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Aly1

Member Since 10 Dec 2011
Offline Last Active Oct 16 2013 05:53 PM
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#779486 Is Gluten Bad For Everyone?

Posted by Aly1 on 08 March 2012 - 07:29 PM

I know this post hasn't been active for a week but I have to say, I have been quite swayed by reading "Wheat Belly" (can't recall the author - a physician - but it is a current NY Times best seller so it shouldn't be hard to find). He discusses the changes in wheat through selective breeding etc and how in the last 50 years wheat has changed *dramatically*, and illnesses that appear to be linked to wheat consumption have also risen dramatically during that time. We are NOT eating the same wheat our grandparents were.

The author had a gluten intolerance, and discusses a test he did on himself; he got ahold of some "original" wheat, apparently very hard to find but he found a source, and ate some bread made with that, and had no reaction. Then he had bread made with identical ingredients except for regular current-day wheat, and he got totally ill. Anecdotal, yes, but I will assume he wasn't lying for the purposes of dramatic effect.

I highly recommend the book, it has changed my perceptions of how we are handling our food supplies in this country... I can't remember the sub-title to the book, but it really makes it sound like a diet/weight loss book - I guess he did that to sell more copies - but it is an excellent read and should not be mistaken for diet fad fluff.
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#770095 Critical Replies

Posted by Aly1 on 01 February 2012 - 03:54 PM

I thought you had to crush the B12 and sprinkle it into your bra as powder? :D


I tried that. My boobs got bigger but I was still feeling lousy.
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#769968 Critical Replies

Posted by Aly1 on 01 February 2012 - 07:25 AM

Oh and thanks for the heads up that the B12 should be between my toes! I will give that a try. :)
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#769834 Critical Replies

Posted by Aly1 on 31 January 2012 - 06:35 PM

One other point I forgot to make: The whole thing about backing every little thing up with official research. Research in the area of GI is really far behind what many of us on here already know. If we only followed published research, then those of us with NCGI would not have "existed" before 2009, and largely still don't if you look at the medical community at large. So while I always appreciate having research to back things up, for me I think there is a grayer area where people's personal experience is really valuable. If all I wanted was PubMed docs I could get that elsewhere. What I am here for is living breathing individual experiences that fill in the blanks where current research is lacking. Official research is icing for me, not a requirement...and if someone tells me that slipping b12 tabs into my bra each morning will give me a boost, I'll be sure to research it myself before proceeding! :)
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#769830 Critical Replies

Posted by Aly1 on 31 January 2012 - 06:25 PM

Hmmm, I am relatively new to the board but I have to say I kind of agree with AVR1962. Seems just recently there's been quite a lot of slightly biting posts. I've seen them and the negativity has bothered me but I generally prefer to avoid such things online so I stay out of it and don't reply. There are lots of reasons why people might...annoy...with their over-the-top anxieties or baseless claims (which are being offered from a genuine place of trying to help) but it seems to me that sometimes there are people who are all too ready to pounce with the claws out instead of in. There are gentle ways to tell someone they're wrong (and don't get me wrong, I've seen that in action too!) but just lately there's been some thinly veiled yuckiness on here. Which I only say because I have found this to be the singularly best forum I've been a part of with the most amazing people in it. It's a shame when people inject a yucky feel to their replies, of being superior or what have you.

I hope you can get the gist here of what I'm saying, I am having a hard time finding the right words. Yuckiness isn't quite right ;).
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#769464 Alcohol...why The Issue Now?

Posted by Aly1 on 30 January 2012 - 10:38 AM

He does have a strong opinion but I dunno, he has a patient sitting in front of him who's pretty messed up for her age, who he believes if we make some changes will be able to get out of her wheelchair and resume a normal healthy life...his way of getting her there is to create as pure an internal environment as he can. Pure foods in, good supplements, the body begins to heal itself. Surely no one here is trying to argue that alcohol is healthful (other than as a stress reliever, which if course has some value if really needed, which is not the case for me)?

Please keep in mind the context of this doc's opinion is important: I am *only* talking in the context of a really sick person - not your everyday person (or celiac) who is stable in their health, there's a big difference. I know in the context of this forum you will read that his opinion on alcohol is about celiacs and alcohol but it's not - he is NOT a celiac dr - he is an internist who specializes in medical mysteries. His patients are people who all check out as "healthy" in mainstream medical testing but who are terribly ill nonetheless. They come to him when modern medicine fails them. So, derive from that that a lot of them are people who are very sensitive and get sick from things in their diet or environment that would not harm the average everyday person. In that context I don't think he's being over the top - he's advising a course of conservative lifestyle to give the body a chance to heal, while the person figures out what things are making them sick in the first place. And as I said before, 10 years of being told by docs they can't find anything wrong with me to put me in a wheelchair, but there I was, and very weak and ill too - he's the only doc that said "I think I can help you" and HAS. Where would I be in my healing if I'd ignored his advice to go gluten free?? (I was convinced that would not have much impact on my health. Good thing I put him in the driver's seat!!) Because of that, his opinion wins in my book. I don't have to like it. :)
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#769271 Alcohol...why The Issue Now?

