Tarantula44

Thanks Mushroom. I definitely understand about foods causing different symptoms in people, I guess my question was, is it possible for nightshades to cause issues like swollen glands, anxiety, sinus inflammation etc at all.

Your input about it taking a while and ups and downs helped. I guess I thought because I went through the withdrawal and got better, I was just going to keep getting better. But when I had a few more rotten days after a few good ones, I thought it might have been something else causing this. But if it could still be general issues from gluten that aren't out of my system that makes sense and I'll remember that. Thanks for your input!

Oh wow! That is really interested about the false neg with Hashi's. My doc didn't diagnose me with Hashis I guess because my hormone levels were fine. I do have many symptoms though, intolerance to cold, hair is falling out, but she said lots of those symptoms can be interchangeable with adrenal issues which I do have primarily, she tested my cortisol levels and they are a little under where they should be. She also said many people have thyroid antibodies and she sort of brushed it off. That is another question of mine tho, should I be concerned about it? I've heard so many times, on this forum and in clinical studies that thyroid issues resolve on gluten-free diet. So I guess I'm just going to see if it all gets better before getting cconcerened about anything. If you find that study please post it. Seems like we're in a similar situation. I also have reynauds, I saw that in your sig. K

Hi there T, I am in the same boat (off gluten for 2 weeks now) Just finally heard today my bloodwork was negative. Because I have been off gluten, I am not going to pursue further testing. The severe gas pains, bloating, and cramping has stopped. I have lost a few pounds, and the swelling in my face has gone down. IIf I do not have celiacs, I have an obvious intolerance plus several other autoimmune diseases. However, I still get some headaches as well, and I am still fatigued. What detox drops do you take? My ND has me on UNDA numbers biotherapeutic drainage). I haven't noticed that they are helping much-but who knows when it is in conjunction with dietary changes. What are you putting in the smoothie? Have you considered cutting out dairy as well? I cut out both gluten and dairy. I had a little dairy yesterday and ended up with D all morning. I realized that both are affecting me!

Hi Kathryn,
From reading this forum and other articles it seems lots of folks have negative blood tests but can still be positive. The testing sounds kinda nutz and not so reliable, I think many have realized that they feel better off gluten and so they should stick to that. I am off dairy as well, I eliminated that along with the gluten. I am on the UNDA drops as well! 2, 20, 243. I started them 3 weeks ago, and am just starting to notice these detox symptoms. Today was one of the worst days I think I've ever had! The fatigue and muscle and bone pain are pretty horrific. I guess it's nice to know something is working if this is detox. I've been doing green smoothies every morning, they consist of leafy greens (spinach, kale or chard) and fruit and water: http://greenforlife.com/ I think I may be over doing it. I am going to take a break from the smoothies for now, until these symptoms reside a bit. Thanks for your reply, so glad you're feeling better and good luck with the rest. t.

What do you mean "total IgA was negative for celiac?" Was it normal?

You could try the salivary testing but it's not as well validated for celiac as blood tests. You can get a similar answer by trying the diet.

Yes, my blood test for total IgA was normal. I looked at my tests yesterday and also had the transglutaminase test done and that was neg for celiac too. I have been gluten free for three weeks now and dairy free for two weeks. I am noticing a big improvement in digestion, and other improvements too, like chronic swollen glands have subsided, and sinus inflammation is slowly getting better but not gone yet. This is hopeful to me! Thanks for your help, I really appreciate it!

Yes! I have heat intolerance too, I have a hard time taking a shower too. I have adrenal issues (low cortisol) and this is a symptom from that I am pretty sure...which is hopefully all coming from gluten. I am new to this whole gluten intolerance thing, still trying to figure things out. I have blood sugar issues and I know when I am getting hot (too much clothing, hot shower, etc) the low blood sugar shaky feelings and anxiety get worse, I also see stars sometimes from heat. I'm thinking (hoping!) this all gets better off gluten. I have only been gluten-free for 3 weeks.