Hi, my daughter's reactions to being glutened seem to be getting more severe. We are very strict and cautious but we travelled recently and I left her for one hour with my relatives and she got glutened. She is 13 years old and when she is exposed now, she gets horrible stabbing pain in her side near her appendix which is her mesenteric lymph nodes as evidenced by CT. This is how we know she gets glutened and then come all the other symptoms: constipation, lethargy, paleness, overall malaise. LIke she has the flu.
This time, it was bad. She had the stabbing pain and now her abdomen and back (bilateral flank pain) occurred.
She is being tested for mono (UTI and kidney infection ruled out) and we should have the results. However, I don't think it is mono. She tested positive for strep (maybe that could cause the enlarged spleen?).
Anyway, I am just wondering if anyone else has a glutening response of enlarged spleen. It seems pretty out there but thought I would ask.
Well after 2 months on this forum and almost 13 years of bad health, I think I have a little confirmation of gluten intolerance in my daughter. However, the diet has been the best confirmation.
Her IgA results are somewhat negated because her total IgA serum is low 43 and normal is 68-300 (this was checked twice) but Enterlab said to call them when the results are in so they could help interpret. I dont' think I need to do that.
Gluten Sensitivity Stool Panel
Fecal Anti-gliadin IgA 7 Units (Normal Range is less than 10 Units)
Fecal Anti-tissue Transglutaminase IgA 11 Units (Normal Range is less than 10 Units)
Quantitative Microscopic Fecal Fat Score 490 Units (Normal Range is less than 300 Units)
Gluten Sensitivity Gene Test
HLA-DQB1 Molecular analysis, Allele 1 0501
HLA-DQB1 Molecular analysis, Allele 2 0501
Serologic equivalent: HLA-DQ 1,1 (Subtype 5,5)
Isn't DQ1,1 also associated with Celiac Disease???? Any comments and help welcome!