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kb27

Member Since 17 Dec 2011
Offline Last Active Nov 08 2014 07:08 AM
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Posts I've Made

In Topic: Do You Have A Network Of Other Parents Of Celiac Kids?

08 November 2014 - 07:09 AM

We don't know anyone else in person who has a kid with celiac, but we do have friends who have been very supportive.  They make sure that there is food our son can eat when we go over to visit.  And my son's friends know that he can't just eat whatever they are having.  He's older though (11 now, but 8? when diagnosed).  We have found an active ROCK group in our "area", but it's in the city 3 hours away, so I haven't actually met the people posting on their facebook page, for instance.  

 

2 is hard - there is food everywhere.  My suggestion would be to show up at playdates with snacks to share with the other parents and kids.  Ask if they would mind putting away the cheerios during the playdate, so that your child could eat what everyone else is eating, too.  And hope that over time, your friends "get it".  Sometimes you just have to forceful and explain what gluten does to your child.  Not everyone knows what celiac is or that minute amounts of something (like the cheerios everywhere) can make your child sick.  

 

You don't need to have friends with celiac kids or gluten-free kids to still have a safe and accepting environment for your child, but you do need friends willing to support your efforts to keep your child safe.  We have found most places we take our son have been great (school, day care, friends' homes, relatives houses, etc.), and some want to be helpful but need help knowing how to do that.  Sometimes, just showing people what is and is not ok (and lots of "regular" foods are gluten-free) helps them to know what to have on hand when your child comes over to play.  Maybe the next time you have everyone over, put out some yummy gluten-free snacks that fall into the "regular foods" category (fruit, veggies, cheese, chips & salsa, etc.) so that people start to realize that you don't need to go to great lengths to accommodate eating gluten-free, but you do have to pay attention to it.  

Good luck!


In Topic: One Child Celiac, The Other Not

05 June 2014 - 12:07 PM

We have one kid with and one without celiac.  We keep a gluten-free home, but kid #2 (non-celiac) can eat gluten whenever he is out (school lunches, etc.).  

 

When we got everyone screened for celiac, after kid #1 was diagnosed, we also had kid #2 (and me) have the genetic test done.  Although I have one of the celiac genes, kid #2 did not have any of the ones they tested for (DQ2 and DQ8).  Although I know sometimes people can get celiac without these genes, it is rare, so we are assuming kid #2 is safe.  If we see symptoms, we'll get him checked.  Otherwise, I'm the one who is going to be checked every few years, and I have to make myself eat enough gluten ahead of time to make the test accurate. 


In Topic: Cheezits Or Goldfish?

26 May 2014 - 08:40 AM

Schar cheese bites taste like Goldfish & Cheezits, too.


In Topic: Anyone Get A Fever When Glutened?

25 March 2014 - 09:51 AM

Thanks for the reply.  I think he probably had both the glutening and some illness at the same time.  The fever and full-body rash seemed a bit at odds with the standard GI issues.  He's not on any medications, but I suspect the same kind of thing could be at play - the immune response to the gluten exacerbated other conditions. 

 

And he is better now, although he ended up missing 2 days of school and the last day of camp. 


In Topic: Anyone Get A Fever When Glutened?

18 March 2014 - 03:11 PM

Thanks for the replies. He was only at camp for 24 hours (it was just a weekend thing), so I can't just blame the kids. Of course, he spends all day with them at school during the week, so it could still be a bug.

Now he's totally itchy all over. This is weird.