Posted by Aly1 on 29 January 2012 - 11:03 AM

I'm just saying what my doc said to me. Can't post studies to back it up because I only have his opinion. Which I value because he has helped me more than any other doc out there and has already made a huge improvement in my health. So if he says he thinks it's a bad idea for me in my current state to have a weekly drink, I am just going to go with it, as his judgment thus far has been excellent.
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#768800 Help!

Posted by Aly1 on 27 January 2012 - 03:23 PM

Don't graze in the yard. You have to ingest the gluten for it to hurt you. Walking on it is totally safe.


Ha, this is a good point... But. If the dogs track it in and say, jump on the sofa, and you out your hand there then touch your face...it is theoretically quite possible.
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#768766 Help!

Posted by Aly1 on 27 January 2012 - 02:22 PM

My hubby gets frustrated too - he just wants a "normal" life. Hmm, don't we all!

Sorry you got glutened in the strangest of ways!!
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#766770 Test Results: 8 Months Gluten-Free

Posted by Aly1 on 21 January 2012 - 05:51 AM

I would send a note to the doc and let him know the staff informed you that you do not have celiac. This is important - imagine someone else with less knowledge being told that - that misinformation could really do some harm and that staff member needs to be educated. The doc is the person to do that, they won't really listen to you...
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#763357 Hubby Doesn't Want Me To Talk About It Anymore

Posted by Aly1 on 09 January 2012 - 05:55 AM

Thanks for your replies, I didn't have the energy to respond yesterday. Most of the time when hubby glutens me it's been of my own doing eg. because I've chosen a product without investigating all the ingredients. I've learned that Big Time this month, I have to be more careful. The only thing he's done that I question was cook my dinner right beside a couple of cans of pumpkin that were dusty with flour (from the store). But he is learning and will do whatever needs to be done, he's just that kind of guy.

My other area of issue - probably a bigger one - is having a toddler who I give bread etc to. I really didn't think it was a big deal till yesterday when I handled her bread an a mi it's later realized I was resting my chin in my hands so my fingers were right by my mouth - duh. We are going to see about getting her tested and then get her gluten-free too.

The good thing is Hubby is going gluten-free starting today! He has episodes of food-related digestive issues and finally decided to do a one month gluten-free trial. It would be nice if we just had a gluten-free household, things would be so much simpler.

It was good to be able to come here and vent. I know logically that I can't expect my husband to share all my interests (esp when this one is all about me!) but it still stings. I will just have to spend more time on this board. And as I feel better I'm sure I will have more energy to develop other interests! That is just a dream now. All my spare energy goes toward my toddler and trying to keep my place clean. But I have a list of things I want to do when I'm well enough! Hopefully before I'm eighty!!
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#762400 I Got Sick On Bob's Red Mill gluten-free Apple Muffin Mix

Posted by Aly1 on 04 January 2012 - 07:41 PM

I do have an issue with certified gluten-free oats so that must be it! Thank you!
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#761691 I Had Hoped To Never Return To This Place

Posted by Aly1 on 02 January 2012 - 03:16 PM

Ok. I just went off on you and as soon as I hit Post I regretted the intensity of it. My apologies, but your post really hit a nerve due to my own experience and having to fight off an intense depression myself. Reading further down I see you write again in a different tone. I should have read before I went off on you. You really can do this you know. I get it that you don't want to, but you can.
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#761690 I Had Hoped To Never Return To This Place

Posted by Aly1 on 02 January 2012 - 03:13 PM

You know someone will look after your kids?? Wow. That may be the most stunningly selfish thing I have ever heard. I guarantee they will not see it quite the same way.

I've spent years in pain and in a wheelchair, with no diagnosis, and was only able to work two days a week, totally isolated other than my guy at the end of the day (Thank God for him.) I was so ill I had to decide which kitchen counter I would clean that day - IF I could manage it - and doing so would leave me exhausted and too sick to do anything but lie down with my eyes closed. I lost my thirties entirely. Was I depressed? Damn straight I was depressed. But I was never so selfish about it that I stopped considering the effect I had on other people.

You have kids. It's time to step up to the plate regardless of how you feel. YOU HAVE EVERY RIGHT TO BE ANGRY. But you do not have the right to wallow indefinitely. Pick yourself off, give the finger to the universe for doing this to you, then do what you need to do to get as healthy as you can for your kids. You decided to be a parent, it means putting them first. Keep trying to find a therapist until you do. Block out the feelings of helplessness and depression, you've already spent enough time on those. It's time to do what you have to do as an adult - which means taking care of yourself even if you don't want to.
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#761044 Raynaud's Issues Or Neuropathy Issues?

Posted by Aly1 on 31 December 2011 - 05:25 AM

Hi Jen Z,

Your mention of the cold symptom is interesting and I'm curious to see if others write in about it. I've had pretty severe neuro issues for about a decade (have only been gluten-free for 3 months). Numerous times I'd have icy feet that I just could not warm up without a heating pad. The past two weeks I was glutened badly and I've been horribly cold; the other day I was wearing 2 long sleeve shirts, long underwear bottoms, jeans and was under 3 blankets and could Not get warm. When I checked our indoor thermometer it was 70 degrees! So although I've never read that anyone else has this particular reaction, it seems it's one of mine!
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