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Member Since 05 Dec 2011
Offline Last Active Jan 11 2013 09:13 AM

Topics I've Started

Potential Gluten Reaction: Enlarged Spleen

10 January 2013 - 09:26 AM

Hi, my daughter's reactions to being glutened seem to be getting more severe. We are very strict and cautious but we travelled recently and I left her for one hour with my relatives and she got glutened. She is 13 years old and when she is exposed now, she gets horrible stabbing pain in her side near her appendix which is her mesenteric lymph nodes as evidenced by CT. This is how we know she gets glutened and then come all the other symptoms: constipation, lethargy, paleness, overall malaise. LIke she has the flu.

This time, it was bad. She had the stabbing pain and now her abdomen and back (bilateral flank pain) occurred.

She is being tested for mono (UTI and kidney infection ruled out) and we should have the results. However, I don't think it is mono. She tested positive for strep (maybe that could cause the enlarged spleen?).

Anyway, I am just wondering if anyone else has a glutening response of enlarged spleen. It seems pretty out there but thought I would ask.


Things People Say To Celiacs

18 February 2012 - 11:28 AM

This is so funny. Go to Things people say to Celiacs and scroll down to the video.

It is a quick watch and super funny.

I will add to the ridiculous questions and statements:

My mother said to me "well she can eat white bread cuz it has less gluten, right?".

Your Favorite Blueberry Muffin Recipe?

09 February 2012 - 09:29 AM

Hi All, I have been searching for a good blueberry muffin recipe. I can't believe I didn't think to post here and ask all you fabulous bakers.

I want to be able to freeze them after they are cooked for quick breakfast in the morning.

Thank you in advance!


Is This Antibiotic Gluten Free (I Can't Find Info)

01 February 2012 - 08:19 PM

my daughter was prescribed oral suspension amoxicillin for pneumonia.

It is by West-ward pharmaceuticals and the tutti frutti flavor is making me nervous.

Anyone have experience with this one? CVS didn't know. Website: nothing.


Enterolab Results In

26 January 2012 - 03:48 PM

Well after 2 months on this forum and almost 13 years of bad health, I think I have a little confirmation of gluten intolerance in my daughter. However, the diet has been the best confirmation.

Her IgA results are somewhat negated because her total IgA serum is low 43 and normal is 68-300 (this was checked twice) but Enterlab said to call them when the results are in so they could help interpret. I dont' think I need to do that.

Gluten Sensitivity Stool Panel
Fecal Anti-gliadin IgA 7 Units (Normal Range is less than 10 Units)

Fecal Anti-tissue Transglutaminase IgA 11 Units (Normal Range is less than 10 Units)

Quantitative Microscopic Fecal Fat Score 490 Units (Normal Range is less than 300 Units)

Gluten Sensitivity Gene Test
HLA-DQB1 Molecular analysis, Allele 1 0501

HLA-DQB1 Molecular analysis, Allele 2 0501

Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)

Isn't DQ1,1 also associated with Celiac Disease???? Any comments and help welcome!