Jump to content

Follow Us:  Twitter Facebook RSS Feed            




   arrowShare this page:
   

   Get email alerts  Subscribe to FREE Celiac.com email alerts

 
Celiac.com Sponsor:                                    


anniej55

Member Since 26 May 2005
Offline Last Active Jan 22 2006 07:04 AM
-----

Posts I've Made

In Topic: Mass Doc

21 January 2006 - 06:41 PM

I Call my Gastro the "idiot" I was going to him for over a year, he put me through every test you can think of, kept telling me if I just did a cleanse I would feel better, 3 times he had me cleanse, still sick as a dog, then he said to try a antidepressant. I went back to my PCD he did the celiac disease blood test, came back positive, I called the idiot gastro [while waiting for results] to ask him if he did a biopsy the last time he had me in the hospital for tests, he said " no, because celiac is a problem with diarrhea, nothing more, no stomach pain at all" I just hung up the phone. one year of severe pain, test after test, not one bit of help..his name is Dr. Crimaldi, It scares me to see his name on a recommended list



Hmmm ... I see Dr. Crimaldi also. He did the correct blood tests and wanted to do a biopsy, but I opted to put it off due to other pressing medical conditions. I find him very thorough, knowledgeable, supportive and caring. He explains everything - to the point of going over the allotted appt time - and even called me on a Saturday to give me the results of a (different) biopsy. He never ever said that celiacs was a disease of diarrhea; he in fact stressed that I would get a stomach ache if I ate the bagel I was craving. I don't know why we have such a different point of view on him. All I know is that I've done my research, came in with questions and scary concerns and he answered everything I asked him. I even asked other people about him (being thorough) and found that he came hightly recommended.

In addition, he sent me to a hematologist to confirm his suspicion of a potentially life threatening blood disease. Yes, I have it and I am now being monitored monthly. No other doctor, including the one that did surgery on me which caused me to bleed profusely, ever suggested that I had a problem.

I wish you well in your search for a physican

In Topic: Help - Sos

03 August 2005 - 03:13 AM

The absolute diagnostic tool is the EGD and the biopsy of the villi. If this hasn't been done I would suggest it be scheduled.

<{POST_SNAPBACK}>


Hi,

I have a biopsy scheduled for September. I don't know about the EGD - it was mentioned. I haven't had any problem eating normally ... but I know that it might not be affecting my stomach at this point in time. I think my biggest mistake was taking my primary care's diagnosis and not calling the GI for the blood results (in May). Come to find out, she didn't even know what a tTg was ....

thanks for the advice. I'll let you all know what the results are.

Ann

In Topic: Help - Sos

28 July 2005 - 05:56 PM

you may have other food intolerances. It is worth keeping a food diary and tracking any and all reactions (or none) from whatever you eat. You may see a pattern start to emerge. Just a thought.

<{POST_SNAPBACK}>



I had actually been considering doing that before the GI doc told me it wasn't celiacs. It was definately something gluten-free doing it to me .... I was eating the english muffins and corn muffin (George's). Rest of the time it was meat, potatoes, etc. Normal stuff. Feel way better now .... either that or I'm trying to convince myself of it :D

In Topic: Help - Sos

28 July 2005 - 04:38 PM

I think she said she gained weight eating Gluten. NOT Gluten FREE. When I ate gluten I gained so much weight. I couldn't lose weight at all no matter how little I ate, because my body was reacting badly to the gluten.  Since I've been gluten-free a little over 2 years now, I've lost about 80 pounds altogether and the only thing I'm doing different is eating gluten-free.

<{POST_SNAPBACK}>


I stand corrected - she gained when eating gluten. Thanks for pointing that out. I gained when I ate gluten-free .... and got bloated. Now that I'm eating normally the bloating is gone ..... leave it to me to be weird.

In Topic: Help - Sos

28 July 2005 - 04:35 PM

It wasn't that he wouldn't diagnose it - he felt that the Ttg was too low to diagnose it, but would do the biopsy to double check. He was confident that it was not celiac disease ....