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Member Since 17 Dec 2011
Offline Last Active Mar 10 2015 04:50 PM

Posts I've Made

In Topic: Home Ec/ Cooking Class With Middle Schoolers - Any Ideas?

22 February 2015 - 12:17 PM

Thanks for your comments.  We don't have a 504 plan - the school said they could take of everything without one.  He does have a health plan on file.  I like the idea of asking them to have the non-cooking part of the cass taught elsewhere.  Then we wouldn't have to worry about what the other classes are doing in there. 


I agree whole-heartedly that kids should learn to cook.  I think it's even more important for celiac kids to learn to cook!  We have been teaching our sons at home - I don't think he will be missing anything by skipping the school cooking section. 


Here is what the school has offered so far:

The guidance counselor suggested he could just take another class (which is my preferred option!).  But then the principal said she would like him to take the rest of the class and he would be excused on days in which the class is cooking. That's what is in his file right now.  I am concerned that he also needs to be excused on the days other classes are cooking, too, for the reasons many of you mentioned above - gluten in the air.  I pointed this out but have not heard any more back.  Maybe I just need to contact the teacher and see how many days kids are "cooking" and how many they aren't.  If he's going to be pulled half of the days, he might as well take art or music.  If it's just 2 weeks, then that's not so bad.


Honestly, I have heard this class is terrible (cooking is only one small part of it), and thus I think my desire to figure out a way to make it work is not very strong.  I don't think he would be missing much in terms of curriculum, and then we wouldn't have to worry about him getting sick all the time. 

In Topic: Confirmed Dx And Schools?

07 February 2015 - 09:14 AM

It really depends on the school as to whether or not you need an official diagnosis. 


Our elementary school was willing to work with my son even without a letter from the doctor.  We had no problems with any teachers, from art to after-school care.  They were very accommodating.  We did not attempt to have him eat at the cafeteria.


Now he's in middle school.  There, I think the letter is more important.  He had to get a note from the doctor to get accommodations in the cafeteria.  And then we needed another note specifically relating to cooking class (because the first note just said he couldn't eat gluten).  


We did not get a 504 plan set up because the school seemed able to just work with a doctor's note.  

In Topic: Do You Have A Network Of Other Parents Of Celiac Kids?

08 November 2014 - 07:09 AM

We don't know anyone else in person who has a kid with celiac, but we do have friends who have been very supportive.  They make sure that there is food our son can eat when we go over to visit.  And my son's friends know that he can't just eat whatever they are having.  He's older though (11 now, but 8? when diagnosed).  We have found an active ROCK group in our "area", but it's in the city 3 hours away, so I haven't actually met the people posting on their facebook page, for instance.  


2 is hard - there is food everywhere.  My suggestion would be to show up at playdates with snacks to share with the other parents and kids.  Ask if they would mind putting away the cheerios during the playdate, so that your child could eat what everyone else is eating, too.  And hope that over time, your friends "get it".  Sometimes you just have to forceful and explain what gluten does to your child.  Not everyone knows what celiac is or that minute amounts of something (like the cheerios everywhere) can make your child sick.  


You don't need to have friends with celiac kids or gluten-free kids to still have a safe and accepting environment for your child, but you do need friends willing to support your efforts to keep your child safe.  We have found most places we take our son have been great (school, day care, friends' homes, relatives houses, etc.), and some want to be helpful but need help knowing how to do that.  Sometimes, just showing people what is and is not ok (and lots of "regular" foods are gluten-free) helps them to know what to have on hand when your child comes over to play.  Maybe the next time you have everyone over, put out some yummy gluten-free snacks that fall into the "regular foods" category (fruit, veggies, cheese, chips & salsa, etc.) so that people start to realize that you don't need to go to great lengths to accommodate eating gluten-free, but you do have to pay attention to it.  

Good luck!

In Topic: One Child Celiac, The Other Not

05 June 2014 - 12:07 PM

We have one kid with and one without celiac.  We keep a gluten-free home, but kid #2 (non-celiac) can eat gluten whenever he is out (school lunches, etc.).  


When we got everyone screened for celiac, after kid #1 was diagnosed, we also had kid #2 (and me) have the genetic test done.  Although I have one of the celiac genes, kid #2 did not have any of the ones they tested for (DQ2 and DQ8).  Although I know sometimes people can get celiac without these genes, it is rare, so we are assuming kid #2 is safe.  If we see symptoms, we'll get him checked.  Otherwise, I'm the one who is going to be checked every few years, and I have to make myself eat enough gluten ahead of time to make the test accurate. 

In Topic: Cheezits Or Goldfish?

26 May 2014 - 08:40 AM

Schar cheese bites taste like Goldfish & Cheezits, too.