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Member Since 28 Nov 2011
Offline Last Active Nov 05 2012 02:05 PM

Posts I've Made

In Topic: Anyone's Doctor Diagnos Them On Symptoms Alone?

29 October 2012 - 09:05 PM

It's frustrating! I feel like any other medical issue doctors go with the "if it walk and talks like a duck, it must be a duck!" but not this. You HAVE to have the antibodies to have a clear diagnosis. My dermatologist nearly appologized for not being able to give me the official diagnosis due to a negative biopsy. Some day the medical field will wise up, I hope!

In Topic: I Think I Have Dh

29 October 2012 - 08:03 AM

Thanks guys! I took some Benadryl before bed last night which is always a risk on how it'll effect me.

I prefer Zyrtec personally, my kids take it daily for allergies. It doesn't make me sleepy and it last for 24 hours. There is also a perscription version if you need something stronger.

Good luck! When ever I accidently get gluten it just takes some time to heal.

In Topic: Good Dermatologist - Finally!

29 October 2012 - 07:53 AM

Thanks to you both! It's always good to know your not alone!

Really good scratcher - It's been an adjustment for sure. I have two kids, one of which is also allergic to eggs, milk and soy so adding all things gluten to that list has been a challenge to say the least. I have found I need to be super strict with the diet, any little trace amount will cause a setback. My skin started to heal pretty quickly but It probably took a good 6 months to really see a difference in things like my energy level and just over all well being. For the first time in years I feel good. LIke this is how normal people go through life, not feeling like crap all the time. I'm not happy about the diet that's for sure, still get down about it from time to time but I'm finding it a necessity so what can you do but just move on the best you can.

In Topic: How Do U Handle Cooking For Your Family With Kids?

26 October 2012 - 12:34 AM

I deal with some pretty picky eaters! When my son was about 3, a play date offered him some cotton candy, he turned it down! Candy! He's been refusing foods since he was old enough for solids.

I highly recommend the books by Ellen Satter. You can find them on Amazon. "How to get your kids to eat but not too much," is I believe one of the titles. It's a slight variation of "this is what's for dinner, eat or go hungry". Make one meal and put it all on the table at one time. Make sure there is something on the table they will eat, even if it's just a slice of bread (gluten-free possibly?). You don't get up and get them anything else, there should be enough choices on the table for them. And that's pretty much her main point, it's got to be their choice. You can't force them to try a certain food, that will just make it worse. It will take time but if they know it's their choice they are more apt to try (hopefully).

I also discovered my son prefers his veggies crunchy and not cooked. Fine, saves me time and less pans to clean. We do a lot of carrot sticks, sliced red and yellow peppers, cucumbers, green beans, all raw. Not to say I don't serve cooked veggies as well but it's one or the other, I'm not serving both at the same time to accommodate him.

We also deal with multiple food allergies. I have another child allergic to eggs, milk and soy. We don't stray for the core set of meals very often either. It does get a little boring. Shopping is mostly the outside of the grocery store, fruit, veggies, meat. Very little processed foods. Every now and then if I want something fancy I know the kids won't eat, I'll simply put out some safe hot dogs at the same time and ask them if they want any of the other dish. They usually will try a little.

My son is now seven and is starting to get better and try new foods a little bit more and not put up such a fuss over dinner, however my 5 year old is starting to put up blockers on some foods that she previously would eat.

In Topic: Medication Other Than Dapsone? Please Help!

25 October 2012 - 11:02 PM

My dermatologist recommended Benadryl for the itch. Don't think it will have much effect on the rash per say but it should help reduce the itch at least. He gave me a prescription for a Benadryl type med but personally I prefer Zrytec, doesn't make you as sleepy and you can take it daily with out too much trouble.

You probably already know this but he also said a sign of DH is that it doesn't respond well to any steroid creams, unfortunately.

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