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Member Since 02 Nov 2011
Offline Last Active May 08 2013 10:53 PM

Posts I've Made

In Topic: 1 Wk. Gluten-Free: Lack Of Appetite Normal?

08 May 2013 - 10:56 PM

iv been gluten free for about 8 years and i found my appetite to increase significantly when i went gluten-free, weird

In Topic: 49 Yo Bodybuilder Needing Advice.

08 May 2013 - 10:47 PM

Rice, corn pastas, gluten-free bread, some fruits

In Topic: Cracks/sores At Corners Of Mouth

05 March 2013 - 11:07 PM

I would still be weary that gluten could be slipping in your diet. Canker sores may seem random, but they are an immune system fail just like celiac disease is, so there is usually something that triggers them.

In Topic: Am I Just A Wuss? (Staying Home After Gluten/soy/whateverings)

05 March 2013 - 10:58 PM

I am not making baseless presumptions at all.  Let me tell you what I see and hear on this forum and if I never make another post again, so be it.  All these responses are getting old and this needs to be said.


I was as sick as it gets when diagnosed.  I went my entire life with symptoms and was not diagnosed until I was 46 years old.  That's a lot of damage. I was weak, dehydrated, 94 pounds and, as I was told, about a week away from a feeding tube.  Never want to go there again.  It was horrific.  However, I am a strong willed broad and never accept anything as final that is thrown at me.  I guess the only thing that will is death.  I decided that I WOULD get better, no matter what it took.  Maybe the fact that I stayed away from the Debbie Downers that make up the American medical system helped.  They will keep you dependent and sick, if you totally listen to them.


I went on an ultra strict gluten-free diet and made it my mission to become as savvy on this disease as Alessio Fasano, the leading Celiac doctor and researcher in this country.  I read legitimate medical literature and listened to Celiac's who had made good recoveries to see what they had done.  I already knew a lot about food because I love to cook so that part was easy for me.

I also developed an intolerance that showed up 2 years in to the diet to dairy but can tolerate small amounts of it now.  It took me 3 years to rid myself of ALL symptoms I had and there were too many to list here.  I presented with classic Celiac so suffered both gastric and neuro problems but I persevered and finally became totally symptom free after 3 years.  I do not go out to eat much at all and make and all my own food. 


What I see on this forum are some people who do not put as much effort into educating themselves on food and Celiac and how the disease works, which is very important to managing this disease well.  It's fine to ask questions but there are many who ask basic questions repeatedly so you know they are not educating themselves and reading up on it like they should.

Too many go out to eat too often and then can't understand why they need to take so much time off of work.  Really?  Every time you eat out it's a risk.  You have to accept responsibility for your actions and if you choose to eat out as much as the general population, you are going to be sick more often than you should be. I do eat out but it is not often at all and I tend to go to the same 2 places where they always get it right.  If I do sustain a hit, lesson learned and I pick up and move on......after I spend 2 days with my head in bowl, like the rest of you.

If you repeatedly take time off of work, then what do you expect your boss to say?  In today's world, you will lose your job and then complain about that.  I am never treated with suspicion because I rarely get sick anymore BECAUSE I have healed and take no unnecessary risks. I put major effort into this and I really think many more could be a lot better if they tightened up their diets, stopped eating out at risky places and stopped treating Celiac like it was a horrible disease with no hope of recovery.  It's not.  Like others have said, we have more power over our recovery than others with more horrible diseases.


FYI...I have 4 AI diseases so it's not just Celiac.  It has taken me 8 years to get where I am but I have done it. I go to work, live normally and go to the gym and don't think of myself as a victim.  There are many on this forum who have done the same thing...come back from being horrifically sick and are doing well.  It can be done, with the right mindset and some education. I realize there are those who have other health issues and working may not be feasible for them....I am in no way criticizing what they do.  But don't expect to hold down a job if you keep making mistakes with your diet and then blaming it all on being a Celiac.  And stop getting upset over what others say and do at work with regards to this. Who cares what they say?  Most people will never understand because they don't have Celiac and are clueless about food.  Better get used to that. 


Most people do well with this after awhile but there are too many whiners.  It could be a whole lot worse.  Yes, I said it, and it needed to be said.  If you are continually having bad days, time to reassess what you are doing and make improvements. Unless you are independently wealthy and don't need to work for a living, you might need to suck it up a bit and try harder.

Despite what people say, you have a good attitude towards celiac and life in general. There are many things worse than ceilac, the fact that we can make ourselves healthy with only a diet change is a luxury most diseases dont have. Some people will always find a way to make excuses.

In Topic: College Dating

05 March 2013 - 10:50 PM

I tried to have a steak at a restaurant but failed - they were all pre-marinated according to the menu for the evening - gluten, soy sauce, whatever..... :unsure:

wow thats abit harsh. Have you looked around on the menu for anything that seems safe?

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