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Member Since 26 May 2005
Offline Last Active Jan 22 2006 07:04 AM

Topics I've Started

Help - Sos

28 July 2005 - 07:50 AM

Hi All,

I was told by my Primary Care (in May) that I had celiacs; this was from bloodwork the GI did and I assumed that they conferred (they are colleagues and she got me in to see him). I never called the GI for test results because of what the PC told me. I had follow up appt with GI on Monday and he informed me that I DO NOT have celiac disease. Like, hello. I've been gluten-free since May/June. He's doing a biopsy in September to confirm the diagnosis, so I am (happily for now) eating normally.

My numbers?

Antigliadan AB Panel:

Antibody, IGA - 23 (normal 0-19 units)
Antibody, IGG - 54 (normal, 0-19 units)

Immunoglobulins (serum)

IGM 386 (normal 48-271)
IGA 418 (normal 81-463)
IGG 1337 (normal 694 - 1618)

He said my tTg was 3

I do have ITP, an autoimmune disease, and NASH (liver). Have been tested for leukemia & lymphoma and came back negative.

You all know more about this than I do - what gives? Did the gluten-free diet make me feel any better? I was never really sick. I will say that something I was eating that was gluten-free (muffins, etc) was causing me to bloat and have a rash; it has gotten significantly better in the past 3 days of eating.

I see my PC tomorrow and will run this by her, but I am more then a little reluctant to take her word on anything right now.




18 July 2005 - 04:41 AM


I'm taking the plunge and will be buying some Kinnikinni (sp) online. I've read that their chocolate donuts are great - what about their bagels? My GI doc said to have some cream cheese on rice cakes - I would have laughed long and hard if I hadn't been on the table waiting for my colonoscopy. :lol: Rice cakes - you have GOT to be kidding :o Anyways, what about bread? I saw that there is two kinds of white rice bread by them and don't know which one to order.

Anything else from them that is a must have?


Diagnosis Question

18 July 2005 - 04:36 AM


OK - I have a (maybe stupid) question. I was diagnosed about 2 months ago -and didn't really have any symptons other then being tired. No stomach problems at all. Around the time that I had routine bloodwork (and it came back abnormal) I did have the bloating/cramping that people talk about .... and then the, um, physical response to that.

So - was there no damage done to my my intestine up until the time the celiac disease was kicked into activity? I know a lot of you have been sick for a while before diagnosis, but it was a matter of weeks for me, which is why I can accurately recall being well/being sick. And it ticks me off, cause if I knew WHY I was bloated the first time I would have stopped eating wheat thins and beer and then - would I have avoided the full blown celiac disease?

I have an appt with GI next week, first time I'll see him since the diagnosis. I've been dealing with my GP who isn't that knowledgeable, but is a GREAT diagnostician and has sent me to wonderful doctors, so no complaints here.

Thanks all


Gravy & Stuffing

07 July 2005 - 12:57 PM

Hi all,

I know it seems early ... but how does one go about making gravy without using flour?

And stuffing? I always used the pepperidge farm packaged mix (and added stuff to it).

I'm not even ready to figure out how to do the pies ....


Hair Dye

07 July 2005 - 06:41 AM

Hi All,

I was just glutened by my (new) shampoo. Now I'm just a little worried about my next hair dresser's appt. I have my natural color (HA) improved upon every 5 weeks (permanent dye). Is this a problem? Growing it out would be an absolute nightmare ....

And do I need to ask her about the products she uses, or is my accidental glutened because I lean over my sink and wash my hair as opposed to lying back and having her do it?

Thanks All


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