researchmomma

I had an enlarged spleen only once (that I know of) and that was when I developed ITP (thrombocytopenia). If she has that, her blood and platelet counts will be low because the spleen is destroying platelets... it's a rare disorder and unlikely but if she is at anemic it could be something to give a quick look at.

I hope she feels better soon... Poor kid.

Thank you for replying. The mono was negative but her Free T4 is low. More testing. Thanks again. I don't think that swollen spleen is from gluten. I think it has something to do with whatever she is fighting. I hope.

Yeah! That is great. There are lots of recipes for gluten-free brown bread! Google it. My fav is from www.glutenfreeonashoestring.com

Welcome to the Board and you are right, this is the place to vent.

Someone posted about the emotions that one goes through with a Celiac Diagnosis.  It was well stated but I can't find it. Maybe someone else can.

You will find that you will try different products that others rave about and you may not like it.  For example, we like Synder's gluten-free Pretzels.  My daughter's friend asked me for a bag for her birthday because she likes them better than gluten pretzels, lol.

You are in mourning. But once you start to feel better, you will pick yourself up and find what works for you in this gluten filled world that is slowly adding gluten-free options to its repertoire.  

Loves2travel is right....I wasn't a baker before my gluten-free life.  And now...I am.  It took awhile and I don't know why I decided to take on the challenge, but I did.  On Sunday morning, I made gluten-free Cinnabon Clone and it was so good.  We had gluten heads and GFers try them and the gluten folks didn't even know they were gluten-free.  They were that good.

So hang in there, grieve, get your official dx (stay on gluten), get off gluten and join the world of health.

We will be here, so ask away.

My neighbor's son was diagnosed at 18 months.  Because he was so young, he doesn't "miss" things like the process foods that my 12 year old daughter miss.  So that is one positive. I know your heart breaks for her but it will be OK. There is an adjustment period for this and we are watching a friend go through it right now.  You will slowly figure out ways to be prepared for birthday parties, etc.  And We can help.

There are lots of good posts here.  Use the search bar to find topics on dealing with Pre-school snacks and playdough, for example.

Welcome to the Board and let everyone know what your questions are. We will help us much as we can.

I pretty much said the same in Jodie's other thread. I completely agree he needs at least a full celiac panel.

Ahhhh thanks