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anniej55

Member Since 26 May 2005
Offline Last Active Jan 22 2006 07:04 AM
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Topics I've Started

Help - Sos

28 July 2005 - 07:50 AM

Hi All,

I was told by my Primary Care (in May) that I had celiacs; this was from bloodwork the GI did and I assumed that they conferred (they are colleagues and she got me in to see him). I never called the GI for test results because of what the PC told me. I had follow up appt with GI on Monday and he informed me that I DO NOT have celiac disease. Like, hello. I've been gluten-free since May/June. He's doing a biopsy in September to confirm the diagnosis, so I am (happily for now) eating normally.

My numbers?

Antigliadan AB Panel:

Antibody, IGA - 23 (normal 0-19 units)
Antibody, IGG - 54 (normal, 0-19 units)

Immunoglobulins (serum)

IGM 386 (normal 48-271)
IGA 418 (normal 81-463)
IGG 1337 (normal 694 - 1618)

He said my tTg was 3

I do have ITP, an autoimmune disease, and NASH (liver). Have been tested for leukemia & lymphoma and came back negative.

You all know more about this than I do - what gives? Did the gluten-free diet make me feel any better? I was never really sick. I will say that something I was eating that was gluten-free (muffins, etc) was causing me to bloat and have a rash; it has gotten significantly better in the past 3 days of eating.

I see my PC tomorrow and will run this by her, but I am more then a little reluctant to take her word on anything right now.

Thanks!

Ann

Food

18 July 2005 - 04:41 AM

Hi,

I'm taking the plunge and will be buying some Kinnikinni (sp) online. I've read that their chocolate donuts are great - what about their bagels? My GI doc said to have some cream cheese on rice cakes - I would have laughed long and hard if I hadn't been on the table waiting for my colonoscopy. :lol: Rice cakes - you have GOT to be kidding :o Anyways, what about bread? I saw that there is two kinds of white rice bread by them and don't know which one to order.

Anything else from them that is a must have?

Ann

Diagnosis Question

18 July 2005 - 04:36 AM

Hi,

OK - I have a (maybe stupid) question. I was diagnosed about 2 months ago -and didn't really have any symptons other then being tired. No stomach problems at all. Around the time that I had routine bloodwork (and it came back abnormal) I did have the bloating/cramping that people talk about .... and then the, um, physical response to that.

So - was there no damage done to my my intestine up until the time the celiac disease was kicked into activity? I know a lot of you have been sick for a while before diagnosis, but it was a matter of weeks for me, which is why I can accurately recall being well/being sick. And it ticks me off, cause if I knew WHY I was bloated the first time I would have stopped eating wheat thins and beer and then - would I have avoided the full blown celiac disease?

I have an appt with GI next week, first time I'll see him since the diagnosis. I've been dealing with my GP who isn't that knowledgeable, but is a GREAT diagnostician and has sent me to wonderful doctors, so no complaints here.

Thanks all

Ann

Gravy & Stuffing

07 July 2005 - 12:57 PM

Hi all,

I know it seems early ... but how does one go about making gravy without using flour?

And stuffing? I always used the pepperidge farm packaged mix (and added stuff to it).

I'm not even ready to figure out how to do the pies ....

Ann

Hair Dye

07 July 2005 - 06:41 AM

Hi All,

I was just glutened by my (new) shampoo. Now I'm just a little worried about my next hair dresser's appt. I have my natural color (HA) improved upon every 5 weeks (permanent dye). Is this a problem? Growing it out would be an absolute nightmare ....

And do I need to ask her about the products she uses, or is my accidental glutened because I lean over my sink and wash my hair as opposed to lying back and having her do it?

Thanks All

Ann