her, it would be better than blowing up at her (which I know I would do!). The old saying, you catch more flies with honey than with vinegar....... If you can keep your cool, you may be able to get it through her narrow brain even if she doesn't openly admit it to you & it just might make a difference when her next patient with possible dh walks through the door. MAYBE she will take a second look & consider the possibility. It is my great downfall that I am not able to practice that kind of diplomacy & I admire those who can.
I want to tell you just how much better I am!!!!!!! 2 yrs. & 4 months gluten-free now. I haven't had a lesion or itch in days!!!! DAYS!!!!!!! My legs & ankles haven't had dh in about a month or more. I sit sometimes & just bask in the glory of not having a single itch on my entire body!!!! For a long time, I thought I would never know that feeling again in my life. A feeling that before dh I just took for granted & never thought about but after the hell of dh, I can truly appreciate not itching anywhere. I am sure I will have the occasional itch here or there but I know that I will be free of this soon. I know to you, it seems like 2 years + is inconceivable but however long it takes for you, you will make it! And when that time comes, it is SOOOOOOOOOOOO sweet!